Top Tweets for #HMSAware
Spider tool leg 8 for #HMSAware
Hypermobility can have urogenital implications, that fragile/stretchy tissue is everywhere, and just as it can affect bowel/digestive function, it can be a plumbing/autonomic issue elsewhere.More at: https://t.co/wiQCAYVNQK Horse do you manage?
The fifth leg of the Spider Tool looks at Cardiac Dysautonomia. This is a huge subject and won’t fit neatly into a quick #HMSAware post, but there’s a basic information on our website. Start here https://t.co/WRRkhJL8Gj already debilitating, it likes to team up with fatigue!
Gastrointestinal quirks are a common problem with symptomatic hypermobility and include 'mechanical' (floppy tubes and leaky valves), autonomic problems (poor instructions from the brain), and enzyme/microbiome issues. Event on this next month > https://t.co/232YetNh2P #HMSAware
With several pain types present in each of us, no-one's pain looks exactly like another's. Sharing tips does provide a tool box full of things to try when you're struggling, though. What are the best pain tips you've been given over the years, and by whom? #HMSAware
This week of #HMSAware, we raise awareness of the broader 'umbrella' of hypermobility syndromes. Some HDCTs are rare, but symptomatic hypermobility is not! There may be no cure, but there is almost always something that can be done to help....
We're all at sixes & sevens, the spider legs that deal with anxiety and depression! It's not all in your mind, but your mind *can* be affected, brains can be over stretched too!
Our go-to first aid tool. https://t.co/oVEWOadPKQ
#HMSAware #HypermobilityAwareness #SelfCareSunday
The spider’s 5th leg is cardiac dysautonomia. Vertical is absolutely out of the question at the moment. Usually controlled, an infection has sent our PoTS into overdrive and we’re properly in ‘sick’ mode, horizontally!
#HMSAware #HypermobilityAwareness https://t.co/NqrTlu7BKk
The spider’s 4th leg, now being validated in young people, covers the digestive & bowel impacts, often lifelong and among the most distressing yet least known Hypermobility issues, 💩It goes right through you, or doesn’t! #HMSAware #HypermobilityAwareness https://t.co/JSJkC0zXhk
MSK & Pain aren’t most complained about!
The 3rd spider leg, fatigue is. It won’t lift with an espresso or a nap, fogs up your brain, is relentless.
Our fatigue guide is in the members' zone, but you can buy it here:
https://t.co/YpQJLP7fQh #HMSAware #HypermobilityAwareness
Second leg of the hypermobility spider, is Pain. This is not (as you might think) our most frequent complaint. Fatigue comes top.
They make a bad team, so it's vital to tackle both. Pacing is key to untangling them. Tips on how to begin here https://t.co/adjuKx0D6q #HMSAware
At https://t.co/nEEuGSbEGe we spend the week of #RareDiseaseDay raising awareness of symptomatic hypermobility. The spider tool captures how each person is impacted by the systemic effects (rare or not), and MSK is just the tip of the iceberg. #HMSAware https:…
@H2OhTwist @biochemliz @CortDoesScience This. We still don’t really know what hEDS is.
We usually spend the week leading up to rare disease day raising awareness of the more common hypermobility syndromes, (#HMSAware), and RDD amplifying *actually* rare voices. :)
#RareDiseaseDay Add them up and rare diseases are everywhere. Here's one of our rarest, but even our most typical member will recognise some of her everyday frustrations. We all win when we connect the dots and collaborate. #HMSAware
https://t.co/YGPBuYikaS
Two consecutive days delivering professional development! I'm on a roll!
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#OccupationalTherapy #HMSAMasterclass #HMSAware #NEISVoid https://t.co/ec009Qv8fc
Tonight's Professional Masterclass sees @JBOccyTherapy (Independent Occupational Therapist) focus on helping clients build a self-management toolkit and cover key pacing and fatigue management strategies, and look at therapeutic relationships and patient narratives #HMSAware
Fantastic work as always @jdibon. Oh how I wish I'd had you helping me through exercise in the early days of diagnosis. It's wonderful to see a whole groups of professionals learning everything I worked out the hard way as a patient! #HMSAware #ProfessionalDevelopment
Halfway through this evening's Professional Masterclass and there's a call and response moment from @jdibon on that thing we all have to learn...
Altogether now
"Just because they CAN...."
A great start to this years #HMSAware, with our HMSA Professionals masterclass yesterday evening.
Tonight's presentation is from Jeannie Di Bon - a movement therapist specialising in HMS.
You can catch up with yesterday & join us for the rest here https://t.co/J2OBmbSP7t
T-5mins till Kim introduces Jeannie Di Bon kicking-off our Professionals Masterclass series. Who's your least obvious health care provider? GP, PT, and so on are the usual Pros involved in supporting people to self-manage... Who's crucial to your care, but less obvious? #HMSAware
Symptoms of #hypermobility are extremely variable. Fatigue, concentration levels, or even hormone levels can be the difference between either completing a task safely or the attempt causing injury or dislocation. #EDS #EDSAwareness #HMSAware
Book from https://t.co/S5Mlosu1DP
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