Top Tweets for #Hope4PWS
Many individuals with PWS have poor impulse control placing them at risk of injury or harm. Today is day 30 of PWS Awareness month.
#HopeIsHere #Hope4PWS #PWSawareness

Many families utilize cabinet and refrigerator locks to keep their loved one with PWS safe. Today is day 29 of PWS Awareness month.
#HopeIsHere #Hope4PWS #PWSawareness

Individuals with PWS are at increased risk for choking, subclinical dysphagia and aspiration. Today is day 28 of PWS Awareness month.
#HopeIsHere #Hope4PWS #PWSawareness

Hyperphagia symptoms commonly begin between ages three and eight. Currently, there are no FDA approved treatments for hyperphagia. Today is day 27 of PWS Awareness month.
#HopeIsHere #Hope4PWS #PWSawareness

Individuals with PWS have measured IQ scores ranging from low normal to moderate intellectual disability. Today is day 26 of PWS Awareness month.
#HopeIsHere #Hope4PWS #PWSawareness

Individuals with PWS often have difficulty reading facial expressions and social cues. Today is day 24 of PWS Awareness month.
#HopeIsHere #Hope4PWS #PWSawareness

Prader-Willi syndrome is one of 7,000 identified Rare Disorders. Today is day 23 of PWS Awarness month.
#HopeIsHere #Hope4PWS #PWSawareness

Temperature regulation can be a concern for individuals with PWS. They may overheat on a warm day or be at risk for hypothermia on a cold day. Today is day 22 of PWS Awareness month.
#HopeIsHere #Hope4PWS #PWSawareness

Individuals with PWS are at higher risk for mental illness such as anxiety, depression, bipolar disorder and psychosis. Today is day 20 of PWS Awareness month.
#HopeIsHere #Hope4PWS #PWSawareness

Gross motor activities can be challenging for those with PWS. Today is day 19 of PWS Awareness month.
#HopeIsHere #Hope4PWS #PWSawareness

PWS caregivers incur high caregiver burden that impacts most aspects of caregiver life. Today is day 18 of PWS Awareness month.
#HopeIsHere #Hope4PWS #PWSawareness

PWS is recognized as the most common genetic cause of life-threatening childhood obesity. Today is day 17 of PWS Awareness month.
#HopeIsHere #Hope4PWS #PWSawareness

Hypotonia affects individuals with PWS throughout their lives. Motor development is often delayed. Today is day 16 of PWS Awareness month.
#HopeIsHere #Hope4PWS #PWSawareness

Individuals with PWS often experience high levels of anxiety that can negatively affect functioning. Today is day 15 of PWS Awareness month.
#HopeIsHere #Hope4PWS #PWSawareness

Many individuals with PWS present with speech and language deficits. Today is day 14 of PWS Awareness month.
#HopeIsHere #Hope4PWS #PWSawareness

Excessive daytime sleepiness affects many individuals with PWS. Today is day 13 of PWS Awareness month.
#HopeIsHere #Hope4PWS #PWSawareness

Hypogonadism (diminished function of the gonads) and cryptorchidism (undescended testes) is common in infants with PWS. Today is day ten of PWS Awareness month.
#HopeIsHere #Hope4PWS #PWSawareness

Impaired vision is a treatable symptom of PWS. Today is day nine of PWS Awareness month.
#HopeIsHere #Hope4PWS #PWSawareness

Children with PWS have an incidence of developing scoliosis at rates between 40 - 90%. Today is day eight of PWS Awareness month.
#HopeIsHere #Hope4PWS #PWSawareness

Growth hormone (GH) is the only FDA approved drug to treat PWS. GH decreases body fat, increases muscle mass, improves bone density and positively effects behavior and cognition. Today is day six of PWS Awareness month.
#HopeIsHere #Hope4PWS #PWSawareness

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