Top Tweets for #KFSaware2019
Learn more about Klippel-feil Syndrome at @kfs_freedom
TURN THE KEY tomorrow! ๐
#raredisease #KFSaware2019 #KFSkeletonKey ๐๐ https://t.co/ykPqreuthM
TUESDAY. TURN THE KEY.
Aug. 6th > https://t.co/YsCEbUnhJ0
#raredisease #spine #neuro #ortho #vision #hearing #kidneys #lungs #heart #muscles #bones #spinalcord #nerves #KFSaware2019 #KFStrong #genetic #medical #physicians #hcsm #hospital #life #congenital #patient #data #hope
Klippel-Feil syndrome FACT SHEET, for raising Awareness on KFS Day, Aug 6th! #KFSaware2019 #KFStrong #raredisease #patient
Here's our KFS FACT SHEET > https://t.co/XUPxOO8CYt
Go to our FB page and you can easily click on this link, posted last night.
Share this handout with doctors, nurses, friends, family, neighbors, at church,โฆ https://t.co/1PKT5JVmPK
Don't feel defeated if you're struggling. It's the process to progress. When you are ready (or not) dust yourself off, and try again.
#raredisease #KFSkeletonKey #KFSaware2019 #KFStrong https://t.co/ZYMzQKBtnv
KFS Awareness Day is 2 weeks away! AUG 6th. Please help spread the word about the 1 in 40,000 people who have Klippel-Feil syndrome. #raredisease. Thanks @RareDiseases 4 Info > https://t.co/ElOeHwA1nI #spine #genetic #KFSaware2019 Research is ๐ Visit > https://t.co/UvkFCfGuKc
YOU are invited! Awareness Day is Aug 6th!
We're asking interactive KFS questions on FB > https://t.co/UvkFCfGuKc
Awareness Day info > https://t.co/YsCEbUnhJ0
TURN THE KEY. ๐ #KFSaware2019 #KFStrong #connect #advocate #educate #partners @GlobalGenes @SanfordCoRDS @ThinkGenetic
I'm a person who has a rare disease. Klippel-Feil syndrome Awareness Day is Aug. 6th. Info here > https://t.co/6cg3GwZxtA Let's open doors for a rare skeletal disease. ๐๏ธ#KFStrong #KFSaware2019 #patients #parents #physicians #researchers #advocates YOU are key.
@GlobalGenes
TURN THE KEY. Let's open doors for a rare skeletal disease. Klippel-Feil syndrome Awareness Day is Aug. 6th. Get involved and learn more here > https://t.co/YsCEbUESAy #KFStrong #KFSaware2019 #patients #parents #physicians #researchers YOU are key.
@RareDiseases @eurordis ๐๏ธ
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