Top Tweets for #IVFconsumer
One of many epic @uberbarrensclub quotes at this fantastic event. Thanks for hosting @BioNewsUK - much more to debate as the guidance unfolds! #ivfconsumer
"Fertility is the canary in the coal mine when it comes to privatised medicine in the UK." - @uberbarrensclub Good event #IVFconsumer
Some really interesting discussions on tonights @BioNewsUK event about the trade-off between reliable and useful information in the #fertility sector for the #IVFconsumer. Thanks, @rajmathur7, @HFEA, @katylindemann @uberbarrensclub
Well said @rajmathur7 - doctors must reflect on their ethical behaviour. Vast majority of doctors in the #Fertility sector do not set out to take undue advantage of their patients. There can be ethical conflicts and people must be v careful about them #IVFconsumer
@rajmathur7 from @BritFertSoc picks up on the earlier issue of pricing & the @HFEA's lack of regulatory powers: "It may not be possible in late capitalist UK to regulate prices, but it would be possible & practical to have a standard format for displaying them" #IVFconsumer
"Fertility is the canary in the coal mine when it comes to privatised medicine in the UK." - @uberbarrensclub Good event #IVFconsumer
Katy says when it comes to add-ons patient informed consent is crucial. The concept of "regret aversion" matters, because some patients do want to try whatever they can. So for those people, the question is not "what are the proven benefits" but "what is the harm"? #IVFconsumer
Fertility treatment is a COMPLEX purchase and it has to be regulated @BioNewsUK #IVFconsumer
.@rajmathur @BritFertSoc I think add-ons have outlived their usefulness. #IVFconsumer Is regret-aversion something we should help people deal with?
There's a massive info gap. @uberbarrensclub @katylindemann #IVFconsumer Patients are having to create their own resources. Where can we get info that is both reliable and useful? @hfea info reliable but not particularly useful. #Fertility clinic info not reliable and not useful.
Success rates second key issue. Trying to understand #IVF success rates should not be a mystery puzzle. @uberbarrensclub @katylindemann #IVFconsumer
The amazing @uberbarrensclub telling it like it is. Costs, Success Rates and Add-on honesty tips issues for patient-consumers #IVFconsumer
.@uberbarrensclub It all comes down to informed consent. 3 key areas: price one of them. What are patients up against? #IVFconsumer
And the deadline has been extended until 29th Jan so you can still complete the survey beyond the date in the original tweet ⏰ - please please take part and have your say!
#IVFConsumer #PatientPower
Mark Wilcox @CARE_Fertility What do we tell patients, when and how? When does or contract actually start - at the first consultation or before that? When looking at the website
#IVFconsumer
97% of fertility clinics websites do not comply with HFEA code practice. In other words, nearly every clinic in the UK - whether intentionally or unintentionally- is using marketing practices that can mislead people making fertility treatment decisions
.@rajmathur7 @britfertsoc Potential problems with the
@cmagovuk guidance: info giving in a clinical context is quite different from info giving in a contractual context. #IVFconsumer
. @rajmathur7 @britfertsoc Info is not necessarily power - all that fine print can be so off-putting. #IVFconsumer
@rajmathur7 @BritFertSoc we broadly support any measure that protects patients. Some significant positive features of the @cmagovuk guidance. It should provide patients clarity on cost #IVFconsumer
#IVFCONSUMER @BioNewsUK Fertility patients are considered to be consumers according to @HFEA and have to be protected
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