Top Tweets for #GANDstrong
One brave soul is running the Brighton Marathon BACKWARDS to raise funds for GAND! Will you take a moment to add your voice and gift of support? #GATAD2B #GANDawareness #Marathon #BrightonMarathon #RareDisease #GANDstrong #JustGiving #ShowYourStripes
https://t.co/DmfReGiXTF
Individuals with GAND face many challenges. Here are a few findings from a recent study. #GANDawareness #GATAD2B #GANDstrong #RareDisease #CareAboutRARE
Your support means the world to us! Thank you for helping us bring attention to this rare disorder on GAND Awareness Day 2020! #GANDawareness #GATAD2B #GANDstrong #RareDisease #CareAboutRARE #ShowYourStripes
Our new #GANDawareness shirts are now available in multiple styles and colors! For every shirt you order, Helping Hands for GAND receives $10. Give a helping hand and look good doing it! #GATAD2B #GANDstrong #RareDisease https://t.co/085gqQuxED
Happy GAND Awareness Day 2020! Please join us in raising awareness of this rare genetic disorder! #GANDstrong #GATAD2B #GANDawareness #RareDisease
Today is #RareDiseaseDay and on the rarest day of the year!! Olivia is 1 in 150 known case worldwide to have #GAND . Learn more and consider donating to help support research efforts: https://t.co/Pb7Ejauqei
#RareDiseaseDay2020 #GANDstrong #GANDawareness #GATAD2B
Two articles have recently been published which describe GAND much more thoroughly and now recognize it as a disorder of the NuRD complex, along with #CHD3 and #CHD4 related disorders. #GANDstrong #NuRDopathy https://t.co/900D0k96tk
HHFG is now a proud member organization of the National Organization for Rare Disorders (#NORD)! We are excited for this opportunity to better represent GAND in the broader rare disease community and to learn from fellow patient advocacy organizations. #GANDstrong #GATAD2B #Rare
ONLY 14 DAYS LEFT!!!! We're at 55% of our @GATAD2B TEAM GOAL and have raise $16,637 of our $30,000 GOAL to support #research. Did I mention Olivia is 1 of 118 known cases WORLDWIDE!
#RareDisease #GlobalGenes #AmericanStrong #GANDStrong Support here https://t.co/yhXws9DCAg
Well done, @GlobalGenes ! You did it again! Another amazing #20188GGSummit filled with #Hope, #Beauty, #SuperPowers, #Innovation, #Collaboration, #Promise, and #Community - allowing us to live in the moment! Thank you!! #GATAD2B #GANDstrong #GANDawareness
Thank you @G17Esiason for your passion and for sharing your story! I am grateful for you and your help to raise awareness about #RareDisease ! #GANDstrong #GATAD2B #20188GGSummit https://t.co/Pb7Ejauqei
I had the tremendous opportunity to share the main stage at @GlobalGenes RARE Patient Advocacy Summit with @mikeporath of @TheMightySite to talk about stories with impact in the rare disease community and patient-centric leadership in healthcare! Thanks @GlobalGenes #2018GGSummit
When you see yourself as part of a global movement, you understand how important you are #RareDisease @GlobalGenes #2018GGSummit #careaboutRARE
@RareRevolutionM @GlobalGenes Here!! ๐ Representing our amazing @GATAD2B families! #GANDstrong #GANDawareness #GATAD2B #RareDisease #20188GGSummit
Cheers to you, @globalgenes !! Congratulations on your 10 year anniversary !! Thank you for supporting the #raredisease community! #thriveforrare #careaboutrare #rare #community #tribe #gandawareness #gatad2b #gandstrong #hope
Refraining the way of how the #rare advocacy community works together - THRIVE!
#Trust
#HonestCommunication
#Respect
#Intentional
#Vulnerability
#Engage & #Empower
And be the drivers of #change !!
#20188GGSummit #ThriveforRare #GATAD2B #GANDstrong
Great insights on building a new kind of #RareDisease patient registry from Anthony Philippakis at @broadinstitute! โEmpower patients! Patients (not researchers or companies) own the data.โ #20188GGSummit #CareAboutRare
#GAND #GANDstrong #GATAD2B
Thank you @lukebrosen for your perspective on #RareDisease!! I loved your point ... Humanize the science! Put a face to the disorder! This is my Olivia! #GANDstrong #GATAD2B #GANDawareness #20188GGSummit #CareAboutRare #hope
There is #hope! The EMPOWERING quadrant of the health language matrix!! Thank you @rachelcallander for sharing your #RareDisease story and the amazing photos from your @SuprPowrBabies project!! #2018GGSummit #CareAboutRare #GANDstrong #GATAD2B #GANDawareness
A warm welcome from @nicoleboice - celebrating the 10 year anniversary of @GlobalGenes! Congratulations!!! #2018GGSummit #CareAboutRare #RareDisease #GANDawareness #GATAD2B #GAND #GANDstrong
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