Top Tweets for #HPPCommunity
Time to make a splash with our summer designs. Last year, we launched two new summer designs. Come rep these fun styles while raising awareness. Receive 30% off everything today ONLY!
Shop now: https://t.co/RFqkZ3Dnjk
#SoftBonesHPP #HPPCommunity #Fundraiser
Our Spring Newsletter is hot off the press! Get the full scoop below.
https://t.co/Ixws62hM9j
#SoftBonesHPP #HPPCommunity #RareDisease #BareBones
Friendly Reminder!
Tune in tomorrow at 7:30 AM Eastern for a second chance to watch "Behind the Mystery of Hypophosphatasia" on Lifetime featuring Deborah Fowler, Cindy Reasor, and other guests. https://t.co/YZu4G8du80
#SoftBonesHPP #HPPCommunity #BehindtheMystery #RareDisease
Let’s input our data together!
Join us for our next Appy Hour on Wednesday, November 13th at 3 PM Eastern. Together we can manage HPP. Registration is required. Please register below.
https://t.co/riaIb9mCVN
#SoftBonesHPP #HPPCommunity #myHPP #AppyHour #RareDisease
Soft Bones, in collaboration with Green Room Communications, has won the Ragan PR Daily’s 2024 Nonprofit Communications Award for its PR Campaign on a Shoestring Budget. The award recognizes our 2023 #WorldHPPDay campaign.
#SoftBonesHPP #HPPCommunity #raganPRawards
Can you believe the National Patient Meeting is here? We can’t wait to see you!
A huge thank you to the many volunteers who helped get us ready!
View the agenda here: https://t.co/kl4Cw7yYNo
#SoftBonesHPP #HPPCommunity
We're so proud to have been awarded a 2023 #RAREisGlobalAdvocateGrant by @HorizonTherapeutics’@rareis___ program, which recognizes our contributions to advancing, educating and addressing the needs of the rare disease community. #HPP #HPPcommunity
https://t.co/nattJPmNKW
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