Top Tweets for #GGsummit
Onto our final panel of the day, where we are asking ‘how to communicate the big things’? Our chair @prafulnargund asks panellists @chriscurtis94, @LukeTryl, @ChristabelCoops and Sophie Vipond about how to maintain consensus for the green and growth agendas. #ggsummit
Ed Hezlet, @watt_direction highlights trade offs within Clean Power 2030: the cost of electricity to consumers is more expensive than the cost of gas and we need to get that electricity cost down #ggsummit
Our second panel on energy infrastructure and the grid is now looking at how we deliver clean power by 2030. Chaired by Virginia Sentence, and featuring @lola__mcevoy, Jeremy Adams, @dhara__vyas, and Ed Hezlet (@watt_direction) #ggsummit
“You don’t have to advocate alone, bring your community with you.” - James Griffin
T2: Empowering
Advocacy: Federal, State & Patient Insights. @GlobalGenes
#weekinrare #rarehealthyequity #raresummit #ggsummit
Our Freshman Orientation for first-time attendees has wrapped up at #WeekInRARE! Like + share this photo if you see yourself pictured! 📷 Welcome, everyone! We're happy you're here! #RARESummit #RAREHealthEquity #GGSummit #GGSummit2024 #GlobalGenes #CareAboutRare #BeCounted
We are two days out before the start of Week in RARE! This event is made possible by the generous support of our sponsors - thank you! ✨
#WeekInRARE #RARESummit #RAREHealthEquity #GGSummit #GGSummit2024 #GlobalGenes #CareAboutRare #BeCounted #RAREX #RareDisease
Lindsey Taveren, CNF Interim ED will be at the @globalgenes Week in RARE Conference🌍Attending in person or virtually, time to make an impact! 💡🔗 https://t.co/9HWtBh1A3K
Tag a friend who should be there! 👥
#WeekinRARE #RARESummit #RAREHealthEquity #GGSummit #GlobalGenes
Our founder is looking forward to attending @GlobalGenes' Week in RARE this September! @Kegottsleben would love to see you all there! Register here: https://t.co/iWDIZr1ynx
#WeekInRARE #RARESummit #RAREHealthEquity #GGSummit #GlobalGenes
🦓 Join us at @GlobalGenes Week in RARE Sept. 25-28 for insightful sessions & valuable connections with #raredisease advocates! We can't wait to welcome you to KC!👋🏿
Register: https://t.co/jMVZtzHwu6
#WeekinRARE #RARESummit #GlobalGenes #GGSummit #RAREHealthEquity #KansasCity
Global Genes RARE Advocacy Summit 2023: Fostering Community and Support in Rare Disease https://t.co/yFVAXXfJgm #RareDisease #GlobalGenes #GGSummit #GGSummit23 @GlobalGenes
A great quote from Susannah Fox during our Closing Plenary for the RARE Advocacy Summit!
#WeekinRARE #RAREAdvocacySummit #GGSummit23 #GGSummit #RAREDisease #RAREDiseaseCommunity
Fantastic #GGSummit closing plenary session! A few takeaways:
Sense of hope through connection.
We can accomplish a lot of things, together.
See the value you bring to the conversation.
Powerful.
Thank you, @SusannahFox! 💚
#WeekInRare
#RareRevolution
#RebelHealth
Looking forward to sharing the #RebelHealth backstory today at the @GlobalGenes Rare Advocacy Summit
We've reached the end of #RAREAdvocacySummit. We hope you've enjoyed the live stream! Tune into our last session to hear the closing remarks with our CEO, Charlene Son Rigby. https://t.co/6iGp2OsV8o
#RAREAdvocacySummit #WeekInRARE #CareAboutRare #RareDisease #GGSummit
Learn about @SusannahFox's how-to guide that will help patients, survivors, and caregivers learn new skills and deploy them for their loved ones. Join the live stream: https://t.co/6iGp2OsV8o
#WeekInRARE #CareAboutRare #GlobalGenes #RareDisease #GGSummit #GGSummit23
Hear directly from change agents driving multi-stakeholder consortiums about their challenges and successes. Join the live stream: https://t.co/6iGp2OsV8o
@jordansgangels @ucsf
#WeekInRARE #CareAboutRare #GlobalGenes #RareDisease #GGSummit #GGSummit23
This session will highlight resources available to help patients and caregivers with healthcare and more. To watch it live: https://t.co/6iGp2OtsXW
@AccessiaHealth
#RAREAdvocacySummit #WeekInRARE #CareAboutRare #GlobalGenes #RareDisease #GGSummit #GGSummit23 #SanDiego
CPN is expanding our courageous network at the @GlobalGenes summit!
@BlythCPN
#GGSummit #RAREAdvocacySummit #WeekInRARE #CareAboutRare #GlobalGenes #RareDisease
“Just seeking a diagnosis and navigating the healthcare system is traumatic.” Mental health support is vital for #raredisease patients and families @globalgenes #GGSummit
Build your community. Gather insights into strategic planning, recruiting active leaders and tracking success for your organization's growth.
Live Stream here: https://t.co/6iGp2OtsXW
@curejm @csnk2a1org @UpliftingAth
#WeekInRARE #CareAboutRare #RareDisease #GGSummit #GGSummit23
Recognizing the winners of this year's Champion of Hope Awards. Congratulations!
#WeekinRARE #ChampionsofHope #COH23 #GGSummit23 #GGSummit #GlobalGenes #CareAboutRARE
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