Top Tweets for #LucysLight
Give yourself 40 mins on @YouTube and head to @LucyAlexandria #LucysLight channel for a special @DyingMatters episode, 'Tea, Talk and Tears' to hear them talk about end of life conversations, #AdvanceCarePlanning and much moreπ #DyingToBeHeard
Tea, talk and tears with @drkathrynmannix - a #LucysLight episode for @DyingMatters week, #DyingToBeHeard. Talking about end of life conversations, #advancecareplanning & more.
#DyingMattersWeek #EOLC #death #dying #palliativecare #hpm #hospice
πππ
https://t.co/4rZPdUFMg2
Tea, talk and tears with @drkathrynmannix - a #LucysLight episode for @DyingMatters week, #DyingToBeHeard. Talking about end of life conversations, #advancecareplanning & more.
#DyingMattersWeek #EOLC #death #dying #palliativecare #hpm #hospice
πππ
https://t.co/4rZPdUFMg2
What does a day #WorkingFromHome look like for me? A new #LucysLight #YouTube video uploaded yesterday, do check out my YouTube channel.
#WorkFromHome #Job #SelfEmployment
https://t.co/IT2N2oKoCq
How did I create my business plan? What did I include? How did I work things out?
Find out more about my self-employed business plan in this #LucysLight #YouTube video.
πππ
https://t.co/jbwrAeWjWn
5 things youβll understand if you have a rare disease | #LucysLight.
#RareDiseaseDay 2020 is tomorrow and I created this video sharing 5 things that people will understand if they have a #RareDisease, and some of the things we experience.
https://t.co/1KIeYyCfqd
People have been asking about my journey to self-employment. I am developing a video series all about that journey and about self-employment and this is the first video - "What is self-employment?"
#LucysLight #YouTube #SelfEmployment #VideoSeries
https://t.co/exTCHJdSBI
What's it like receiving an #MBE from the Queen? What is the Honours system? How do you nominate someone for an Honour? What is the difference between MBE, OBEs, Damehoods and Knighthoods?
Check out my new #LucysLight #YouTube video below:
https://t.co/dE7k0E8vih
New Video: "How I Cope With My Life-Limiting Illness" | #LucysLight
Find out how I #cope with my #LifeLimitingIllness and what helps me stay focussed, motivated, positive and happy.
#YouTube #Coping #ChronicIllness #LLTC #palliativecare #dying #life
https://t.co/O6kUPzWbze
Second proper #YouTube video coming up later.
β
12 tips for being #productive with a #ChronicIllness.
Do check back later - it goes live at 16.00 but I am out at an event so might not post straight away.
Check out my YouTube channel π #LucysLight
πhttps://t.co/Z90k0SQ7Jh

Disabled personβs clothes haul | #LucysLight
Recent #clotheshaul + how I need #clothes that work with my height (6β1 #tall) + #HickmanLine (& access), drainage #PEG, 2 stoma bags, Urostomy night bag, + easy to put on, works with my #disability etc.
ππΏ
ππΏhttps://t.co/9mB0FQF3KV
Join me over a 10 day period in this Lucy's Light vlog in which I deliver staff training, give speeches, attend meetings, attend an award ceremony, and everything in between, from 30th October to 9th November 2019. Hope you enjoy it. #LucysLight
ππhttps://t.co/WoB3tfrGlj ππ

In this vlog, come along with me on a busy week in which I had various Skype calls, lead a virtual workshop, 3 speeches & an NHS England meeting.
WATCH HERE: https://t.co/N9RdD3moop
*This is a teaser clip* #Vlog #LucysLight #AssistanceDog #MollyDog #personalisedcare #EOLC #NHS
Read the latest blog post from @jorooksart, author of #SophiesShell and #LucysLight, the first books in the #OnceUponaGarden series (on sale 8/6). Kids are already falling in love with Sophie! <3 https://t.co/n3Vi6hGuxw
My blog for #CoProWeek with the 2 co-production #LucysLight podcast episodes embedded.
Episode #2: Co-production in research through our project @FullLivesESRC
Episode #3: Strategic Co-Production by @NHSEngland @Pers_Care
ππ https://t.co/Evid4LZxpM ππ
#Coproduction #PLA

Soon time for the tweetchat discussing the Peer Leadership Academy, join us 19.00 using #PLA.
If you want to know more about the PLA & about the @NHSEngland @Pers_Care National Strategic Co-Production Group, do check out my #LucysLight podcast episode π
https://t.co/49cbO83Y2r
Hoping wifi works sufficiently tomorrow so I can upload ep 3 of the #LucysLight podcast for #CoProWeek on Strategic Co-Production & the @NHSEngland @Pers_Care Strategic Co-Production Group with @SheroneHD @HollyMLoughton @CarrFbpe @NotWastedliving @buckinghamv7 & @AmyMaryRose π
How do you co-produce research with young disabled people? This #CoProWeek hear @KirstyLiddiard1 @SallyWhitney18 & I on #LucysLight discussing the @FullLivesESRC project, how we used #coproduction & how it benefitted the project.
See link for full episode:
https://t.co/8B316RMJnm
How do you co-produce research with young disabled people? This #CoProWeek hear @KirstyLiddiard1 @SallyWhitney18 & I on #LucysLight discussing the @FullLivesESRC project, how we used #coproduction & how it benefitted the project.
See link for full episode:
https://t.co/8B316RMJnm
Loving editing the @FullLivesESRC episode of the #LucysLight #podcast. Such great content from the 2 amazing guests @KirstyLiddiard1 & @SallyWhitney18. Looking forward to debuting this episode & the @NHSEngland #StrategicCoproduction episode during #CoproductionWeek 1st-5th July.

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