#InsideOutforEB - Twitter Hashtag

3 months ago

Mark your calendars! 📅 EB Awareness Week takes place 25–31 October 💪We're asking people to wear clothes #InsideOutforEB showing the hidden pain of EB, where even seams cause blisters. Follow us to learn more and get involved @InterDEBRA🌍🦋💙

RareRevolutionM's tweet photo. Mark your calendars! 📅

EB Awareness Week takes place 25–31 October 💪We're asking people to wear clothes #InsideOutforEB showing the hidden pain of EB, where even seams cause blisters.

Follow us to learn more and get involved @InterDEBRA🌍🦋💙 https://t.co/b5DWCVUzHT

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Debra - The Butterfly Skin Charity @debraireland

8 months ago

A huge thank you to all the schools, gyms and sports clubs who went Inside Out for EB! We are overwhelmed with your support.🧡 Your energy, spirit, and generosity are helping families living with EB feel seen, supported, and never alone. https://t.co/lYmyNtm656 #insideoutforEB

debraireland's tweet photo. A huge thank you to all the schools, gyms and sports clubs who went Inside Out for EB! We are overwhelmed with your support.🧡

Your energy, spirit, and generosity are helping families living with EB feel seen, supported, and never alone.

https://t.co/lYmyNtm656

#insideoutforEB https://t.co/u3sCyLUqJC

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DEBRA International @InterDEBRA

8 months ago

We're turning our clothes inside out for EB - and we want you to join us! ⁠ ⁠ Take a photo of yourself wearing clothing inside out, post it on social media, include the hashtags #InsideOutforEB #EBAwarenessWeek2025 and tag us to be part of this global awareness campaign 🌍🦋⁠

InterDEBRA's tweet photo. We're turning our clothes inside out for EB - and we want you to join us! ⁠
⁠
Take a photo of yourself wearing clothing inside out, post it on social media, include the hashtags #InsideOutforEB #EBAwarenessWeek2025 and tag us to be part of this global awareness campaign 🌍🦋⁠ https://t.co/6wVI2KpSN2

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Telefono Verde Malattie Rare @TVMR_CNMR

8 months ago

🦋#InsideOutforEB, partecipa anche tu alla campagna di @InterDEBRA per sensibilizzare sull' #EpidermolisiBollosa ! 👕Indossa per un giorno i vestiti👚al rovescio come fanno i bambini con EB per evitare cuciture dolorose a contatto con la pelle #fragile 👇 https://t.co/cmxJOL9ld1

TVMR_CNMR's tweet photo. 🦋#InsideOutforEB, partecipa anche tu alla campagna di @InterDEBRA per sensibilizzare sull' #EpidermolisiBollosa !
👕Indossa per un giorno i vestiti👚al rovescio come fanno i bambini con EB per evitare cuciture dolorose a contatto con la pelle #fragile
👇
https://t.co/cmxJOL9ld1 https://t.co/N4aHxqGfts

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Debra - The Butterfly Skin Charity @debraireland

8 months ago

📢 Today is Inside Out Day! Hundreds are turning their clothes inside out for everyone living with butterfly skin. And so are we. We’re in the Oireachtas presenting the #EBButterflyReview to government, showing where EB care in Ireland needs change. #InsideOutForEB

debraireland's tweet photo. 📢 Today is Inside Out Day! Hundreds are turning their clothes inside out for everyone living with butterfly skin. And so are we.

We’re in the Oireachtas presenting the #EBButterflyReview to government, showing where EB care in Ireland needs change.
#InsideOutForEB https://t.co/LM26jxWoVH

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Debra - The Butterfly Skin Charity @debraireland

9 months ago

Fantastic to see @bfcdublin women's team in action in their Women's FAI Cup Final yesterday and thank you for supporting #InsideOutforEB @Bohsincommunity. https://t.co/d4MxUFv5tQ

debraireland's tweet photo. Fantastic to see @bfcdublin women's team in action in their Women's FAI Cup Final yesterday and thank you for supporting #InsideOutforEB @Bohsincommunity.

https://t.co/d4MxUFv5tQ https://t.co/j3VB0vLmna

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