Top Tweets for #GoBlueForHCU
It's #HCUAwareness Month - Day 4! π
We've made SO much progress since 1962 when #homocystinuria was first identified, and we won't stop working until a cure is found for all! π
#GoBlueforHCU #HCU #HopeConnectsUs
It's #HCUAwareness Month - Day 4! π
We've made SO much progress since 1962 when #homocystinuria was first identified, and we won't stop working until a cure is found for all! π
#GoBlueforHCU #HCU #HopeConnectsUs
#HCUAwareness month - Day 2! π
β‘οΈ Did you know that there are 10 types of #homocystinuria?
Homocystinuria is an elevation of the amino acid #homocysteine in urine or blood.
#GoBlueforHCU #HCU #HopeConnectsUs
It's #HCUAwarenessMonth2023 - Day 23! π
This week, we shine a spotlight on #SevereMTHFR! π¦
#HCUAwareness2023 #Homocystinuria #treatment #homocysteine #methionine #HCU #HopeConnectsUs #GoBlueforHCU
Work smarter, not harder! π
Check out these #medication hacks from #CblG mom, Brittany!
#HCUAwareness2023 #CobalaminDisorders #treatment #Homocystinuria #HCU #HopeConnectsUs #GoBlueforHCU
#HCUAwarenessMonth2023 Day 12 - Let's talk #treatment for #ClassicalHCU!
Follow along with Gabbi - Classical #HCU patient & college student as she takes us through a day in the life!
#HCUAwareness2023 #Homocystinuria #CBSDeficiency #lowprotein #HopeConnectsUs #GoBlueforHCU
It's #HCUAwarenessMonth2023 - Day 11! π
πΉToday's challenge - share an image of yourself, detailing some of the symptoms you've experienced due to classical homocystinuria!
#HCUAwareness2023 #Homocystinuria #ClassicalHCU #CBSDeficiency #HCU #HopeConnectsUs #GoBlueforHCU
It's #HCUAwarenessMonth2023 - Day 10! π
This week, we focus on Classical HCU!
Spread awareness!
β‘οΈ Download & share this infographic: https://t.co/AVPIjrVoID
#NewbornScreening #Homocystinuria #ClassicalHCU #CBSDeficiency #HCU #HopeConnectsUs #GoBlueforHCU
Take a break from the heat π₯΅, read the HCU Herald! - https://t.co/D4pVGFWOWz
#HCUHero #PatientStory #Lowprotein #Research #Assistanace #ClinicalTrials #Homocystinuria #RaceForResearch #CobalaminC #TransitionToAdulthood #OwnIt #HopeConnectsUs #GoBlueForHCU
.@HCUAmerica & @HcuNetworkAust are now accepting Expression of Intent (EOI) applications from researchers with an interest in developing new therapies to treat Severe #MTHFR & #CobalaminG! Learn more: https://t.co/T6PzJSUJjI #HopeConnectsUs #GoBlueforHCU
#HCUAwareness2022 #HCUFact 21
Patients with severe #MTHFR should avoid the following:
-Folic Acid
-Protein Restriction
-Nitrous Oxide
-Dehydration
-Fasting
#Homocystinuria #RemethylationDisorders #GoBlueForHCU #HopeConnectsUs
Day 21 of #HCUAwareness2022: #High5forHCU
β‘οΈ List 5 ways HCU makes you a stronger, better person.
#Homocystinuria #GoBlueForHCU #HopeConnectsUs
Did you know that October is #Homocystinuria (HCU) Awareness Month? Here are some ways that you can get involved and help raise awareness - and you can always see @HCUAmerica for more ideas: https://t.co/auJleY7H96
#GoBlueForHCU #HCUAwarenessMonth
Day 15 of #HCUAwareness2022:
Challenge: Wear Jeans for Your Rare Genes! π π§¬
β‘οΈ Take a πΈ of yourself sporting your favorite #HCU t-shirt & jeans!
Share it with us in the comments, or tag us in your post!
#Homocystinuria #GoBlueForHCU #HopeConnectsUs
#HCUAwareness2022 Fundraiser update! All donations will be MATCHED, up to $30,00! π€―π
β‘οΈ THANK YOU to our donors:
Carlos Herrera, Patricia Mehltretter, & Barbara Zarou!π
#HCU #HopeConnectsUs #GoBlueforHCU
#RaceForResearch swag is coming your way!!! ππ
Be on the lookout for your new gear! π
#Homocystinuria #HCU #HopeConnectsUs #GoBlueforHCU
#HCUAwareness2022 #HCUFact 13:
#Cobalamin disorders are diverse, not all symptoms may apply. Symptoms may include:
-Poor feeding & growth
-Global developmental delays
-Seizures
-Maculopathy (vision loss)
#GoBlueForHCU
https://t.co/13MEcpiFMu
Meet Grayson! He's an #HCUHero / #CblGWarrior who never lets #HCU stop him from doing the things that he loves! π
#HCUawareness2022 #Homocystinuria #GoBlueForHCU #HopeConnectsUs
October is HCU awareness month! Our team members have βgone blue for HCUβ to help highlight this family of rare metabolic disorders. To learn more about classical homocystinuria, visit https://t.co/yGV5HDqeC3. #InRareForLife #GoBlueForHCU #HCU
Day 6 of #Homocystinuria (HCU) Awareness Month: Share a #LowProtein meme. If you find more, share them with us!
Want to get creative? Create one and send it our way and we'll share it.
#HCUAwareness2022 #GoBlueForHCU #DietForLife #HopeConnectsUs
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