#MDAOrg - Twitter Hashtag

7 months ago

15 years ago, I urged postdoc @MarkAmin2019 to test allogeneic #CDCs in #mdx mice to see if they ameliorate #Duchenne #cardiomyopathy. Flash forward: #Deramiocel dramatically preserves both heart and skeletal muscle function in #DMD patients as Craig McDonald shows today #MDAorg!

MarbanLab's tweet photo. 15 years ago, I urged postdoc @MarkAmin2019 to test allogeneic #CDCs in #mdx mice to see if they ameliorate #Duchenne #cardiomyopathy. Flash forward: #Deramiocel dramatically preserves both heart and skeletal muscle function in #DMD patients as Craig McDonald shows today #MDAorg! https://t.co/PnHigSTJxA

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Saint Paul Professional Firefighters Local 21 @L21_stpaulfire

almost 2 years ago

Thank you to all who contributed with the 2024 Fill the Boot. We were able to present check for over $25,000 to the MDA. Special Thank You to Local 21 members Sara Reasoner and Nick Vadnais for all of your hard work. #IAFF #iafflocal21 #mdaorg

L21_stpaulfire's tweet photo. Thank you to all who contributed with the 2024 Fill the Boot. We were able to present check for over $25,000 to the MDA. Special Thank You to Local 21 members Sara Reasoner and Nick Vadnais for all of your hard work. #IAFF #iafflocal21 #mdaorg https://t.co/bblgeVEMlN

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Rare Disease Advisor @RareDisease_Adv

over 2 years ago

Spinal muscular atrophy #PatientAdvocate Ira Walker Selected as @MDAOrg’s 2024 ‘National Ambassador’ 💡Discover more about Ira and his hopes for the future of SMA care: https://t.co/IcXMvNFDJW #MDAConference #MDAorg #RDAatMDA #neurology

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Lori L Wallrath @Labtacular

over 2 years ago

Unbelievable research and many gene therapy success stories @ the Muscular Dystrophy Clinical & Scientific Conference. #MDAconference #mdaorg

Labtacular's tweet photo. Unbelievable research and many gene therapy success stories @ the Muscular Dystrophy Clinical & Scientific Conference. #MDAconference #mdaorg https://t.co/EaSm6ZsgGS

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wendy piazza @wendjac

over 3 years ago

@BuffaloFAMbase Hines’ charity is Muscular dystrophy #mdaorg Go do your thing!

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Jenny McLain @JennyMcLain

almost 4 years ago

Please help to get a used handicapped equipped minivan to get them to their medical appointments after Hurricane Ian ruined both of their cars. https://t.co/S5S0xgPENK #GoFundMe #gofundmedonations #gofundmecampaign #gofundmeplease #muscular_dystrophy #mdaorg

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Woodhall Press @WoodhallPress

over 4 years ago

As #InternationalWomensMonth comes to an end, here are some inspiring words from @MindyHSpeaks (author of THE TRUTH ABOUT THINGS THAT SUCK).⁠ ⁠@mdaorg We look forward to continuing to share the stories of women and amplifying their voices.⁠ #mindyhenderson #mdaorg #woodhall

WoodhallPress's tweet photo. As #InternationalWomensMonth comes to an end, here are some inspiring words from @MindyHSpeaks (author of THE TRUTH ABOUT THINGS THAT SUCK).⁠
⁠@mdaorg

We look forward to continuing to share the stories of women and amplifying their voices.⁠

#mindyhenderson #mdaorg #woodhall https://t.co/X4RhzGHmKW

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MDA Puerto Rico @mdapr

almost 5 years ago · Bayamón

GRACIAS es lo que me gritan nuestros corazones al ver la pasión, compromiso, amor y dedicación de TODOS nuestros Voluntarios. ¡FELICIDADES en su Día! #mdaorg #mdapuertorico

mdapr's tweet photo. GRACIAS es lo que me gritan nuestros corazones al ver la pasión, compromiso, amor y dedicación de TODOS nuestros Voluntarios. ¡FELICIDADES en su Día!
#mdaorg #mdapuertorico https://t.co/eht0aDhr1x

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MDA Puerto Rico @mdapr

almost 5 years ago · Bayamón

Sabías que... #telemaratonmda #mdapuertorico #mda #mdaorg

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DeadlyWinter ✝ @DeadlyWinter1

almost 6 years ago

#AOCGamingNA #LetsPlayForACure #MDAorg Thank you so much for giving me a new monitor! 🤗it feels so awesome to run my games at 144 hz, no more white lines, flicking screen! My 244 hz monitor couldn't run the full hz because its faulty, Streaming will be easier! ☺

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City of Derby @derbyks

about 6 years ago

Labor Day weekend is #MDAorg Fill the Boot time. Due to COVID-19, we are taking our efforts online. See how you can help at https://t.co/Qd2T4azMhT #MDA #FilltheBoot

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CAL FIRE TGU/ Tehama County Fire Department @CALFIRETGU

almost 7 years ago

Come out and support the TGU firefighters Fill the Boot events 10/19/19 and 11/2/19. See details below. #MDAorg #CALFIRETGU2019

CALFIRETGU's tweet photo. Come out and support the TGU firefighters Fill the Boot events 10/19/19 and 11/2/19. See details below. #MDAorg #CALFIRETGU2019 https://t.co/VzNPKyONf0

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Adam Cotumaccio

@Cotumaccio

almost 7 years ago

Congratulations #Eluidkipchoge!!! we also believe everyone can #liveunlimited #MDAorg #inspiration https://t.co/D2P6esAFpF

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Donnie Harpell🌺 @DonnieHarpell

about 7 years ago

@TulsiGabbard @jaysukai @MDAorg @FortDodgeIowa Nice job brothers & sisters from Fort Dodge FD! FF from NH here who thanks you & all who support #MDAorg . Love & support @TulsiGabbard & can’t wait for her to return to NH! #ServiceAboveSelf #LetTulsiSpeak

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No More Excuses ALS Watchdogs!

@als_now

about 7 years ago

"We don't fund Phase 3 trials". No, you play semantics. Look at the pics. Tragically, this also ensures the man who STOPPED ALS PROGRESSION (Appel) "must" now get 0$ for his future P3 trial while $80M+ sits rots a bank!? 🤮 #EndALS #alsassociation #ALS #MND #alsadvocacy #MDAorg

als_now's tweet photo. "We don't fund Phase 3 trials". No, you play semantics. Look at the pics. Tragically, this also ensures the man who STOPPED ALS PROGRESSION (Appel) "must" now get 0$ for his future P3 trial while $80M+ sits rots a bank!? 🤮 #EndALS #alsassociation #ALS #MND #alsadvocacy #MDAorg https://t.co/zrlem4MBCK

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Meilee Condron @MeileeCondron

over 7 years ago

Great article on the @MDAorg Wings Over Wall Street charity event my family was involved in last week in NY. There was an amazing tribute to my grandma @karen_condron who passed away this past summer from #ALS. Nana won the spirit award in 2015 #mdaorg https://t.co/Twmsb1zsQL

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Adam Cotumaccio

@Cotumaccio

over 7 years ago

Thank you NYU School of Professional Studies & professors Mel Ehrlich & Tina Clarke for asking me to guest lecture for your classes. It was a lot of fun discussing Marketing & PR for non-profit organizations. Happy to come back to my alma mater anytime! #CSR #NYU #NYUSCPS #mdaorg

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Adam Cotumaccio

@Cotumaccio

over 7 years ago

Committed to finding a cure through research for #LGMD and this network will help us get there faster. #MDAorg #mdagivestrength #research https://t.co/njE9VyDrd3

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Murray Aitken @Murray_Aitken

over 7 years ago

Newborn screening programs. #DigitalHealth solutions. Increasing the use of #Patient Registries. All have the potential to improve diagnosis & care management of #neuromuscular diseases. Take a closer look at what #HCPs think >> https://t.co/pTPTTdJ3fV #MDAOrg

Murray_Aitken's tweet photo. Newborn screening programs. #DigitalHealth solutions. Increasing the use of #Patient Registries.
All have the potential to improve diagnosis & care management of #neuromuscular diseases. Take a closer look at what #HCPs think >> https://t.co/pTPTTdJ3fV

#MDAOrg https://t.co/TZzQinKv7t

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Murray Aitken @Murray_Aitken

almost 8 years ago

In a landmark report, the IQVIA Institute leveraged input from clinical and genetic testing leaders to identify where advancements in the #neuromuscular disease treatment paradigm are likely to occur and where hurdles remain >> https://t.co/W6wW7MCdN8 #mda #mdaorg #raredisease

Murray_Aitken's tweet photo. In a landmark report, the IQVIA Institute leveraged input from clinical and genetic testing leaders to identify where advancements in the #neuromuscular disease treatment paradigm are likely to occur and where hurdles remain >> https://t.co/W6wW7MCdN8

#mda #mdaorg #raredisease https://t.co/Td0LgV6MxD

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