Top Tweets for #LGMD1B
In a World🌍where
You can be anything...
BE KIND😊
#MuscularDystrophy #LGMD1B
#ChronicAbdominalPain
#ChronicDiffusedPain
#ChronicFatigueSyndrome
#MuscleWeakness #Diabetic
#HeartTransplant
#Raynauds #VisuallyImpaired
#IgG #LowImmunity
#Migraines #ASD
#HyperMobilitySyndrome
@PoppyBrooks1 thank you for following Rachel’s journey ❤️ #CAPS #HeartTransplant #IGG #CFS #ME #MuscularDystrophy #LGMD1B #HyperMobilitySyndrome #Migraines #ASD #Raynauds #ComplexMedicalNeeds Together we can ALL make a difference ❤️ #Organdonationsaveslives
@Jeggggo thank you for following Rachel’s journey ❤️ #CAPS #HeartTransplant #IGG #CFS #ME #MuscularDystrophy #LGMD1B #HyperMobilitySyndrome #Migraines #ASD #Raynauds #ComplexMedicalNeeds Together we can ALL make a difference ❤️ #Organdonationsaveslives
@StockportNurses thank you for following Rachel’s journey ❤️ #CAPS #HeartTransplant #IGG #CFS #ME #MuscularDystrophy #LGMD1B #HyperMobilitySyndrome #Migraines #ASD #Raynauds #ComplexMedicalNeeds Together we can ALL make a difference ❤️ #Organdonationsaveslives
@thalias_heart thank you for following Rachel’s journey ❤️ #CAPS #HeartTransplant #IGG #CFS #ME #MuscularDystrophy #LGMD1B #HyperMobilitySyndrome #Migraines #ASD #Raynauds #ComplexMedicalNeeds Together we can ALL make a difference ❤️ #organdonation
@CBJournoGirl84 thank you for following Rachel’s journey ❤️ #CAPS #HeartTransplant #IGG #CFS #ME #MuscularDystrophy #LGMD1B #HyperMobilitySyndrome #Migraines #ASD #Raynauds #ComplexMedicalNeeds Together we can ALL make a difference ❤️ #organdonation
@satyana87951327 thank you for following Rachel’s journey ❤️ #CAPS #HeartTransplant #IGG #CFS #ME #MuscularDystrophy #LGMD1B #HyperMobilitySyndrome #Migraines #ASD #Raynauds #ComplexMedicalNeeds Together we can ALL make a difference ❤️ #organdonation
@martyndaly thank you for following Rachel’s journey ❤️ #CAPS #HeartTransplant #IGG #CFS #ME #MuscularDystrophy #LGMD1B #HyperMobilitySyndrome #Migraines #ASD #Raynauds #ComplexMedicalNeeds Together we can ALL make a difference ❤️ #organdonation
Fatigue is different from feeling tired.
fatigue is still there when you wake up, it stays with you ALL day.
It is a lack of energy
Feeling of mental, emotional
And physical exhaustion🙁
#BedDay #Painful
#ChronicFatigueSyndromeSucks
#ME #HyperMobilitySyndrome #LGMD1B
#CAPS
BIG MDT meeting to discus Roos complex medical🏥needs
Hope we call work together to make Roos life better👨🏽⚕️🦸🏻♀️🦹🏽♀️
#ComplexMedicalNeeds
#MuscularDystrophy #LGMD1B
#CAPS #CFS #ME #ASD #IgG
#MuscleWeakness
#HeartTransplant
#RaynaudsPhenomonon
#ILowImmunity
#Migraine
#HyperMobility
People with chronic pain
Always know when you don’t believe them .
Try and understand not criticise
#MuscularDystrophy #LGMD1B
#ChronicAbdominalPainSyndrome
#ChronicDiffusedPain
#CFS #ME
#MuscleWeakness
#HeartTransplant
#Raynauds
#IgG #ASD
#Migraines
#HyperMobilitySyndrome
Happy 15th birthday to the most brave
Courageous person I know Rachel🥳
You make me very proud everyday
May all your wishes and dreams come true🌟keep smiling
#LGMD1B #MuscleWeakness
#CFS #CAPs #ASD #IgG
#HeartTransplant
#Raynauds
#LowImmunity
#Migraines
#HyperMobilitySyndrome
@davepinleeds thank you for following Rachel’s journey ❤️ #CAPS #HeartTransplant #IGG #CFS #ME #MuscularDystrophy #LGMD1B #HyperMobilitySyndrome #Migraines #ASD #Raynauds #ComplexMedicalNeeds Together we can ALL make a difference ❤️ #organdonation
@quigley1984 thank you for following Rachel’s journey ❤️ #CAPS #HeartTransplant #IGG #CFS #ME #MuscularDystrophy #LGMD1B #HyperMobilitySyndrome #Migraines #ASD #Raynauds #ComplexMedicalNeeds Together we can ALL make a difference ❤️ #organdonation
@_vcvjs thank you for following Rachel’s journey ❤️ #CAPS #HeartTransplant #IGG #CFS #ME #MuscularDystrophy #LGMD1B #HyperMobilitySyndrome #Migraines #ASD #Raynauds #ComplexMedicalNeeds Together we can ALL make a difference ❤️ #organdonation
@niall_bradley thank you for following Rachel’s journey ❤️ #CAPS #HeartTransplant #IGG #CFS #ME #MuscularDystrophy #LGMD1B #HyperMobilitySyndrome #Migraines #ASD #Raynauds #ComplexMedicalNeeds Together we can ALL make a difference ❤️ #organdonation
GOOD LUCK SWEETHEART 😊
Rachel is having a leg MRI today.
This is to look at her muscle for the MD Team.
Hopefully this will give answers about her Muscular Dystrophy 😕 #LGMD1B #MuscleDisease #Progressive
Fingers crossed 🤞🏼 all goes well.
February is YOUR birthday Month
For you Rachel, can’t wait to celebrate on the 26th February
You deserve the best day possible🎁💖🎂
#MuscularDystrophy #LGMD1B
#ChronicAbdominalPainSyndrome
#CFS #ME
#MuscleWeakness
#HeartTransplant
#Raynauds #ASD #IgG
#Migraines
Please remember -
Be kind
For everyone you meet
Is fighting a
Battle you know nothing about😊
#MakeEveryDayCount
#MuscularDystrophy #LGMD1B
#ChronicAbdominalPainSyndrome
#CFS #ME #IgG
#MuscleWeakness
#HeartTransplant
#Raynauds
#Migraines
#Autistic
#HyperMobilitySyndrome
This is how Rachel feels -
I’m still tired from yesterday’s tired.
Today isn’t looking so good
And
I’ve already issued up tomorrow’s tired.
#CFS #ME #ChronicWideSpreadPain
#LGMD1B #CAPs #ComplexMedicalNeeds
#LifeIsHard
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