#JSLE - Twitter Hashtag

8 months ago

#MRI in #pediatric #rheumatology 👉https://t.co/V5qsdLtSTi MRI is crucial for detecting early synovitis, bone marrow edema & myositis in children with #JIA, #CNO, #JDM, #JSLE & #JSSc 💡Enables early treatment, remission tracking & AI-assisted scoring Safe. Sensitive. No radiation

ReumatologiaJ's tweet photo. #MRI in #pediatric #rheumatology
👉https://t.co/V5qsdLtSTi
MRI is crucial for detecting early synovitis, bone marrow edema & myositis in children with #JIA, #CNO, #JDM, #JSLE & #JSSc
💡Enables early treatment, remission tracking & AI-assisted scoring
Safe. Sensitive. No radiation https://t.co/B0RQdEhU3v

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EATC for Children @EATC4Children

8 months ago

#PReS2025 update! Our PhD, Francesca presented her poster, entitled "Common Toll-Like Receptor 7 variants define disease risk and phenotypes in juvenile-onset systemic lupus erythematosus", reveals that specific TLR7 gene variants may influence #jSLE risk and disease patterns.👏

EATC4Children's tweet photo. #PReS2025 update! Our PhD, Francesca presented her poster, entitled "Common Toll-Like Receptor 7 variants define disease risk and phenotypes in juvenile-onset systemic lupus erythematosus", reveals that specific TLR7 gene variants may influence #jSLE risk and disease patterns.👏 https://t.co/F9BS23EUbk

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EATC for Children @EATC4Children

12 months ago

Thrilled to share of paper acceptance in Journal of Autoimmunity! "Common TLR7 variants define risk & phenotypes in juvenile-onset SLE" Genetics meets clinical insight in autoimmunity. Lead author: #EATC's Francesca Sposito #jSLE #Genetics #Immunology #AcademicX @AlderHey

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PReS Lupus Working Party @PReSLupusWP

about 1 year ago

🇪🇸Day 4 #EULAR2025 Time to say 'Adios!' 👋 but not before joining today’s #lupus sessions! Check out these #cSLE #jSLE posters: ⏲️ 10:15–11:45 🟣POS1187 ➡️ Effectiveness of Rituximab in Juvenile-Onset Systemic Lupus Erythematosus: A Real-Life Study in Argentina 🧵

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PReS Lupus Working Party @PReSLupusWP

about 1 year ago

🔎 Just out! Natoli V. et al. @evemdsmith_eve show that quantification of IFN-α2 may support risk stratification and disease monitoring in juvenile SLE #jSLE #lupus ☑️ Serum IFN-α2 levels associate with disease activity ☑️ Promising tool for clinical use 🔗 Check it out! ⬇️

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Dr.Mukesh , MD , DM @dr_immuno29

over 1 year ago

#JSLE #NewResearch 1️⃣ **Juvenile-Onset**: 15-20% of #SLE cases occur before age 18, linking to more severe symptoms and poly-autoimmunity. 2️⃣ **HLA Super-Locus**: SLE patients often have more HLA risk alleles than other immune-mediated diseases. 3️⃣ **Ancestral Variability**: HLA-DR2 & DR3 haplotypes show strong associations in Caucasians, not in Asian/African ancestries. 4️⃣ **Increased Risk**: HLA-B*08:01~DRB1*03:01 and HLA-DQA*01:02 heighten the risk of juvenile-onset SLE through low complement C4 levels. 5️⃣ **Diverse Analysis**: A study on 309 jSLE patients from the UK JSLE Cohort explored HLA class I, II, and III diversity, linking it to clinical outcomes. 👉 Read more: https://t.co/nnGGjgriBh Together, let’s drive awareness and research for better understanding & outcomes in lupus! 💜🔍 #AutoimmuneAwareness #LupusResearch

dr_immuno29's tweet photo. #JSLE #NewResearch
1️⃣ **Juvenile-Onset**: 15-20% of #SLE cases occur before age 18, linking to more severe symptoms and poly-autoimmunity.
2️⃣ **HLA Super-Locus**: SLE patients often have more HLA risk alleles than other immune-mediated diseases.
3️⃣ **Ancestral Variability**: HLA-DR2 & DR3 haplotypes show strong associations in Caucasians, not in Asian/African ancestries.
4️⃣ **Increased Risk**: HLA-B*08:01~DRB1*03:01 and HLA-DQA*01:02 heighten the risk of juvenile-onset SLE through low complement C4 levels.
5️⃣ **Diverse Analysis**: A study on 309 jSLE patients from the UK JSLE Cohort explored HLA class I, II, and III diversity, linking it to clinical outcomes.

👉 Read more: https://t.co/nnGGjgriBh
Together, let’s drive awareness and research for better understanding & outcomes in lupus! 💜🔍 #AutoimmuneAwareness #LupusResearch

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Abhibroto Karmakar @AbhibrotoKarma1

over 1 year ago

Started with series of #research paper in #lupus and #rheumatology The second paper discussed in my #YouTube channel your queries and suggestions are welcomed #jSLE #Pediatrics #PhD #translation https://t.co/aHOagJhyOk

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Valentina Natoli @ValentinaNatol1

over 1 year ago

Pleased to see this collaborative work published in Rheumatology. A great team effort highlighting the potential of serum IFN-α2 as a biomarker in jSLE. Proud to have been part of this project. #jSLE #flare #biomarkers

Eve smith @evemdsmith_eve

over 1 year ago

📣Excited to share our latest study showing: 🎯IFN-α2 levels differentiate between T2T states in cSLE 🎯Elevated IFN-α2 predictive of flare when in target ⁉️potential for biomarker-driven cSLE T2T trials 🔗 https://t.co/p14VIgT1VB @CrowYanick @HuntLabEdin @ValentinaNatol1

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PReS Lupus Working Party @PReSLupusWP

over 1 year ago

3⃣'Unmasking posterior reversible encephalopathy syndrome: a hidden threat in juvenile lupus' O. Saad, N. Rafiq #jSLE #lupus #CBC24 https://t.co/VuQo26hS8o

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PReS Lupus Working Party @PReSLupusWP

over 1 year ago

🌟#CBC24 #Highlights Last week, we saw three interesting #jSLE #Lupus cases that provided further perspectives on managing complex cases. Check out what you missed! 🧵⬇️

BSR @RheumatologyUK

over 1 year ago

Thank you all for being part of #CBC24! 🙌 Missed any sessions? Couldn't attend the conference? Don’t fret. You can soon watch them on demand to catch up on all the valuable insights shared. We look forward to seeing you again soon for #CBC25!

RheumatologyUK's tweet photo. Thank you all for being part of #CBC24! 🙌 Missed any sessions? Couldn't attend the conference? Don’t fret. You can soon watch them on demand to catch up on all the valuable insights shared. We look forward to seeing you again soon for #CBC25! https://t.co/qb5UBmu2it

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PReS Lupus Working Party @PReSLupusWP

almost 2 years ago

#PRES2024 #lupus Verna Cuthbert @RMCHosp presented the implementation of fitness testing (KPR) in #jSLE routine clinical MDT clinic 🏃Initial feedback from patients and caregivers is positive ☑️with more research needed for best practices & address barriers to implementation 💪

Emily Haslam @emiRwillis

almost 2 years ago

@CuthbertVerna @rileyphil @hannalythgoe4

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Laura Lewandowski @LauraLewMad11

over 2 years ago

#lupus patients have high risk for cardiovascular disease (often begins early in #cSLE) Exciting work done w @carrainc @GeorgeARobinson @peijnuj @Jury_Lab @PierreDoennes identifies novel metabolomic signatures which predict CIMT progression ❤️🔥#SLE #JSLE #precisionmedicine 🔬🩺

George Robinson @GeorgeARobinson

over 2 years ago

Our new paper with @Jury_Lab @UCL_RheumAYA @peijnuj @PierreDoennes! Novel predictive lipid signature of #atherosclerosis progression in juvenile #lupus Study possible through amazing collaboration with Stacy Ardoin, Laura Schanberg @LauraLewMad11 @carrainc https://t.co/f36lf3COjy

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Dr Stevie Shoop-Worrall @sshoopworrall

almost 3 years ago

This is brilliant. @evemdsmith_eve talks a meeting to develop a #Bayesian prior before research in #jsle Bayesian models allow us to start from a point of knowledge, rather than nothing. You say: ‘Given what we know, and what we’ve found, what’s the likely answer?’ Brilliant

sshoopworrall's tweet photo. This is brilliant.

@evemdsmith_eve talks a meeting to develop a #Bayesian prior before research in #jsle

Bayesian models allow us to start from a point of knowledge, rather than nothing. You say:

‘Given what we know, and what we’ve found, what’s the likely answer?’

Brilliant https://t.co/ft33aSmvGp

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Dr Stevie Shoop-Worrall @sshoopworrall

almost 3 years ago

Hearing about #juvenile #lupus #jsle research directions from @evemdsmith_eve at the @VersusArthritis @NIHRresearch Paediatric and Adolescent Rheumatology Research Day At the point where long term studies are possible so watch this space! #epitwitter

sshoopworrall's tweet photo. Hearing about #juvenile #lupus #jsle research directions from @evemdsmith_eve at the @VersusArthritis @NIHRresearch Paediatric and Adolescent Rheumatology Research Day

At the point where long term studies are possible so watch this space!

#epitwitter https://t.co/55TFU66rEX

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Lucia Martin-Gutierrez @luciamg21

over 3 years ago

Many congratulations @peijnuj for this well deserved award. Don't miss his talk at the BSR2023. #jsle #BSR #cardiovascular

Junjie:P @peijnuj

over 3 years ago

Thank you @RheumatologyUK for the Young Investigator Award. It’s an incredible honor to have our research on cardiovascular risk in JSLE patients recognised! #BSR #cardiovascularrisk #JSLE @VersusArthritis @UCL_RheumAYA @Jury_Lab @GeorgeARobinson

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Lizzy Rosser @bcells_rosser

over 3 years ago

Thinking about all the families who contribute to our research and my inspiring colleagues who work with our paediatric cohorts of patients with rare diseases on #RareDiseaseDay #JIA #Uveitis #JDM #JSLE @WedderburnGroup @meredythwilk @lolaeyedoc @UCL_RheumAYA @PollyLivermore

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Dr. Debasis @debasispatro9

over 3 years ago

Do we need to do biopsy or not in childhood #lupus #JSLE #SILENT #NEPHRITIS

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Filière de santé FAI²R @contactfai2r

over 3 years ago

📄 Critères diagnostics du #Lupus Systémique Juvénile (#JSLE) 👤 Résumé par Dr Aurélia CARBASSE ➡️ À lire sur : https://t.co/rO9b5MUS1h #maladiesrares #FAI2Ralupourvous #fsmr