Top Tweets for #LetsbeatPSC
Why research aspirin for #PSC? Dr Rushbrook explains! The #AspPSC study is exploring if daily aspirin lowers the risk of PSC-related cancer & liver transplants for those with PSC + IBD.
🏥 45+ UK sites
💊 1 pill/day for 5 yrs
ℹ️ https://t.co/gP7hWURfnX #LetsBeatPSC
At 30, a sudden diagnosis turned Matt's life upside down, leading to a battle with PSC and UC. Today, he's sharing his journey to bring a voice to this misunderstood disease and inspire others. #ChronicIllness #RareDisease #PatientStory #PSCSupport #LetsBeatPSC #ThankYouThursday
There’s no such thing as a “PSC diet”! ❌
No evidence shows diet slows PSC progression, but many patients alter how they eat to feel better day-to-day and manage symptoms. NOTE: Disease progression is NOT a reflection of diet choice.
Info ➡️ https://t.co/3hcEGmgswG #LetsBeatPSC
How can we better predict disease progression in PSC?
New research highlights active vitamin B6 as a potential prognostic biomarker. Studies suggest measuring B6 could help assess risk & improve monitoring for people living with #PSC.
➡️ https://t.co/mM1zPSu5re #LetsBeatPSC
4 days cycling. 2 cities. 2 bikes. Gillian and John are taking on a big challenge: Cycling from London to Paris over the course of 4 days for #PSCSupport!
Donate or share her Enthuse page here: https://t.co/SKuDyL5L6E
#LetsBeatPSC #TeamPSCSupport #RareDiseaseCommunity
Whether you want to walk, jog, or run - make every step count for people living with PSC. From the Jurassic Coast to the Peak District, the Ultra Challenge Series offers events across the UK. You choose the pace and distance that suits you.
➡️ https://t.co/gywtsUlvPa #LetsBeatPSC
"I'm doing this triathlon, mainly because I can." Four years ago, James had a #livertransplant following 3yrs of terrible symptoms, cirrhosis and worry. Last month, he took on Blenheim Palace Sprint Triathlon, raising £1,316 for #PSCSupport! 🏊♂️🚴♂️🏃♂️ #LetsBeatPSC #TeamPSCSupport
🎉 Big news! We’ve officially passed the @AMRC Expert Review Audit! This ensures we always fund the best peer-reviewed research to drive better health outcomes for the PSC community.
👉 Learn more about our research: https://t.co/b8UNIRCHBI #LetsBeatPSC #PSCResearch
@PostcodeLottery @BigGive You made this happen!
Every penny raised will go fund pioneering research to overcome barriers to progress. Together, we are unlocking breakthroughs that will lead to effective treatments and, one day, a cure for PSC. THANK YOU. https://t.co/5WqdPETQ4M #LetsBeatPSC (2/2)
Kieron Dyer joined Sky Sports to talk about why he's backing @PSCSupportUK for the @BigGive #SmallCharityWeek! Thanks to our incredible donors we've reached our goal 🎉 but you can still donate (and boost your donation by 25% with Gift Aid!)🔗https://t.co/gkgmNutTX2 #LetsBeatPSC
Football legend & PSC transplant patient Kieron Dyer went on @tSHandJ to back our @biggive #SmallCharityWeek campaign! 😭❤️ Having his voice championing our rare disease community means everything. Shortly after this interview WE HIT OUR TARGET! (1/2) #LetsBeatPSC
PSC is rare, affecting 7 in 100k people in the UK. This means general gastros at local hospitals may only see 1 or 2 cases in their careers, leading to fragmented care pathways and missed opportunities for vital research. 1/3 @BritSocGastro #LetsBeatPSC #BSGLive2026
Today PSC Support is delighted to join our long-standing colleagues @KingsCollegeNHS Hospital to celebrate a significant milestone: 60 years of world-leading liver science. Mark's joining a panel discussion to reflect on decades of progress. #LetsBeatPSC #LiverDisease #Kings60th
Really important and exciting news about Volixibat as a treatment for cholestatic pruritus (PSC itch). Thank you to Dr Joshi for this quick video explaining things in a bit more detail. More ➡️ https://t.co/cVH3FUKmTL
#LetsBeatPSC #PSCItch #primarysclerosingcholangitis @EASLnews
Thank you to Lorraine, one of our incredible Facebook moderators! 💙
For nearly 14 years, Lorraine has been a reassuring voice in our community, helping our online support group grow from just 200 members to over 5,000. #LetsBeatPSC #VolunteersWeek #PSCSupport #ThankYou
We’ve arrived! 🇪🇸 Martine & Mark are officially in Barcelona for the @EASLnews Congress. The PSC Support stall is set up & they've already started meeting with international patient organizations to unite our voice. Stay tuned for updates. #EASL2026 #LetsBeatPSC #PatientAdvocacy
Up to 80% of people with PSC have IBD, making annual colonoscopies a regular routine. Many people report that the worst part isn’t the colonoscopy itself but the bowel prep. The PSC community have shared their best hacks. ⤵️
https://t.co/N0TdbExSwT #WorldIBDDay #LetsBeatPSC
Why do we co-author scientific papers? To make sure the researchers understand the reality of living with PSC. We’re a voice in the lab, shaping the future of care through global collaboration. See our recently updated Publications List: https://t.co/55f58Itfsv
#LetsBeatPSC
We're working hard to find a cure or treatment for PSC. But we can't do it without our volunteers. If you are someone with PSC, or a close family member of someone with PSC, consider joining one of our patient panels to share your views: https://t.co/GjN4dEJ74J #LetsBeatPSC
Today Mark is advocating for people with PSC at the Dr Falk meeting for IBD doctors. We know there are many people with IBD out there who also have PSC but they just don't know it. Learn more about PSC-IBD: https://t.co/vXf7JXAmTK #LetsBeatPSC #PSCIBD #RareDisease
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