Top Tweets for #LifeWithEDS
Easy Peasy Outpatient Surgery Today, with a little excitement regarding an antibiotic I can’t have because of #EDS.
#EDSawareness #lifewitheds #BeautifulDisasterGaming https://t.co/6HcYdhW6bL
First session of physio for my hands yesterday. Looking at building wrist strength and options to support my unstable wrist joints. #LifeWithEDS
@SpoonieTees_ It wasn't expensive but my husband's reaction was priceless! (he thought I cut myself haha) #LifeWithEDS
BTW. Today is her birthday. I’m grateful for every birthday she gets to have. #ehlersdanlossyndrome #LifeWithEDS #WritingCommunity
With early intervention, my life could have been so different. I could have lived out the life I had envisioned for myself. I could have avoided the cane, the rollator and wheelchair. I could have kept my relationships with friends and family. #lifewithEDS
*Me shouting in pain*
Hubby: What's wrong?
Me: My ankle is dislocated
Hubby: How did you do that?
Me: By existing.
#LifewithEDS
Looking forward to #H50 so I can forget about the horrible pain my body is at the moment. #EDS #EhlersDanlosSyndrome #EhlersDanlos #LifeWithEDS
The ways we have to lay to get relief of some kind for the horrific pain.
#chronicillness #invisibleillness #chronicpain #advocate #opioidpainrefugee #pelvicfloordysfunction #eds #edswarrior #lifewitheds #ehlersdanlos #zebralife #spillingtheteaondisabilities
My mam spent her birthday in hospital with me getting tests how much of a legend #lifewitheds
Me - Oh nothing's wrong, I just dislocated my hip Wednesday so I'm on a crutch for a bit
Them - Omg how did you do that???
Me - Sleeping
Them - ........... That can happen?
#lifewitheds #eds
Panic over, my wrist has come to my rescue. It's self act of total dislocation, picking up a pillow, had distracted me from my hip.
Thank you #EDS #EhlersDanlosSyndrome
#LifeWithEDS Still recovering from ankle stabilisation surgery - after years of dislocations. The added pressure on my other joints means more #dislocations & #tendonitis #Ouch #EDS
Doctors need to learn what EDS IS, WHAT POTS IS, WHAT MCAS IS, AND WHAT HAVING ANY COMBO MEANS TO WE THAT LIVE WITH THEM!!
#DOCTORSAWARENESS #chronicillness #CHRONICLYILL #DISABILITYTALK #DISABILITYDISH #LIFEWITHEDS #LIFEWITHPOTS #POTS #MCAS #EDS #ACTIVIST
"My hip is so far out of place it's in narnia"
Just yelled across my house 👍🏻 #LifeWithEDS
Individuals with #autonomicdysfunction often notice associated tiredness, tremor, sweating, anxiety and clumsiness at the same time. #EDS
FRIEND TODAY:
"Can u just explain EDS/what life w/EDS is like in 5 mins or less?"
...and I laughed &laughed😂
#LifeWithEDS #NothingIsSimple
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