Top Tweets for #kdvs
Hoy 17 de julio es el Día Mundial del Síndrome de Koolen-De Vries
Compartimos el vídeo de @KdVSFoundation para dar a conocer esta patología
#KdVS #KoolenDeVries #KdVSAwareness #EnfermedadesRaras
https://t.co/Xwodthsmg8
શ્રી ખોડલધામ વિદ્યાર્થી સમિતિ(KDVS) માં તાલીમ લઈ ગુજરાત સરકારમાં સિનિયર સર્વેયર તરીકે પસંદ થઈ શ્રી ખોડલધામ પરિવારનું ગૌરવ વધારવા બદલ ખુબ ખુબ અભિનંદન....
#kdvs
#khodaldham #government #Students #Job #Gujarat
Congrats to CRE team member @MiyaDStJohn who will use these funds to present at the International #KdVS Summit and learn a long-established therapy for Childhood Apraxia of Speech with our American colleagues.
Congrats to MCRI's Dr Miya St John & Dr @kayli_davies121 who have won Harold Mitchell Foundation travelling fellowships for their contributions to #speech and #ataxia research. The funding will help them showcase their research internationally & strengthen global collaborations.
Best wishes to the lovely DJ people on KDVS (@KDVS903fm) 6-8 morning show & thanks for playing my song request. Your show this morning is great! #MargoPrice #KDVS
A big hello to the DJs hosting American Dads on KDVS (@KDVS903fm) & thank you so much for taking my song request Nowhere Fast by Margo Price from her album All American Made. Fingers crossed you give it a spin. Thank you 🌺
Looking for a way to use your #GrantWriting skills to help a small #RareDisease nonprofit? Contact the @kdvsfoundation today! They are based in Wilmington, NC and looking for a volunteer grants officer.
Learn more and apply here: https://t.co/vn3bSEUYet
#KdVS #KoolenDeVriesSyndrome #KoolenDeVries
If he names an album World Peace Is None Of Your Business I’d say don’t mess with the Man. #Morrissey #DJcrustacean #KDVS 5⭐️s
Just drinking 1.5L of water; only smoking a cigarette every ninety minutes instead of every hour, it’s new; listening to KDVS with DJ Sunday Gravy. #MaggotBrain #KDVS
ℹ️ Hoy, 17 de julio, es el Día Mundial del síndrome de Koolen-de Vries #koolendevriessyndrom #kdvs, una microdeleción del cromosoma 17 (tramo 17.q21.31) afectando al gen KANSL @KdVSFoundation
#EnfermedadesRaras
If patients with Koolen-de Vries Syndrome have children, there is a 50% chance their child will have the disorder. Learn more at https://t.co/Oukji4kEnu.
#KdVS #KoolendeVriesSyndrome #KdVSF #KdVSFoundation #RareDisease #KANSL1 #Genetics
@KdVSFoundation
In 2008, the prevalence of #KoolendeVriesSyndrome was estimated to be 1 in 16,000. Later, this changed to 1 in 55,000. Currently, the prevalence of the microdeletion is estimated at 1 in 30,000. Learn more at https://t.co/Oukji4kEnu.
#KdVS #KdVSF #KANSL1
@KdVSFoundation
DJ Rockin’ Hale & DJ Zero, the hosts of the @KDVS903fm program Reefer Madness, are two very happening & professional DJs operating at a level years beyond their experience I’m guessing. PS. Thanks for playing Ordinary by Grinspoon #collegeradio #KDVS ⭐️
Meet Mirabel from Marysville! Mirabel was diagnosed with a rare disease called Koolen-de Vries Syndrome (KdVS). Join us in recognizing Rare Disease Day and read Mirabel's inspiring story here: https://t.co/eee7PvyRGw #RareDiseaseDay #KdVS
#kdvs #khodaldham#jaymakhodal
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