Top Tweets for #LeukoAware
When 3-year-old Paxton suddenly began falling constantly, his family feared the worst. They never imagined the diagnosis would be infantile Alexander Disease (AxD). Paxton’s grandmother, Seanna, shares their journey here: https://t.co/ssDiwHnFma #LeukoAware #leukodystrophy #AxD
While the definition of a “rare disease” can vary by country, leukodystrophies are considered rare worldwide. Help us spread awareness and understanding. The more people know, the more visible these rare diseases become. #LeukoAware #Leukodystrophy #raredisease
Advocating by contacting policymakers and supporting legislation is an important way for those affected by leukodystrophy to promote research and improve access to care. #LeukoAware #Advocacy #Leukodystrophy
Leukodystrophy is a group of rare, primarily inherited neurological disorders. Scientists have identified more than 50 different types of leukodystrophy, with some still unidentified. #LeukoAware #RareDiseaseDay #ShowYourStripes
Leukodystrophies affect individuals worldwide, regardless of ethnicity or geographical location. #LeukoAware
Get the Facts Challenge! We challenge you to share one fact about leukodystrophy on your page and keep the conversation going by using #LeukoAware in your post. Download our fact sheet here https://t.co/yTOXgJDsSb!
It’s Leukodystrophy Awareness Month, today also marks National #HugAndHigh5Day! It’s the perfect time to send a virtual hug & high-five to all our supporters. Who are the heroes in your life? Let’s honor the strength and kindness of those who make a difference. #LeukoAware
Spread knowledge—share, comment, and help educate others as we work to bring attention to the challenges those affected face.
Leukodystrophy is a term used to describe a group of rare, primarily inherited neurological disorders. #LeukoAware
Happy International Day of Charity! 💙
Join us in making a difference! https://t.co/W1SAd7x9T8
Help us spread love and hope and make a donation today!
#LeukoAware
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