Top Tweets for #KFS2018Aware
#KFS2018aware #KFStrong Sharing more on Klippel-Feil Syndrome... We need to educate more people what is and how KFS is affecting individuals. KFS affects differently to everyone, so it's not exactly the same for all KFS patients. @KFS_Freedom @Rose_of_Sharon8
#KFS2018aware #KFStrong I wish there would be a TV and/or radio commercial which includes actual people (not actors nor actress) with Klippel-Feil Syndrome on this very day, August 6 to help with raising more awareness of this rare chronic disease... @KFS_Freedom @Rose_of_Sharon8
Announcing our partnership w @ThinkGenetic on KFS Awareness Day! Article below! #KFStrong @GlobalGenes @TheMightySite @Raresupport @SanfordCoRDS @RareDiseases @PatientWorthy @harmonize4hope @RareAdvocacy @Rose_of_Sharon8 @RarePOV #RareDisease #KFS2018Aware https://t.co/xEKphVrupk
Best Dad @The_KentC got a tattoo to raise awareness for Klippel Feil Syndrome, a disorder his son was born with. By watching and sharing this video, you too can raise awareness (all without getting yourself inked). #KFStrong #KFS2018aware
Geoff, Jack, and Kent make a special trip in honor of Kent's son for Klippel Feil Syndrome awareness day! #KFStrong #KFS2018aware https://t.co/vUo7H2F7Ox
Geoff, Jack, and Kent make a special trip in honor of Kent's son for Klippel Feil Syndrome awareness day! #KFStrong #KFS2018aware https://t.co/vUo7H2F7Ox
Today is Klippel Feil Syndrome Awareness day! There’s a special video coming out later today @RoosterTeeth so everyone be on the lookout for that! Here's a journal post about why this is important to me. #KFStrong #KFS2018aware
https://t.co/I46xcgxAET
Join @KFS_Freedom in spreading their mission today and through the month of July and August. The power of the internet combined with an individual’s drive for change can create magic! https://t.co/WUD8MioQJ4 #raredisease #KFS2018aware #KFSnapshot #KFSkeletonKey #KFStroll
Thank you @PatientWorthy 4 sharing my vision 4 Klippel-Feil Syndrome & Awareness Day, which is MONDAY! @KFS_Freedom @GlobalGenes @SanfordCords @Raresupport @RareAdvocacy @RareAdvocates #RareDisease #Advocates #KFStrong #KFS2018aware https://t.co/cWjDOJsyM8
Thank you @TheMighty for sharing about Aug 6th, KFS Awareness Day! https://t.co/P7NGlrbTSV #RareDisease Thank you to all of our advocates! #KFS2018Aware #KFStrong Patient Data through Research is Key for kids, teens, adults! #MightyTogether #ChronicPain Orthopedic Neuro Spine
1 Week from today! Advocate this week! #KFS2018Aware
KFS Awareness Day info 🌞> https://t.co/yQRqBL9AxV
Neck Spine Muscles Neuro Nerves Spinal Cord Congenital Fusion Skull Heart Kidneys Ribs Lungs Shoulder Mid & Lower Back Hearing Vision #RareDisease #KFStrong #Monday Genetic
#KFS2018aware calling all Advocates for Klippel-Feil syndrome! #raredisease #KFStrong #KFSkeletonKey Sunday Rare Disease Warriors Make the unknown KNOWN! https://t.co/fZSJ4x7U1J
Aug 6th is fast approaching! This is our week to #KFShine while raising awareness for a rare skeletal disease! #KFStrong #KFSunnies #KFStroll #KFS2018aware #KFSkeletonKey #spoonie… https://t.co/yiViCEpusj
August 6th is Klippel Feil Syndrome Awareness!!! Please share a pic with a 🗝 and us hashtags #KFS2018aware and #missdee Help is bring awareness to this painful disease!
@KendallJD28 + @RarePOV Thanks! #KFS2018aware is Aug 6th. The skeleton key is our symbol of hope 4 a rare skeletal disease. 🗝️Wear one | Share one. A great conversation "opener"! Many images & ways 2 raise KFS awareness here > https://t.co/tpoGXHExdX #KFStroll @GlobalGenes @KFS_Freedom
@KendallJD28 #KFS2018aware is August 6th. @Rose_of_Sharon8 will know if @KFS_Freedom has a shirt for Klippel-Feil Syndrome.
We are digging in about life with Klippel-feil syndrome on Facebook this month. We'd love for you to join us. Link is in bio here. #raredisease #KFStrong #KFS2018aware https://t.co/Rmt7iV1KzF
Because we're rare, July - August is the 🗝 time to speak up about KFS & our needs as a community driven for improved understanding & care. 🔓 Visit link in bio! #KFS2018aware #KFStroll… https://t.co/eJ1xWoYNvm
My daughter suffers from Klippel Feil Syndrome, it’s can be a debilitating and painful disease! Please wear a key on 8/6 and post a pic using hashtags #KFS2018aware and #MissDee to help bring awareness to@this rare disease
😎YOU R 🗝️ KFS Awareness Day info > https://t.co/yQRqBL9AxV Aug 6th #KFS2018aware #KFStroll #KFSkeletonKey #KFStrong Activists make the unknown KNOWN #raredisease #genes #research #patientdata @GlobalGenes @SanfordCoRDS @PatientWorthy @RareAdvocacy @RareAdvocates @ThinkGenetic
YOU are 🗝! Now through August 6th. FB Link in bio 4 advocacy deets! #KFS2018aware #KFStroll #KFSkeletonKey #KFStrong Activists make the unknown KNOWN 🔓 #raredisease #genes #research… https://t.co/fwz8V7kaoK
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