Top Tweets for #HumanityMeetsScience
Since 2016, 14 BigPharma companies spent $577B on stock buybacks & dividends – $56B more than research & development.
Meanwhile @Biogen refused to give 500 people w SOD1 #ALS access to #Tofersen via #ExpandedAccess.
Helping a few in July is not enough.
#HumanityMeetsScience?
The report alleges that 14 top pharmaceutical companies have spent more on stock buybacks, dividends to investors, and executive compensation than on research and development https://t.co/Qe9PffrAwJ
#NoMoreALSWidows #NoMoreALSOrphans
@nicolecimbura you are a beautiful, courageous force of nature! Love you for staying in this fight so other children don't lose their parents to #ALS.
People are #DyingWaiting for #Tofersen
#HumanityMeetsScience
#ALSUrgency #DrugsinBodies
@Chance4Lisa @biogen @Mayuri_Saxena @iamalsorg @als_now @Michell62614519 @FinishALS @BrianBeatsALS @sandymorris333 @pjgreen @up_als @PatriciaManhar1 . @biogen I wrote a letter to #CEO Michel Vounatsos asking him to take the next step and grant Lisa access to #tofresen now. July is too late! #NomoreALSwidows
@Biogen 4 small pharma companies without any revenue from drug sales are offering #ExpandedAccess to people w #ALS. If they can do it, so can you with your $14 Billion in Revenue & $41 Billion market cap.
#HumanityMeetsScience
#DyingWaiting for #DrugsinBodies
#Tofersen4Lisa
@biogen Caring Deeply. Working Fearlessly. Changing Lives. ™ is your motto. You even trademarked it. Seems pretty hollow when you don't deliver on your promise. DO THE RIGHT THING! #wheresciencemeetshumanity #tofersen4Lisa #dyingwaiting
Silence is Complicity
~ Wisdom from Albert Einstein
#DrugsinBodies #DyingWaiting #EAPNow
#ExpandedAccess #CompassionateUse
#HumanityMeetsScience
Grateful for esteemed voices to join us in this battle for #ExpandedAccess.
@gregggonsalves is a professor of both Law & Epidemiology at Yale. His leadership & advocacy is so incredibly important! #LeadersLead
#DrugsinBodies #DyingWaiting
#HumanityMeetsScience #EAPNow #ALS
Bioethicists sitting in ivory towers would have a different view of "risk-benefit" & the need for #placebos if it were their child with a 100% chance of dying.
There is no "A, B & C" risk in #ALS.
#DyingWaiting
#DrugsinBodies
#CompassionateUse
#HumanityMeetsScience
@biogen ... You have been a scientific leader in the #ALS community. You have the financial capacity to be a compassionate leader by offering #Tofersen to people who are #DyingWaiting.
#DrugsinBodies
#HumanityMeetsScience
This is the latest response Lisa received today from @biogen's CEO, Michel Vounatsos. #tofersen4lisa #dyingwaiting #drugsinbodies #EndALS #BiogenSayYesToLisa @US_FDA @FDAMedia
People with ALS are fighting for #DrugsinBodies
Read this courageous thread from @kelsieswrites about @Biogen's failure to give #ExpandedAccess to #Tofersen
She & Chris are #ALSHeroes fighting for ALL people with #ALS.
#DyingWaiting
#CompassionateUse
#HumanityMeetsScience
So though my voice might not make a difference in this conversation, it’s important I add it. @Biogen, you created this mess. Now fix it. Find a way to get Lisa this drug. My husband, who got his 25th dose of Tofersen last week, is proof that it gives people more time. 10/11
@Norton_Health @rdixon25 Please discuss desperate need to implement FDA's #ExpandedAccess program aka #CompassionateUse in rare neurological diseases
People are #DyingWaiting for #DrugsinBodies.
Check out @Chance4Lisa - trying to access @Biogen's ASO Tofersen to fight her #ALS.
#HumanityMeetsScience
@kandysimons @alsassociation Heartbreaking that you are fighting for your son's life & leaders aren't advocating for Kade.
Research is critical but equally critical is helping patients TODAY. Well-designed #EAPs gets #DrugsinBodies & increase data for FDA approval.
#HumanityMeetsScience
#ExpandedAccess
@RepMikeQuigley @RepMikeQuigley #ALSHero Thanks for sponsoring #ACT4ALS that will help get #DrugsinBodies of people w #ALS who are #DyingWaiting.
Can't wait for it to be reintroduced so we can get 291 cosponsors in the House & get a floor vote.
#CompassionateUse #EAP4Me
#HumanityMeetsScience
Sadly so many voices speaking from the grave about their unanswered pleas for access to investigational drugs in #ALS trials. With 100% chance of dying, no risk-benefit analysis justifies withholding drugs. #DrugsinBodies today!
#EAP4Life
#ExpandedAccess
#HumanityMeetsScience
"I am dying, please let me take your investigational therapy" we whispered. "Give me your drug!" we yelled. Go back to the ALS graveyard archives-you will hear the desperation of our requests, of our demands. W/ just a little work, we could change this. EAP is entirely possible.
Yes! All people w ALS deserve a chance to fight for their lives. #ExpandedAccess is the only health care that can make a difference for many w #ALS.
@Biogen #HumanityMeetsScience ... humanity is 1st for a reason!
#DrugsinBodies #DyingWaiting #CompassionateUse
#EAP4Me #MND
Merit Cudkowicz is changing the fact of #ALS with her commitment to getting drugs in bodies for patients who don't qualify for clinical trials -- appx 90% of people nationwide.
#HumanityMeetsScience
https://t.co/PCcBpLBuN9
@Biogen Lisa is fighting for her life. You developed an amazing therapy. You have the gift of life in your hands.
#ExpandedAccess is when #HumanityMeetsScience. Please show humanity. People with #ALS are #DyingWaiting
#DrugsinBodies #tofersen4Lisa #EndALS #biogengrantaccess
Team Lisa - thank YOU for showing up today and fighting for Lisa and the #ALS community! For those who couldn't join in person, thanks for tuning into our FB live, accessible here: https://t.co/zjtDv7kAmK #tofersen4Lisa #biogengrantaccess #EndALS #moretimeforLisa @biogen
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