Top Tweets for #IFOPA
Today marks an important day in medical history β the discovery of the FOP gene, ACVR1. Let's honour this milestone by supporting the #IFOPA in their efforts to advance research and care. #FOPAwarenessDay ππ
On this day 18 years ago, the discovery of the FOP gene (ACVR1) was announced at PennMedicine.
We now celebrate April 23 as Global FOP Awareness Day. #FOPAwareness
Exciting News for Patients, Families and Healthcare Providers - The Full #FOP #MedEd Page Is Here! https://t.co/xqTweN5RNB @ASMBR @IFOPA #FibrodysplasiaOssificansProgressiva #IFOPA #CureFOP #BoneDisease #MedTwitter
Exciting News for Patients, Families and Healthcare Providers - The Full #FOP #MedEd Page Is Here! https://t.co/xqTweN5RNB #FibrodysplasiaOssificansProgressiva #IFOPA #CureFOP #BoneDisease @PeerView @ASMBR
Exciting News for Patients, Families and Healthcare Providers - The Full #FOP #MedEd Page Is Here! https://t.co/xqTweN5RNB #IFOPA #FibrodysplasiaOssificansProgressiva #CureFOP #BoneDisease @IFOPA @ASMBR
Exciting News for Patients, Families and Healthcare Providers - The Full #FOP #MedEd Page Is Here! https://t.co/xqTweN5RNB #IFOPA #CureFOP #BoneDisease #FibrodysplasiaOssificansProgressiva @IFOPA @ASMBR
Do you do rare disease research on Fibrodysplasia Ossificans Progressiva?
Read more about the upcoming funding opportunity by @ifopa in this Funder Perspective interview with Dr. Danielle Kerkovich:
https://t.co/AzvcVviPXM
#IFOPA #FOP #ACTforFOP #RareDiseases #scientifyRESEARCH
Today is International Friendship Day!β€οΈ
Show your friends some extra appreciation today! β€οΈ
#FOPFriends #FOP #CureFOP #IFOPA #StrongerTogether
Children's Art Week will last from 29 June to 19th July, with creative activities taking place across the country online, at home and in schools.
So feel free to send in your artistic creations - we would love to see them! π¨π
#FOPFriends #FOP #CureFOP #IFOPA #StrongerTogether
Watch this new video we produced with @PeerView & @ifopa! Meet Lincoln & Trish, a young man with #FOP & his mother, who share their experiences with diagnosis & management & provide insight on resources theyβve found helpful: https://t.co/IXSpsTEG2G
#IFOPA #FOPAwareness #CureFOP
We are super excited to share that Hamish has written another blog for our website!π
He shares his thoughts on getting out and about with FOP, and how he perseveres despite the obstacles.
Read it here! https://t.co/Azdg5xCWDr
#FOP #FOPFriends #IFOPA #CureFOP #StrongerTogether
MASSIVE congratulations to Rebecca and her crew for completing the Race to the King ultra marathon, covering well over 100K!!!πββοΈ
Visit her page to see more of her work done for FOPπ
https://t.co/oihIkDtLLG
#FOP #FOPFriends #CureFOP #IFOPA #RaceToTheKing #StrongerTogether ππ
Today marks 11 years since we became a registered charity! ππ
We wouldn't be here without the unwavering support from our amazing friends and supporters!
Happy Birthday to FOP Friends! π§‘π
#FOPFriends #FOP #IFOPA #RareDisease #StrongerTogether
Faye joined us in February this year, on placement from the University of Manchester - and now officially joining us as our office administrator!ππ
Read more about Faye on our blog! https://t.co/7rRhwArfBl
#FOPFriends #CureFOP #IFOPA #StrongerTogether #Welcome
This week is Volunteer Appreciation Week!π
Volunteers contribute massively to our communities and society.
Support those with FOP through volunteering and fundraising! For more ideas: https://t.co/audng6Sk9e
#VolunteersWeek #FOP #FOPFriends #CureFOP #IFOPA #StrongerTogether
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