Top Tweets for #HuntingtonsInMind
We had a great meeting with @drcarolinej on care for people with Huntington’s disease. Too many people with rare, neurodegenerative conditions are left struggling to get the mental healthcare they need. Thank you for your support. #HuntingtonsInMind
Good news to share from our mental health campaign. @NHSEngland has made clear that mental health services should never refuse support to someone because they have Huntington's disease or another neurological condition. @DrAkshayNair #HuntingtonsinMind https://t.co/nopqeSfsZv
2...allowed me to reflect on our @HDA_tweeting training day for MH practitioners & it's purpose to bear #Huntingtonsinmind. Mental illness is absolutely 💯 present in HD & treating it can improve a person's QOL. And nope, it's not just about 'well you would be depressed if....
At the beginning of the year, I was asked to be involved in the #HuntingtonsinMind campaign by @HDA_tweeting. Out came an incredible awareness film & I'm pleased to say it's up for a Charity film award BUT it needs votes. Please take 10 to look & vote...
https://t.co/DmagVtmW1S
For 2022 Huntington's Disease awareness month, we aimed to highlight the impact that Huntington's Disease, has on mental health with the campaign #HuntingtonsInMind. During the campaign Alison bravely shared her story about life caring for her husband Bert and her daughter Elise
And in honour of the #huntingtonsinmind & awareness month I'm sending my copy to a colleague who will no budge on 'once a wrong un, always a wrong un' regardless of illness 🤨
In coming weeks, we’ll be showcasing our 7 shortlisted campaigns for the Communique Awards. Working with @HDA_tweeting, #HuntingtonsInMind is nominated for Charitable Campaign of the Year. To find out more about the campaign, visit: https://t.co/92kGMIclqz
May is #HDAwarenessMonth!
Today, we're giving a shout out to:
➡️speech & language therapists working with people with #HuntingtonsDisease
➡️our colleagues @HDA_tweeting
Check out @RCSLT's resources ⏬
https://t.co/dpyOSJXz4n
#HuntingtonsInMind #LetsTalkHuntingtons
Supporting colleagues & folk with #huntingtonsdisease who have transitioned into nursing care by doing this thang together tomorrow
If you want to know why head to @HDA_tweeting
#huntingtonsinmind
campaign & listen to Holly, Billy & Jens story
https://t.co/6kpUt92HxN
Our latest subscriber story features Huntington's Disease Association's chief exec Cath Stanley, who tells us about her personal journey into the HD field and her hopes and expectations for future.
@HDA_tweeting #HuntingtonsDisease #HuntingtonsInMind
https://t.co/uWH8nUQqh6
Our #HuntingtonsInMind campaign shared stories from the Huntington’s community. We created three powerful films. One was David who is gene-positive and his wife, Debbie who spoke about navigating David’s mental symptoms. #NationalStorytellingWeek
https://t.co/JJraLfLaU3
As we prepare for the next Huntington's disease awareness month, we have reflected on the impact that last year's campaign #HuntingtonsInMind has had. Read more here: https://t.co/VVyUcrJn9G
As part of this year's #HuntingtonsInMind campaign for Huntington's disease awareness month, we were invited to a round table discussion with the Health Service Journal funded by Roche. Read more https://t.co/Om54PDhLb2
"People should of course receive help and support for mental health care, expressed concern on hearing this is not always happening" Helen Whately MP Minister for Social Care responding to today's questions in the Westminster Hall Debate on #Huntingtonsdisease #huntingtonsinmind
Both of these have highlighted the need for better mental health services and support for people affected by Huntington's disease. You can find out more about this and view our timeline on this #HuntingtonsInMind page. https://t.co/Fh1Y9tu9o3
Mental health is an important topic for us and became the theme for our most recent #HuntingtonsDiseaseAwarenessMonth. We used the tagline #HuntingtonsInMind with the aim of highlighting the mental health impacts that Huntington's disease
Such a pleasure to have supported the Alliance members with the #FamilyMatters campaign and to have worked with @HDA_tweeting again this year on the #HuntingtonsInMind campaign. Such an important and worthwhile cause and so many incredible and resilient members of the community💚
We are so honoured to have won Communique’s Charitable Campaign of the Year for our work on the #FamilyMatters campaign with the Huntington’s Disease Alliance UK & Ireland 🎉 Huge congratulations to all of last night's well-deserved winners and all the finalists! #CxHealth
This #InternationalDayOfCharity we'd like to thank everyone who has supported our #HuntingtonsInMind campaign. ✉️
As parliament is back in session, it's a brilliant time to support our campaign.
You can use our template letter to send to your local MP: https://t.co/OZCtaBxqzU
Thank you to everyone who has taken the time to write to your MP about the #HuntingtonsInMind campaign and the Early Day Motion on the need for specialist services for people who have Huntington's disease. Currently, 81 MPs have signed. Read our update: https://t.co/3kZ5CZR0bD
This year, we launched the #HuntingtonsInMind initiative to raise awareness of the mental health impact that a diagnosis of #HuntingtonsDisease has on patients and their families and the need for better mental health support. Get involved: https://t.co/z4QbjcI2Jw
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