Top Tweets for #IACCPAC
In 2023, in coordination with the #IACCPAC @NASEM_Health, the @CDCgov listed Lyme disease as infection that can cause chronic symptoms.
READ MORE: https://t.co/Jh1GhCePeC
💯 #LymeDisease is grateful for your assessment of state of science in chronic infectious diseases & your participation in the National Academies workshop, which I was fortunate to serve on the planning committee for. #IACCPAC @Lymenews @LisaAMcCorkell @LymeBiobank @BayAreaLyme
I don't like any confusion or lack of transparency about our thoughts/approaches regarding our research strategy surrounding #LongCOVID, chronic #Lyme, #MECFS, vaccine injury and other complex chronic illnesses that we study, so I wanted to post an end of year thread to share 1/
@longhaulsolo @C19LH_Advocacy Zoom Oct 24th #IACCPAC
EBV reactivates in #LongCovid and #MultipleSclerosis.
@SolvingMS tracking 14 trials for #EBVcausesMS.
7 also in acute Covid & #LongCovid trials.
Let's pool knowledge! @DetectEbv
https://t.co/c6mYlUy9nk
Witness the power of community on Tuesday, October 24 at 12pm ET / 9am PT as the IACC- Patient Advocacy Coalition (#IACCPAC) Initiative team presents findings from a new report about the needs and priorities of the infection-associated chronic conditions community.
Register here: https://t.co/KQ4578w1o1
This webinar is part of the IACCPAC Initiative, led by the @LongCOVIDAllian, @PlzSolveCFS, @C19LH_Advocacy, @Dysautonomia, and the @patientled with support from the @CDCFound
through the Infection Initiated Chronic Conditions Understanding and Engagement (ICUE) Program. Joined by various organizations from the community, this report is a critical first step toward building a new coalition to raise awareness of these unmet needs.
If you’d like to learn more about the IACCPAC Initiative, or to learn how you can get involved, email [email protected]
Witness the power of community.
The Patient Advocacy Coalition (#IACCPAC) Initiative team presents findings from a new report about the needs and priorities of the infection-associated chronic conditions community.
Register here: https://t.co/npbgq4djMb
Witness the power of community on Tuesday, October 24 at 12pm ET / 9am PT as the IACC- Patient Advocacy Coalition (#IACCPAC) Initiative team presents findings from a new report about the needs and priorities of the infection-associated chronic conditions community.
Register here: https://t.co/KQ4578w1o1
This webinar is part of the IACCPAC Initiative, led by the @LongCOVIDAllian, @PlzSolveCFS, @C19LH_Advocacy, @Dysautonomia, and the @patientled with support from the @CDCFound
through the Infection Initiated Chronic Conditions Understanding and Engagement (ICUE) Program. Joined by various organizations from the community, this report is a critical first step toward building a new coalition to raise awareness of these unmet needs.
If you’d like to learn more about the IACCPAC Initiative, or to learn how you can get involved, email [email protected]
Witness the power of community on Tuesday, October 24 at 12pm ET / 9am PT as the IACC- Patient Advocacy Coalition (#IACCPAC) Initiative team presents findings from a new report about the needs and priorities of the infection-associated chronic conditions community.
Register here: https://t.co/KQ4578w1o1
This webinar is part of the IACCPAC Initiative, led by the @LongCOVIDAllian, @PlzSolveCFS, @C19LH_Advocacy, @Dysautonomia, and the @patientled with support from the @CDCFound
through the Infection Initiated Chronic Conditions Understanding and Engagement (ICUE) Program. Joined by various organizations from the community, this report is a critical first step toward building a new coalition to raise awareness of these unmet needs.
If you’d like to learn more about the IACCPAC Initiative, or to learn how you can get involved, email [email protected]
We’re pleased to invite you to the Infection-Associated Chronic Conditions Patient Advocacy Coalition (#IACCPAC) national webinar, a part of the #IACCPAC Initiative, led by @LongCOVIDAllian, @PlzSolveCFS, @C19LH_Advocacy, @Dysautonomia, and @patientled, with support from the CDC Foundation through the Infection Initiated Chronic Conditions Understanding and Engagement (ICUE) program.
We have previously brought together #patientadvocacy groups and community-based organizations working on #infectionassociatedchronicconditions to begin discussions regarding common objectives among attending organizations and identify #IACC community needs that might benefit from collaboration across organizations.
During our #webinar, we’ll present findings from our workshop sessions and identify a #roadmap that we hope will strengthen support for individuals experiencing #IACC’s through strategic collaboration.
Please join us on October 24, 2023 at 12pm ET / 9am PT. Register at https://t.co/QxZWRpsOU6
This summer, join @Dysautonomia @PlzSolveCFS @C19LH_Advocacy @patientled & @LongCOVIDAllian to kick off of the #IACCPAC initiative, aimed at strengthening cross-sector partnerships amongst diverse disease groups. Read the press release here: https://t.co/BY0xFqeY5g ⅓
As somebody with #longCOVID whose partner has #EDS, I’m excited about the potential for #IACCPAC to represent both of our communities
This summer, join @PlzSolveCFS, @LongCOVIDAllian, @patientled & @Dysautonomia to kick off of the #IACCPAC initiative, aimed at strengthening cross-sector partnerships amongst diverse disease groups. Read the press release here: https://t.co/pK1q3QFxBm ⅓
This summer, join @PlzSolveCFS, @LongCOVIDAllian, @patientled & @Dysautonomia to kick off of the #IACCPAC initiative, aimed at strengthening cross-sector partnerships amongst diverse disease groups. Read the press release here: https://t.co/pK1q3QFxBm ⅓
This summer, join us and the @Long_COVID_Allian, @PlzSolveCFS, @patientled, & @Dysautonomia, to kick off of the #IACCPAC initiative, aimed at strengthening cross-sector partnerships amongst diverse disease groups. (Read the full press release here: https://t.co/F6IZG2aUrv)
Two workshops will be held this summer to identify common objectives & actionable steps for the #IACC community. We will develop a report, national webinar & simultaneously work towards forming the Infection Associated Chronic Conditions Patient Advocacy Coalition #IACCPAC.
If you are a patient organization representing people living with Infection Associated Chronic Conditions, please consider being part of this initiative & sign up on our interest list here: https://t.co/WE3BTRvKbs! Please share this with other stakeholders who may be interested!
#InfectionAssociatedChronicIllness #PostViralIllness #LongCOVID #POTS #Lyme #MECFS #MCAS #Lupus #Vasculitis #MS #Migraine
This summer, join @Long_COVID_Allian @PlzSolveCFS @C19LH_Advocacy @patientled & @Dysautonomia to kick off of the #IACCPAC initiative, aimed at strengthening cross-sector partnerships amongst diverse disease groups. (Read the full press release here: https://t.co/fBE9u4yLpE) 1/3
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