Top Tweets for #LINDAHR

Australian Research Data Commons (ARDC) @ARDC_AU

about 2 years ago

🖥 💊 Researchers and policymakers often utter the words ‘even if the #datasets exist we can’t easily access them.’ That sentiment, and experience, is what the LINked #Data Asset for Australian #Health #Research (#LINDAHR) project set out to turn on its head. Supported by ARDC co-investment through the National Data Assets initiative, a team of 25 organisations has now secured streamlined researcher access to national linked health datasets from the Australian Institute of Health and Welfare (AIHW). The AIHW’s National Health Data Hub (NHDH) – previously known as the National Integrated Health Services Information (NIHSI) analytical asset – includes longitudinal de-identified person-based records for hospitalisations, emergency department, aged care services, Medicare services, subsidised medicines, immunisations, deaths, and some social determinants of health. In the past, it took about 3 years for researchers to complete the data access process. According to Professor Claire Vajdic of UNSW, who led the LINDAHR project, the time alone costs $80,000. Datasets were then accessed only for individual projects. “It’s now a single ethics application and a single governance application to AIHW,” Prof Vajdic said. “It’s been wonderful to see the collaboration create fundamental changes in the way researchers can access data.” Researchers can access the core government administrative health and aged care datasets, knowing they will be there long-term and updated regularly. The data is anonymised and stored securely with multiple privacy and confidentiality safeguards in place, and the fee structure is transparent. Applications of LINDAHR are wide-ranging, including research into #cancer and #ChronicDiseases. Another important area to society is #AgedCare. According to Emeritus Professor Julie Byles of the University of Newcastle, who advised on the LINDAHR project, understanding what care is needed at what time has a huge impact on individuals’ quality of life and life expectancy. “We’ve already seen impacts from better data,” Prof Byles said. “These include an increase in aged care places and the Home Care Workforce Support Program, which aims to increase the availability of home care by boosting the workforce. We can now also see bottlenecks more easily, a new one being protracted wait times for assessment.” LINDAHR has also opened the doors to future additions of high-value health, medical and social datasets. This is thanks to the underlying governance framework and infrastructure of the AIHW’s linkage system. “When researchers, government agencies and health service providers can better understand the impacts of disease and illness on our health system and health outcomes, this ultimately improves and saves lives,” Prof Vajdic said. 📖 Read more about LINDAHR > https://t.co/cLdYOufhMx @aihw @mummajulz

ARDC_AU's tweet photo. 🖥 💊 Researchers and policymakers often utter the words ‘even if the #datasets exist we can’t easily access them.’ That sentiment, and experience, is what the LINked #Data Asset for Australian #Health #Research (#LINDAHR) project set out to turn on its head.

Supported by ARDC co-investment through the National Data Assets initiative, a team of 25 organisations has now secured streamlined researcher access to national linked health datasets from the Australian Institute of Health and Welfare (AIHW). The AIHW’s National Health Data Hub (NHDH) – previously known as the National Integrated Health Services Information (NIHSI) analytical asset – includes longitudinal de-identified person-based records for hospitalisations, emergency department, aged care services, Medicare services, subsidised medicines, immunisations, deaths, and some social determinants of health.

In the past, it took about 3 years for researchers to complete the data access process. According to Professor Claire Vajdic of UNSW, who led the LINDAHR project, the time alone costs $80,000. Datasets were then accessed only for individual projects.

“It’s now a single ethics application and a single governance application to AIHW,” Prof Vajdic said. “It’s been wonderful to see the collaboration create fundamental changes in the way researchers can access data.”

Researchers can access the core government administrative health and aged care datasets, knowing they will be there long-term and updated regularly. The data is anonymised and stored securely with multiple privacy and confidentiality safeguards in place, and the fee structure is transparent.

Applications of LINDAHR are wide-ranging, including research into #cancer and #ChronicDiseases. Another important area to society is #AgedCare. According to Emeritus Professor Julie Byles of the University of Newcastle, who advised on the LINDAHR project, understanding what care is needed at what time has a huge impact on individuals’ quality of life and life expectancy.

“We’ve already seen impacts from better data,” Prof Byles said. “These include an increase in aged care places and the Home Care Workforce Support Program, which aims to increase the availability of home care by boosting the workforce. We can now also see bottlenecks more easily, a new one being protracted wait times for assessment.”

LINDAHR has also opened the doors to future additions of high-value health, medical and social datasets. This is thanks to the underlying governance framework and infrastructure of the AIHW’s linkage system.

“When researchers, government agencies and health service providers can better understand the impacts of disease and illness on our health system and health outcomes, this ultimately improves and saves lives,” Prof Vajdic said.

📖 Read more about LINDAHR > https://t.co/cLdYOufhMx

@aihw @mummajulz

228

Australian Research Data Commons (ARDC) @ARDC_AU

over 2 years ago

👋 Meet Prof @Louisa_Jorm, @cbdrh1's Director! Working w/ #health & #medical #bigdata, she leads the ARDC-supported #LINDAHR data asset & #ERICA platform. Hear from Louisa on #data & #platforms for Australian #research at the next #ARDCLeadership forum 👉 https://t.co/QjcnGWSGhP

ARDC_AU's tweet photo. 👋 Meet Prof @Louisa_Jorm, @cbdrh1's Director! Working w/ #health & #medical #bigdata, she leads the ARDC-supported #LINDAHR data asset & #ERICA platform.

Hear from Louisa on #data & #platforms for Australian #research at the next #ARDCLeadership forum 👉 https://t.co/QjcnGWSGhP https://t.co/ylcqWZVVnC

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