Top Tweets for #INPDAtogether
Gathered at #INPDATarragona23 are Dr. Hastings and Dr. Camilo Vieria. Through their driven collaboration with patients and families, they were the first to treat #NiemannPick patients with cyclodextrin! We are proud to have them be a part of the #NPC community. #INPDATogether
#INPDAtogether group photo! Patient groups from Australia, Argentina, Brazil, China, Canada, France, Germany,... https://t.co/EPX509wGnX
We continue to work towards wider recognition of the signs and symptoms of NP-C. Remember to #ThinkAgainThinkNPC #INPDAtogether
Special thanks to our hosts NP Selbsthilfegruppe Deutschland & @npsuisse for our amazing conference #INPDAtogether
#INPDAtogether - 4th Biennial Meeting 23rd-25th October.
Representatives of 13 patient groups from across the... https://t.co/RM16qENgkz
Inspirational talks at @inpda_org’s meeting. Looking forward to today’s discussion: challenges & the future #INPDAtogether
Bus tour of Mainz with (part of) the US contingent. #inpdatogether
@evansmiz talking about @inpda_org registry & importance of patient reported data #inpdatogether #RareDisease
Christoph Poincilit of @inpda_org & npsuisse talking about the research meeting Loore valley meet #inpdatogether
#INPDAtogether @inpda_org Toni presenting the #ThinkAgainThinkNPC campaign. Brazil 150% incr in diag since launch
@ToniNPUK presenting how far #ThinkAgainThinkNPC has come in one year at the INPDA conference! #INPDAtogether
Ben Machielse CEO Vtesse: "We are a company completely dedicated to treatments for NP-C" #INPDAtogether @inpda_org
Thomas Kirkegaard, @Orphazyme_ApS updates on the AIDNPC Program (Arimoclomol) for NP-C. #INPDAtogether @inpda_org
#INPDAtogether Thomas Kirkegaard of @Orphazyme_ApS and the clinical development of Arimoclomol.
#INPDAtogether clinical trial updates - a pivotal moment for #Niemannpick diseases #progress #hopeonthehorizon @inpda_org
Prof Paul Gissen from @GreatOrmondSt providing update on clinical trial for VTS-270 #niemannpick #RareDisease #INPDAtogether
Ben Machielse CEO Vtesse, Inc "We are a company completely dedicated to treatments for NP-C" #INPDAtogether #niemannpick
@CORD_NGO we're delighted to have reps from the Chinese #NiemannPick group at our conference this weekend #INPDAtogether #raredisease
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