Top Tweets for #HowNotToDoPatientEngagement
Ok… so I decided not to share this til now:
A few months ago I resigned as Patient Representative for the Faculty of Eating Disorders at @rcpsych. It wasn’t just because of illness, the reason I gave. It was because I had less ability to withstand unfair criticism when ill
1/🧵
Agree @TO_dpr, we had similar findings in our paper ##HowNotToDoPatientEngagement in which we leave readers with an #EngagingWithPurpose framework. https://t.co/Ua3wEOkvHL
🤔Thinking about experiences of #PatientPartners in #Research. Bad experiences compound and have potential to contribute to burnout and harm. We need to do better as a #PatientEngagement community. Sharing some examples in the spirit of learning. 🧵/1
I have heard this form of ableism called "academic bias". It is definitely a factor - one that leads to tokenism for @PatientAdvisors. Has anyone else other terms or descriptions? #hownottodopatientengagement
Must Read! Engaging for Purpose Patient Engagement Framework:
"From the thematic analysis - patient partners want to know how their time & input have influenced project decisions & outcomes".
Congrats & TY @SayaniAmbreen Great use of X/Twitter!
#LCSM
#HowNotToDoPatientEngagement
Check out our Engaging with Purpose Framework: Lessons learned from #HowNotToDoPatientEngagement: the engaging with purpose patient engagement framework based on a twitter analysis of community perspectives on patient engagement.
https://t.co/In2EnOV2MF
@CIHR_IRSC @WCHospital
Check out our Engaging with Purpose Framework: Lessons learned from #HowNotToDoPatientEngagement: the engaging with purpose patient engagement framework based on a twitter analysis of community perspectives on patient engagement.
https://t.co/In2EnOV2MF
@CIHR_IRSC @WCHospital
Excellent co-presentation @FieryFrancine and Brianna Dunstan @PiPER_UHN #PIPER2023 . Learning about #HowToDoPatientEngagement and #HowNotToDoPatientEngagement @amaybee
Presentation on a research project based on #HowNotToDoPatientEngagement @FieryFrancine Patient engagement must be intentional. #PiPER2023
Let’s play fill in the blank.
Hours of operation: 8 am - 4 pm
Expecting people to take off from work to pick up a copy of their #MedicalRecords is _______________.
#HowNotToDoPatientEngagement #EHR #PtExp #Healthcare
Things I loathe in #healthcare:
When patients are told to sign a blank screen consenting to something but there is no hard copy or any indication of what they are signing.
Why???
#PtExp #Trust #Transparency #HIPAA #HowNotToDoPatientEngagement
Dear everyone in #healthcare:
Here’s everything you need to know about #HowNotToDoPatientEngagement
#hcldr #hitsm #medtwitter #WednesdayMotivation
How to piss off a patient in 5 words:
Learning from the session about #HowNotToDoPatientEngagement @ #KBHNConf2021 w/ @DrMPhoenix @SMicsinszki @RaeofSunshine79 @mayapajevic & Sue Simpson, generating ideas about envisioning a future for partnership & engagement
@suerobinsyvr Sorry to hear about this very negative experience and I appreciate you sharing this with us so openly…these discussions can only make it better for other patient partners and representatives #PatientEngagement #HowNotToDoPatientEngagement
Be sure to catch from #HowNotToDoPatientEngagement to #BuildingBackBetter with @mayapajevic @DrMPhoenix Sue Simpson and @RaeofSunshine79 at the #KBHNConf2021
Our fourth speaker is @SMicsinszki ! She brings her experience as a registered nurse and through her doctoral work examining factors associated with sleep quality in parents of children with Autism Spectrum Disorder. To find out more and register: https://t.co/hufuEd3uYP
Our first speaker from #HowNotToDoPatientEngagement to #BuildingBackTrust is @mayapajevic ! Catch her in this interactive presentation on November 9 where you can participate through Twitter! For more information and how to register: https://t.co/pUcZU14Sef
@drnic1 @GraceCordovano @jhoronjeff @patientslikeme @ThePatientsSide @stacy_hurt @kvaldes13 @LGH_dc @lesliekellyhall @Colin_Hung @techguy Cool. Not only did the patient have to request their images on CD w/a fax, they also PAY to get a nifty CD that their computer can't read with a NO, NO, NO, not for your eyes scolding.
#HowNotToDoPatientEngagement #PatientAdvocacyProblems #InformationBlocking
We can't wait for #HowNotToDoPatientEngagement at #KBHNConf2021!
It's such an important discussion that we're so honoured to host🧠
@RaeofSunshine79 @FERCourse
Very excited for this session! #KBHNConf2021 #HowNotToDoPatientEngagement
➡️ More info: https://t.co/RnMPWhyqzO
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