#Kdvs - Twitter Hashtag

12 months ago

Hoy 17 de julio es el Día Mundial del Síndrome de Koolen-De Vries Compartimos el vídeo de @KdVSFoundation para dar a conocer esta patología #KdVS #KoolenDeVries #KdVSAwareness #EnfermedadesRaras https://t.co/Xwodthsmg8

0

5

3

0

776

KDVS - શ્રી ખોડલધામ @KDVS_OFFICIAL_

over 1 year ago

શ્રી ખોડલધામ વિદ્યાર્થી સમિતિ(KDVS) માં તાલીમ લઈ ગુજરાત સરકારમાં સિનિયર સર્વેયર તરીકે પસંદ થઈ શ્રી ખોડલધામ પરિવારનું ગૌરવ વધારવા બદલ ખુબ ખુબ અભિનંદન.... #kdvs #khodaldham #government #Students #Job #Gujarat

KDVS_OFFICIAL_'s tweet photo. શ્રી ખોડલધામ વિદ્યાર્થી સમિતિ(KDVS) માં તાલીમ લઈ ગુજરાત સરકારમાં સિનિયર સર્વેયર તરીકે પસંદ થઈ શ્રી ખોડલધામ પરિવારનું ગૌરવ વધારવા બદલ ખુબ ખુબ અભિનંદન....
#kdvs
#khodaldham #government #Students #Job #Gujarat https://t.co/lvMo85Cx8A

0

2

0

MCRI - Translational Centre for Speech Disorders @MCRI_SpeechLang

over 1 year ago

Congrats to CRE team member @MiyaDStJohn who will use these funds to present at the International #KdVS Summit and learn a long-established therapy for Childhood Apraxia of Speech with our American colleagues.

Murdoch Children's Research Institute (MCRI) @MCRI_for_kids

over 1 year ago

Congrats to MCRI's Dr Miya St John & Dr @kayli_davies121 who have won Harold Mitchell Foundation travelling fellowships for their contributions to #speech and #ataxia research. The funding will help them showcase their research internationally & strengthen global collaborations.

MCRI_for_kids's tweet photo. Congrats to MCRI's Dr Miya St John & Dr @kayli_davies121 who have won Harold Mitchell Foundation travelling fellowships for their contributions to #speech and #ataxia research. The funding will help them showcase their research internationally & strengthen global collaborations. https://t.co/4eNrpK5tqn

0

10

2

0

818

0

2

0

106

Shane N. Thompson

@ShaneNatalie

almost 2 years ago

Best wishes to the lovely DJ people on KDVS (@KDVS903fm) 6-8 morning show & thanks for playing my song request. Your show this morning is great! #MargoPrice #KDVS

Shane N. Thompson

@ShaneNatalie

almost 2 years ago

A big hello to the DJs hosting American Dads on KDVS (@KDVS903fm) & thank you so much for taking my song request Nowhere Fast by Margo Price from her album All American Made. Fingers crossed you give it a spin. Thank you 🌺

0

3

0

90

0

6

0

59

National Organization for Rare Disorders (NORD)

@RareDiseases

almost 2 years ago

Looking for a way to use your #GrantWriting skills to help a small #RareDisease nonprofit? Contact the @kdvsfoundation today! They are based in Wilmington, NC and looking for a volunteer grants officer. Learn more and apply here: https://t.co/vn3bSEUYet #KdVS #KoolenDeVriesSyndrome #KoolenDeVries

0

3

4

1

466

Shane N. Thompson

@ShaneNatalie

almost 2 years ago

If he names an album World Peace Is None Of Your Business I’d say don’t mess with the Man. #Morrissey #DJcrustacean #KDVS 5⭐️s

0

8

0

80

Shane N. Thompson

@ShaneNatalie

almost 2 years ago

Just drinking 1.5L of water; only smoking a cigarette every ninety minutes instead of every hour, it’s new; listening to KDVS with DJ Sunday Gravy. #MaggotBrain #KDVS

0

8

0

40

Creer Imserso @CentroCREER

almost 2 years ago

ℹ️ Hoy, 17 de julio, es el Día Mundial del síndrome de Koolen-de Vries #koolendevriessyndrom #kdvs, una microdeleción del cromosoma 17 (tramo 17.q21.31) afectando al gen KANSL @KdVSFoundation #EnfermedadesRaras

CentroCREER's tweet photo. ℹ️ Hoy, 17 de julio, es el Día Mundial del síndrome de Koolen-de Vries #koolendevriessyndrom #kdvs, una microdeleción del cromosoma 17 (tramo 17.q21.31) afectando al gen KANSL @KdVSFoundation
#EnfermedadesRaras https://t.co/n9TNNLpezx

0

3

1

0

131

RARE Revolution Magazine®

@RareRevolutionM

almost 2 years ago

If patients with Koolen-de Vries Syndrome have children, there is a 50% chance their child will have the disorder. Learn more at https://t.co/Oukji4kEnu. #KdVS #KoolendeVriesSyndrome #KdVSF #KdVSFoundation #RareDisease #KANSL1 #Genetics @KdVSFoundation

RareRevolutionM's tweet photo. If patients with Koolen-de Vries Syndrome have children, there is a 50% chance their child will have the disorder. Learn more at https://t.co/Oukji4kEnu.
#KdVS #KoolendeVriesSyndrome #KdVSF #KdVSFoundation #RareDisease #KANSL1 #Genetics
@KdVSFoundation https://t.co/4s2FrGmGLH

0

3

0

107

RARE Revolution Magazine®

@RareRevolutionM

almost 2 years ago

In 2008, the prevalence of #KoolendeVriesSyndrome was estimated to be 1 in 16,000. Later, this changed to 1 in 55,000. Currently, the prevalence of the microdeletion is estimated at 1 in 30,000. Learn more at https://t.co/Oukji4kEnu. #KdVS #KdVSF #KANSL1 @KdVSFoundation

RareRevolutionM's tweet photo. In 2008, the prevalence of #KoolendeVriesSyndrome was estimated to be 1 in 16,000. Later, this changed to 1 in 55,000. Currently, the prevalence of the microdeletion is estimated at 1 in 30,000. Learn more at https://t.co/Oukji4kEnu.
#KdVS #KdVSF #KANSL1
@KdVSFoundation https://t.co/6073y6sJ2i

0

5

0

180

Shane N. Thompson

@ShaneNatalie

about 2 years ago

DJ Rockin’ Hale & DJ Zero, the hosts of the @KDVS903fm program Reefer Madness, are two very happening & professional DJs operating at a level years beyond their experience I’m guessing. PS. Thanks for playing Ordinary by Grinspoon #collegeradio #KDVS ⭐️

0

4

0

54

KDVS - શ્રી ખોડલધામ @KDVS_OFFICIAL_

about 2 years ago

#kdvs #khodaldham #jaymakhodal

0

2

1

0

56

KDVS - શ્રી ખોડલધામ @KDVS_OFFICIAL_

over 2 years ago

#kdvs #khodaldham #jaymakhodal

0

2

1

0

26

Ohio Department of Developmental Disabilities @DODDohio

over 2 years ago

Meet Mirabel from Marysville! Mirabel was diagnosed with a rare disease called Koolen-de Vries Syndrome (KdVS). Join us in recognizing Rare Disease Day and read Mirabel's inspiring story here: https://t.co/eee7PvyRGw #RareDiseaseDay #KdVS