Top Tweets for #Fvsd
Family & Carer meet ups planned around the country.
1st stop - Manchester
Supporting families who children have been born with disabilities caused by #Valproate and AntiConvulsants during pregnancy #Fvsd #Facs
@JanetWilliams99
@PreventionPodc @JimBethell @BrineHealth We've worked to prevent #Valproatespectrumdisorder with the 2018 #pregnancypreventionprogram 15000 women are still on the drug UK wide & you cannot cure #FVSD, @IMMDSReview called for redress 6 yrs ago & we're still waiting. @Emma4facs @wesstreeting @hmtreasury @ShaunLintern
@Ddysmo @alkuraya @mft_iMRare Brilliant second set of presentations (~Session B)
๐คฐ๐ผ๐ง โEnvironment, Exposures, and Imprintingโ
๐๐ท๐๐งฌ
#GeneticMimics #Alcohol #Fentanyl #FVSD
#MLID Multi-locus imprinting disturbance
#DNA #methylation
#MDC25
@BernardGloster @CcoHse @CHI_Ireland @roinnslainte
A significant & alarming discrepancy exists between the thousands of babies exposed to #valproate between 1975 & 2015 & the remarkably low number of Fetal Valproate Spectrum Disorder (#FVSD) diagnoses identified since 2019.
The Govt @DHSCgovuk need to get a move on and begin looking after the children disabled by Valproate simply because they didn't want women to know the dangers ahead. Its despicable what they're doing and how they are treating #FVSD community @Emma4facs @ShaunLintern
In exclusive comments to #ThePJ, #HenriettaHughes, @PSCommissioner, has urged the @GOVUK to provide a full response to her #valproate recommendations in report published nearly two years ago
https://t.co/0K38SQEdwY
Families who went to the 1st #genetic #doctor in @CHI_Ireland received the following #diagnosis as he was not willing to write FVSD
on their #diagnosis letters.
#FVSD
#SodiumValproateExposure
#CommunityOperations email address.
@roinnslainte See below a photo a mum sent us of #Epilim (Sodium #Valproate) 500mg. The previous photo that a mum sent to us was 200mg, 300mg.
#Inquirycampaign - #FVSD #FVS etc ๐ข Were you a mother who took #Epilim (sodium #valproate)? If so, the Irish inquiry wants to hear from YOU โ๏ธ
Sodium #Valproate #Epilim inquiry
#FVSD #viral
Used for #bipolar #pain #mentalhealth & other conditions
'We're going to get answers' Mum delighted as #inquiry into anti-#epilepsy drug finally starts
https://t.co/P1E3v2f3jo
#epilepsy #bipolar #mentalhealth #pain #pregnancy #FVSD #Ireland
The Irish #Inquiry into the Historical use of Sodium #Valproate (#Epilim) is live ! https://t.co/Bt17VSCjAr
Inquiry opens on sodium valproate following two-year wait
https://t.co/FhZW8k8QLS
@oacsireland @TheHPRA @roinnslainte
#FACS #FVSD #sodiumvalproateinquiry
Things have progressed since @Christian4BuryS stood up @HouseofCommons for those with #FVSD. We've waited 18 months for the #HughesReport response & now summer recess is upon us & families continue to suffer with very little support. @AshleyDalton_MP @ShaunLintern @Emma4facs
We @Infactuk @Emma4facs want to thank @Christian4BuryS for his support and standing up for those harmed by #valproatecrisis https://t.co/Dj3gC363Nv
@MichealMartinTD @roinnslainte
Great thanks to the @janemoore__ @thejournal_ie & @davidcullinane We wait to hear from the Minister with a date. #FVSD
Campaigners seek to meet @CarrollJennifer as #inquiry into drug that causes #birthdefects yet to begin. https://t.co/R5X4Cvbjbi
@theresa_mbyrne secretary of @oacsireland2017 speaking at the launch of the #valproate #inquiry with her daughter Ellie outside the @roinnslainte โก๏ธ26/06/2024โฌ
๏ธ
Yet still no sign of the inquiry.
#birthdefects #autism
#FVSD #letsgetitdone https://t.co/Zc014tRhXn
#Valproate #EPILIM #FVSD
@CarrollJennifer @roinnslainte
Do you have any comprehension of the profound emotional distress a mother endures when her child attempts suicide, and/or the struggles the individual child is facing ?
You might want to reflect on this !
Today marks #Internationalepilepsyday, a day dedicated to raising awareness for individuals affected by #epilepsy.
On this day, we would like to shed light on Epilepsy and the harmful effects of #antiseizure #medications awareness of #FVSD #FACS is essential.
Full scale prevention for #FVSD is required next @GwynneMP & we @Infactuk @Emma4facs ask for a meeting to discuss this and the #QOF @CatSmithMP @PauletteHamilto @carolinenokes @RebeccaHarrisMP @JoPlattLeigh @RosieDuffield1 @LizziCollinge @AndyBurnhamGM
@Anitafacs @karen_keely @SimonHarrisTD @DonnellyStephen @roinnslainte #GE2024 6 years on from the #health committee on #FACS #FVSD. #oireachtas
@FineGael #GE24 @SimonHarrisTD
Still no disability pathway in place for families who are suffering the consequences of sodium #valproate
Do you feel ashamed ?
#birthdefects #autism #neurodevelopmentaldelay #FVSD
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