Top Tweets for #Kafrio
Sisters Caoimhe and Fiadh Ui Luing both have cystic fibrosis and both have been denied access to the life-changing drug, #Kafrio. We want @VertexPharma, @HSELive & @DonnellyStephen to see these children, know these children and resolve this promptly. https://t.co/NAEIkgekEs
@VertexPharma Would you consider on #GivingTuesday to close the deal with @MinVWS in the Netherlands , giving access to #Kafrio to all NL #CF patients? It would be so very appreciated. asking in the name of thousands of desperate CF patients. Thank you. #taaislijmziekte #daaromKaftrio
@Yolanda_Diaz_ Jóvenes con #fibrosisquística que, pese a su enfermedad, consiguen metas a las que la gente sana no puede llegar, necesitan el #kafrio para evitar el transplante bipulmonar o la muerte. ¿A qué esperan a cumplir el art 43 de la const?
@AEMPSGOB @VertexPharma @PatLacruz @hora25
@NoticiasDeEs ¿Después de 394 días que la EMA aprobó el #kafrio comienzan a negociar con @Vertexfarma. ?
Deleznable.
Durante este tiempo muchos FQ han sufrido deterioro, ingresos hospitalarios, ahogo constante, tos...
Alguién debería dimitir.
@AEMPSGOB @jordievole @PSOE @Podemos @okdiario
@CarolinaDarias Jóvenes con #fibrosisquística que, pese a su enfermedad, consiguen metas a las que la gente sana no puede llegar, necesitan el #kafrio para evitar el transplante bipulmonar o la muerte. ¿A qué esperan a cumplir el art 43 de la const?
¿Apoyan?
@LaHoraTVE @Ruiz_Noticias
Ates (top left) and other people living with #cysticfibrosis in Turkey need access to life-saving CFTR modulators now.
These are real people not just images on #Twitter
@VertexPharma - a fair priced global access plan is needed now.
#turkey #trikafta #kafrio #breathe
After a long wait, my Kaftrio has finally arrived. I didn’t think I would have access to a drug like this in my life time and I can’t wait to start taking it tomorrow. Let’s hope for some amazing results 🤞🏻💛 #cysticfibrosis #kafrio
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