Top Tweets for #ION363
Ready for today’s dosing at OSU!!!
Thank you Stacey, Shelby, and Travis Kinsey for the AMAZING shirt!!!
#EndALS #teamjacobwv #ion363 #Jacifusen #ALSawareness #faithoverfear #joshua1v9
Our #Jacifusen treatment went GREAT! The whole team at The Ohio State University Wexner Medical Center was positive and super encouraging! Jacob is a BEAST! He’s such a WARRIOR!!!! This made treatment #17 total!
#EndALS #ion363
#Jacifusen (#ion363) Phase III Treatment number one is in the books! Jacob’s weight was 144 lbs and everything went perfectly!!!
God is Good!!!!!
#EndALS 💙💙💙
New massage chair from @BigSandySuper stores! Delivered today!
#EndALS #wheelinforals
#Godsgotthis #teamjacobwv
#ALS #ion363 #Jacifusen
#ALSawareness #joshualv9 #ButGod
Jacob is doing so great! He just keeps pushing himself!!! I’m so proud of our boy! Stay tuned…. #miracleshappen
💙💙💙
#EndALS #wheelinforals
#Godsgotthis #teamjacobwv
#ALS #ion363 #Jacifusen
#ALSawareness #joshualv9 #ButGod
Enjoying his robotic gloves today!
#EndALS #wheelinforals
#Godsgotthis #teamjacobwv
#ALS #ion363 #Jacifusen
#ALSawareness #joshualv9 #ButGod
Starting to get back to his pre-covid strength! Thank you Jesus! 💙💙💙
@racing_als
#EndALS #wheelinforals
#Godsgotthis #teamjacobwv
#ALS #ion363 #Jacifusen
#ALSawareness #joshua1v9 #ButGod
It has been awhile since we’ve seen this much activity! Covid is a nightmare for most, but especially someone with a motor neuron disease!
#miracleshappen
#EndALS #wheelinforals
#Godsgotthis #teamjacobwv
#ALS #ion363 #Jacifusen
#ALSawareness #joshua1v9 #ButGod
Today was the best dosing yet! Dr Kolb brought his “A game” and everything was perfect!
PLUS Jacob is up 10 POUNDS since our last visit (09/16/24)!
This is incredible!!! 💙💙💙
#EndALS #Godsgotthis #teamjacobwv #ALS #ion363 #Jacifusen #ALSawareness #joshualv9 #ButGod
When your circumstances prevent you from going “IN”… thank you @sheetz 💙
#EndALS #miracleshappen
#wheelinforals #Godsgotthis #teamjacobwv #ALS #ion363 #Jacifusen #ALSawareness #joshualv9 #ButGod
Our #HERO never stops fighting!
#miracleshappen
#EndALS #wheelinforals
#Godsgotthis #teamjacobwv
#ALS #ion363 #Jacifusen
#ALSawareness #joshua1v9 #ButGod
@CMiceli5 @ionispharma So, our clinical trial is called #ION363 or #Jacifusen and more recently #Ulefnersen produced by @ionispharma
Jacob’s ALS is a genetic mutation of the FUS gene (Fused in Sarcoma), more specifically P525L, a severe form of juvenile ALS.
We are excited beyond words. Jacob’s ALS is genetic and this trial drug #ion363 is WORKING!!! @ionispharma
Workout Wednesday!
These are the moments we pray for every single day!
#EndALS #wheelinforals #nowhiteflags #nottodayals #Godsgotthis #teamjacobwv #ALS #ion363 #Jacifusen #ALSawareness #joshua1v9 #ButGod
New Movement!!! Wooohooo
#ION363 #Jacifusen #EndALS #GodsGotThis #Ulefnersen
Ulefnersen | Ionis Pharmaceuticals, Inc.
@ScottsFight Scott, while I respect your decision, I don’t understand it. Without the trach, we would have already lost Jacob. He’s only 25! Advances are being made every day, in fact, we believe Jacob’s Clinical Trial #Ion363 #Jacifusen has now STOPPED the ALS progression! Now to heal! 💙
EYEGAZE (Assistive Technology) Using Google Nest Mini
#EndALS #wheelinforals #nowhiteflags #nottodayals #Godsgotthis #teamjacobwv
#ALS #ion363 #Jacifusen #GoogleNest #ALSawareness #joshua1v9 #ButGod
https://t.co/v0D21VaT4W
We are making tomorrow, June 9th, TEAMJACOBWV DAY!
We are heading back to Ohio State University for Jacob’s 12th treatment, (a trek we make every 90 days for Jacob’s lumbar-puncture dosing)…
so show us your best pose in your favorite TJWV shirt! 💙
#jacifusen #ion363
Legs are getting stronger! It’s gonna be a long road to recovery, but we know… #Godsgotthis
Could all ALS possibly be genetic? This Clinical Trial could open so many possibilities!
#EndALS #wheelinforals #nowhiteflags #nottodayals #teamjacobwv #ALS #ion363 #Jacifusen #ButGod
Get your tissues handy... I've watched it twice and cried both times. Jacob is such a warrior!
https://t.co/vZRlc07mxD
#EndALS #wheelinforals #nowhiteflags #nottodayals #Godsgotthis #teamjacobwv
#ALS #ion363 #Jacifusen
#ALSawareness #joshua1v9 #ButGod
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