Top Tweets for #InvestInFND
#SilentAuction #InvestInFND #FNDAwarenessDay25March2020 #ArtandFND #ArtandRecovery
These paintings by award winning artist, Natasha Kalenjuk, who lives with FND, are being auctioned for FND awareness & FNDAus. Contact Julie E: [email protected] to place a bid.
Every day I am contacted by carers in distress about the way their loved one is being treated in care. I can not understand why people with FND continue to be invalidated and harmed in care. What happened to #FirstDoNoHarm? People should not suffer trauma in care. #InvestInFND
The talented @Laura Jayne Inglis (Phoenix) depicting her lived experience of FND. FND is a Big Deal, FND is a serious and complex illness which has major impacts on the lives of people living with the condition and their carers and family. #InvestInFND
The system failing to meet the needs of people with FND. We can do so much better, but we need systemic change and Government and Health System Support. #InvestInFND
@KatherineGill88 @notesforreview @GregHuntMP My "treatment" has been one of neglect. I'm too scared to go to hospital now. Sick of being told there's nothing that can be done.
@FNDAus
@AndrewConstance @bronnietaylor
Thank you @GregHuntMP for your time with President Dr Katherine Gill, @KatherineGill88 regarding FND, a silent crisis in Australia. Patients face a life with severe disabilities without early intervention and treatments. Affecting all age groups, men, women, children #InvestInFND
FND is real, the suffering is real, the stigma and discrimination people face in the community and in health services is at dangerous and life threatening levels. People are develop permanent permanent disability from a treatable illness. Time to #InvestInFND @GregHuntMP @FNDAus
https://t.co/WrJpPxV6qq
People with #FND have poor health status, as severe as Parkinsons & Epilepsy. Poor #Physical & #Mental health. Risk #PrematureDeath. #NeuropsychiatricCondition Need a #Neurology and #Psychiatry focus, a holistic interdisciplinary approach. #InvestInFND
@GregHuntMP @Dpeters1977 Would be great if we could invest in FND, so people with a treatable “mental illness” don’t end up with permanent physical disability, and a “burden” on the health, welfare & disability system and at risk of early death, because there are no services in Australia. #InVestInFND
Dynamic FND Forum led by @KatherineGill88 Sydney 10th May! Warm thanks to @SANEAustralia @MHCNSW and our consumers, carers and health professionals. #InvestInFND
https://t.co/HzPKuHat41
Sydney FND forum, open to health professionals, consumers, carers & policy makers. Learn from experts with lived experience & FND specialists. Includes a co-design workshop to improve FND awareness and services for people with FND. #InvestInFND
Collaborative programme at the FND Forum in Melbourne for consumers, carers and clinicians working together thanks to our President, Dr Katherine Gill. @KatherineGill88 @SANEAustralia @ADRCAustralia #InvestInFND
Exciting FND Co-Design Workshop - Melbourne 27th March
FND Knowledge Exchange & Knowledge Translation Forum
@FNDAus
https://t.co/QcMRLno2Ug
Sponsored by @SANEAustralia #HockingFellowship
@FNDAus
https://t.co/pkswJSuTAs …
MELBOURNE FND WORKSHOP 27TH MARCH 2019
For Consumers, Carers and Health Professionals with an Interest in FND
If you have any accommodation needs - please contact me on [email protected] to discuss
#FNDAus #InvestInFND
https://t.co/A2OGeO3GWF people with PNES have a death rate up to 7x higher than Aus average. FND is a serious, life threatening illness. People die from suicide & while seizing, yet services remain unfunded & inaccessible 4 many. FND is potentially treatable. #InvestInFND #FNDAus
Excellent Forum at the Mater Hospital today with FND consumers, carers and clinicians working together. Warm thanks to @SANEAustralia @Qld_MHC @KatherineGill88 #HockingFellowship #InvestInFND
People living with disabling & debilitating functional neurological symptoms. are slipping through system level gaps & failing to access any support or treatment services, leading to permanent disability, poor QOL, emotional and financial distress. Time to #InvestInFND @FNDAus
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