Top Tweets for #HIBM

almost 5 years ago

"NDF is the single largest funder of clinical research, trials and research grants, to develop a treatment to halt the progression of GNEM. Will you join us and offer your support? #tuesdaytakeover #gnem #gnemyopathy #hibm #raredisease #neuromusculardisease #ndf " @CureHIBM

RareRevolutionM's tweet photo. "NDF is the single largest funder of clinical research, trials and research grants, to develop a treatment to halt the progression of GNEM. Will you join us and offer your support?
#tuesdaytakeover #gnem #gnemyopathy #hibm #raredisease #neuromusculardisease #ndf " @CureHIBM https://t.co/3dypE8IDvc

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almost 5 years ago

Since its inception, NDF has devoted tremendous resources toward setting the bar in patient support services. #gnem #gnemyopathy #hibm #raredisease #neuromusculardisease #ndf #tuesdaytakeover @CureHIBM

RareRevolutionM's tweet photo. Since its inception, NDF has devoted tremendous resources toward setting the bar in patient support services.
#gnem #gnemyopathy #hibm #raredisease #neuromusculardisease #ndf #tuesdaytakeover @CureHIBM https://t.co/1syeQtG8Hx

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almost 5 years ago

"NDF announced a plan to reach the human dosing phase of a new treatment to stop the progression of GNEM in affected patients. #gnem #gnemyopathy #hibm #raredisease #neuromusculardisease #neuromusculardiseasefoundation #ndf #tuesdaytakeover " @CureHIBM

RareRevolutionM's tweet photo. "NDF announced a plan to reach the human dosing phase of a new treatment to stop the progression of GNEM in affected patients.

#gnem #gnemyopathy #hibm #raredisease #neuromusculardisease #neuromusculardiseasefoundation #ndf #tuesdaytakeover " @CureHIBM https://t.co/krepDN76dM

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almost 5 years ago

"Valenee Gosine discusses the impact of her GNE Myopathy diagnosis upon her profession. Read the full story here: https://t.co/d6gYqQMJDg #gnem #gnemyopathy #hibm #raredisease #ndf #tuesdaytakeover "

RareRevolutionM's tweet photo. "Valenee Gosine discusses the impact of her GNE Myopathy diagnosis upon her profession.

Read the full story here: https://t.co/d6gYqQMJDg

#gnem #gnemyopathy #hibm #raredisease #ndf #tuesdaytakeover " https://t.co/2kQYNOiN6B

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almost 5 years ago

"Meet Antoinette, the mother and caregiver to four children, all of whom have been diagnosed with GNE Myopathy (GNEM). Read the full story here: https://t.co/GkAUkz18lK #gnem #gnemyopathy #hibm #raredisease #neuromusculardisease #neuromusculardiseasefoundation @CureHIBM

RareRevolutionM's tweet photo. "Meet Antoinette, the mother and caregiver to four children, all of whom have been diagnosed with GNE Myopathy (GNEM).
Read the full story here: https://t.co/GkAUkz18lK
#gnem #gnemyopathy #hibm #raredisease #neuromusculardisease #neuromusculardiseasefoundation @CureHIBM https://t.co/1el0vXaE7K

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almost 5 years ago

"Have you heard of GNEM or GNE Myopathy before? If you haven't, you'll know all about it after today's #takeovertuesday ! Watch the short video to know more or head over to our website: https://t.co/1MsPpXxRA4 #tuesdaytakeover #gnem #gnemyopathy #hibm " @CureHIBM

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almost 5 years ago

➡️WE NEED YOUR HELP! Help us raise funds and create a legacy in the shape of critical research, patient support and education programs, genetic screening for possible #GNEM carriers, and so much more. 💙Donate here: https://t.co/c1bKqjt9SX #gnemyopathy #raredisease #hibm #ndf

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almost 5 years ago

Thank you to Maya, our Certified Patient Advocate in Israel and to Dr. Stella Mitrani-Rosenbaum for working together to present “Update on Model Systems for #GNE Myopathy” in #Hebrew, specifically for our #GNEM community members in Israel. #HIBM #genetherapy #raredisease #NDF

CureHIBM's tweet photo. Thank you to Maya, our Certified Patient Advocate in Israel and to Dr. Stella Mitrani-Rosenbaum for working together to present “Update on Model Systems for #GNE Myopathy” in #Hebrew, specifically for our #GNEM community members in Israel.

#HIBM #genetherapy #raredisease #NDF https://t.co/Uuwfu3Bj5y

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almost 5 years ago

Care Partners: Please join #NDF Emotional Wellness Director Carol Gelbard LCSW on October 23rd at 9 am PST for an opportunity to catch up and check in. 🤗💻➡️ https://t.co/2a5rxGcISB #neuromusculardisease #gnem #caregivers #caregiversupport #nonprofitorganization #hibm #community

CureHIBM's tweet photo. Care Partners: Please join #NDF Emotional Wellness Director Carol Gelbard LCSW on October 23rd at 9 am PST for an opportunity to catch up and check in. 🤗💻➡️ https://t.co/2a5rxGcISB
#neuromusculardisease #gnem #caregivers #caregiversupport #nonprofitorganization #hibm #community https://t.co/NuHnoHr0u8

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almost 5 years ago

Thank you to Dr. Shivani Patel who ran the London Marathon to support her Aunt Mona. She had over 40 different donors and raised over $1,250 so far for #NDF 💪🏻💙 You can still donate and show YOUR support for Shivani and NDF 🙏🏼🤗 https://t.co/caqKJSmnoU #gnem #hibm #fundraiser

CureHIBM's tweet photo. Thank you to Dr. Shivani Patel who ran the London Marathon to support her Aunt Mona. She had over 40 different donors and raised over $1,250 so far for #NDF 💪🏻💙
You can still donate and show YOUR support for Shivani and NDF 🙏🏼🤗 https://t.co/caqKJSmnoU

#gnem #hibm #fundraiser https://t.co/uN7P6Niksw

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almost 5 years ago

(1/2) Our mission is to enhance the quality of the lives of people living with #GNE #Myopathy through #advocacy, #education, #outreach, and #funding critical research focused on treatments and a cure. You can #HELP! #neuromusculardisease #raredisease #nonprofit #hibm #ndf

CureHIBM's tweet photo. (1/2) Our mission is to enhance the quality of the lives of people living with #GNE #Myopathy through #advocacy, #education, #outreach, and #funding critical research focused on treatments and a cure. You can #HELP!
#neuromusculardisease #raredisease #nonprofit #hibm #ndf https://t.co/Wm9u2RyzmS

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