Top Tweets for #GrowingUpRare
On Friday, March 25th, our office wore jeans and donated to @PWSAUSA in support of Prader-Willi Syndrome. To learn more about Prader-Willi Syndrome or support PWSA | USA, please visit https://t.co/ESAgmBHr49.
#DenisonParking #GrowingUpRare #PWSAwareness #PWSAUSA
"Growing up rare has its challenges but it also has made me who I am today"
Justice, a young woman with Prader Willi Syndrome (PWS), shares her story.
#GrowingUpRare #PWSAUSA #PWSAsaves #RareVoicesMatter
https://t.co/hL48CTFrN9
Christina, a teen with PWS, shares what it is like #GrowingUpRare ๐งก
#PWS #PWSAUSA #PWSAsaves #StrongerTogether #PWSAwarenessMonth #PWSAwareness #PraderWilliSyndromeAwarenessMonth
We're counting down to February 29 when millions of people across the globe will celebrate Rare Disease Day! Share your stories of living with PWS or caring for someone that does. Use the hashtags below and we'll retweet your story!
#ShareYourRare #RareDiseaseDay #GrowingUpRare
โMy mama has been my backbone forever. If it wasnโt for her, I wouldnโt be who I am today.โ -Andy, adult with PWS
Your donation supports adults like Andy through awareness, family support, research, education and advocacy.
Donate today: https://t.co/0oz2zO3wMl
#GrowingUpRare
At this time of thanksgiving and gratitude, our thoughts turn to the PWSA (USA) commUNITY with warm appreciation. YOU are making a difference. Thank you. #ThankfulThursday #pwsa #pws #rarepower #growinguprare #rarediseases
We've already raised $16,778 of our $225,000 goal from 52 donors to support this year's Angel Drive campaign. Your gift means a lifetime of support for those #GrowingUpRare ๐. Donate today: https://t.co/0oz2zO3wMl
We ๐งก that awareness for Prader-Willi syndrome is being raised in this video! Thanks for sharing your story, Shepherd family!
https://t.co/9vtINglCM1
#PWSAUSA #PWS #PraderWilliSyndrome #PWSpower #PWSAsaves #RareVoicesMatter #PWSadvocacy #GrowingUpRare
Shout out ๐ฃ to our YIP volunteers! With over 1,000 attendees, this year's National Convention was an overwhelming success, and we couldn't have done it without our dedicated volunteers!
#PWSA2019 #PWSAUSA #PWS #PWSpower #PWSAsaves #RareVoicesMatter #PWSadvocacy #GrowingUpRare
We know how hard it may be for your child to communicate, even if they want to participate this #Halloween. Download and print these cards to hand out when trick-or-treating.
#PWSAUSA #PWS #PraderWilliSyndrome #PWSpower #PWSAsaves #RareVoicesMatter #PWSadvocacy #GrowingUpRare
Stop by the PWSA (USA) selfie station ๐คณ and share your story! We're looking for individuals with PWS to share what it is like #GrowingUpRare to raise awareness for PWS.
#PWSA2019 #PWSA2020 #PWSAUSA #PWS #PraderWilliSyndrome #PWSpower #PWSAsaves #PWSadvocacy
Don't forget to stop by the Millendo Therapeutics table and design a tile for PWS research!
For every tile attendees create, Millendo will donate $10 to PWS research!
#PWSA2019 #PWSA2020 #PWSAUSA #PWS #PraderWilliSyndrome #PWSpower #PWSAsaves #PWSadvocacy #GrowingUpRare
Join us as we share what it is like #GrowingUpRare ๐ to support PWS awareness, family support, research, education and advocacy.
Receive a ๐ from us when you donate early to our 2019 Angel Drive Campaign at our 2019 National Convention.
https://t.co/lmif0N949Z
Join us as we share what it is like #GrowingUpRare ๐ to support PWS awareness, family support, research, education and advocacy.
Receive a ๐ from us when you donate early to our 2019 Angel Drive Campaign at our 2019 National Convention.
https://t.co/lmif0MRtir
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