Top Tweets for #LFSawareness
Li-Fraumeni syndrome does not discriminate based on gender, race, age, or status. Neither do we. #pride #PrideMonth #lgbtqpride #lgbtqiaplus #lifraumeni #lifraumenisyndrome #LFSawareness #cancer #cancergenetics #LivingLFS #IAmLivingLFS #LFS
Hot off the press, #LFSawareness in German! Portuguese, French, and Spanish on the way. Thanks to all of our volunteers for their contributions for International #LiFraumeni Syndrome Awareness Day! @SEAGen_esp #geneticcancer #cancer #rarediseases #TP53
Happy International #LiFraumeni Syndrome Awareness Day! Learn about it and download printable #LFS info cards in English and Dutch. German, French, Greek, and Portuguese coming soon! Share & help spread international #LiFraumeniSyndrome #LFSawareness !
https://t.co/BNlDiDazrM
Happy International #LiFraumeni Syndrome Awareness Day! Learn about it and download printable #LFS info cards in English and Dutch. German, French, Greek, and Portuguese coming soon! Share & help spread international #LiFraumeniSyndrome #LFSawareness !
https://t.co/BNlDiDazrM
Thank you @Darlos12thMan @lainiemschultz @MyJScreen @pre_rad @tfri_research @real_wildfire @WynterLux83 for your personal stories & participation in March #LiFraumeni #LFSawareness month - nothing like patient perspective to raise awareness of this important #cancer #raredisease
From all the sharing & educating about #genetics #TP53 & #cancer to a record $38k in hardship grants awarded, our gratitude to all who made March #LiFraumeni Syndrome #LFSawareness Month a success by every measure. Read the full recap & see all the photos: https://t.co/1d6ZTsjvOS
Thanks to our generous anonymous donor, Benji, recently diagnosed with #LiFraumeni syndrome, is one of 38 LFS Hardship Grant awardees on #LFSawareness Day March 20 - helping defray the costs of living with #LFS.
πππ
He's preparing to shave his head to benefit @StBaldricks!
Happy #LiFraumeniSyndrome Awareness Day! Join us at 4pm PT/7pm ET for an educational presentation on the #LFS Spectrum: Different Presentations of #TP53 Variants and Mosaics. Register: https://t.co/4zQUd8S8oa
#lifraumeni #cancer #lfsawareness #genetics #p53 #lfsawarenessday
Monday March 20: Join us for the 3rd annual #LiFraumeniSyndrome #LFSawareness Day online celebrations!
11am PT, 2pm ET: #LFS trivia, fun & giveaways!
4pm PT/7pmET: The LFS Spectrum educational presentation!
Register to attend: https://t.co/NtAVKWujpl
#LiFraumeni #p53 #TP53
Those with #LiFraumeni syndrome often end up struggling to advocate for ourselves & "train" our medical teams in order to get the specialized care we need. Radiation oncologist Dr. Shekinah Elmore is the kind of doctor all #cancer & #LFS patients wish we had. #LFSawareness
Hey. Hi. I'm going to thread some things I've written about medical training/empathy/communication/systems that fail us. If you're interested. It feels like I've been at this a while and also just beginning.
1. p53 and me - for @LivingLFS awareness month https://t.co/9hOx05PBJ3
Josie was diagnosed with #AdrenocorticalCarcinoma & #LiFraumeniSyndrome at 5 months old. At her full body #MRI 18 months post-treatment, her scans came back NED (No Evidence of Disease). Go Josie!!
#acc #lifraumeni #LFSawareness #cancer #genetics #LFSawarenessMonth #RareDisease
Genetic cancer SUCKS, but we still have fun!! We are celebrating March #LFSawarenessMonth and here's how you can get involved, from #LivingLFS board members Andi Last and Trishia Shelly-Stephens!
#LiFraumeni #LiFraumeniSyndrome #LFSawareness #cancer #genetics #TP53 #LFS
Purchase the official 2023 #LFSawareness Day t-shirt featuring our elephant mandala design, wear it on March 20 - proceeds fund hardship grants for families struggling with the costs of living with #LiFraumeniSyndrome https://t.co/ryuVEjiBzc
Learn more ways you can support those with the #TP53 #genetic #cancer mutation that causes #LiFraumeniSyndrome - thanks for liking, commenting, sharing and helping us spread awareness of #LFS! https://t.co/NtAVKWujpl
#IAmLivingLFS #LFSawareness #genetics #CancerAwareness
Our #LFS Hardship Grant program has connected 93 families to over $77K in grants since we established #LFSawareness Month in 2021! Applications from eligible LFS families/individuals accepted thru 3/6, awarded on #LiFraumeniSyndrome Awareness Day March 20. https://t.co/ga23iInYTd
Congratulations to our friends at @AnticancerOrgUK on these great strides forward in #LiFraumeni syndrome research! #LFSawareness #cancer #genetics #lifraumemisyndrome #tp53 #p53
Did you wear blue yesterday? It was the second #LFSAwarenessDay β a chance to raise awareness of the rare genetic #cancer condition called Li Fraumeni Syndrome. Discover why we support this:
https://t.co/pdZ0mEh9v3
#anticancerfund #WearBlueForLFS
Sunday March 20 is #LiFraumeni Syndrome Awareness Day! Join us on Zoom at 11 Pacific/2 Eastern for exciting #LFS Hardship Grant updates, show off #WearBlueForLFS gear, + honor #LivingLFS founder Jen Mallory π Email [email protected] for Zoom link! #LFSawareness #cancer #tp53
MARCH IS LI-FRAUMENI SYNDROME AWARENESS MONTH! #LiFraumeni Syndrome (LFS) is an important rare disease. Unlock #LiFraumeniSyndrome & we could unlock #cancer! Learn more, support those living with #LFS: https://t.co/NtAVKWLmrl
#LFSawarenessmonth #lfsawareness #p53 #tp53 #genetics
Every 100 #LFSawareness shirts we sell means another $1000 hardship grant we can award to a #LiFraumeni family in need on March 20th, #LFSAwarenessDay. Order yours now: https://t.co/xDwFR0B6XM
Ever wondered about the history of LFS? Check out our timeline to learn more about its discovery! #LFSAwareness #LiFraumeniSyndrome #LFSAwarenessMonth #CancerGenetics
@NCIEpiTraining @theNCI @DanaFarber @drgglozano @AchatzIsabel @SickKidsNews
I'm so honored to volunteer with the @LFSAssociation and help families with #LiFraumeniSyndrome as part of my work as a #GeneticCounselor. Please view this amazing video to learn more for #LFSAwareness. Early detection is key! #KnowYourGenes #CancerGenetics
Today is International Li-Fraumeni Syndrome Awareness Day, co-sponsored by the @theNCIβs Division of Cancer Epidemiology and Genetics! As we fight for knowledge and treatment for LFS for all, use today to share your story and help us spread the word about LFS. #LFSAwarenessDay
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