#MLDAwareness - Twitter Hashtag

over 3 years ago

My beautiful nephew Joey 💙 Wakefield parents raise awareness on their little boy's MLD condition as he celebrates his third birthday https://t.co/mFEIF4Do2g #mld #mldawareness #rarediseaseawareness

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Cure MLD @cure_mld

almost 5 years ago

Part of Cure MLD’s mission is to spread MLD awareness and education! Of the 3 recognized subtypes of MLD, juvenile-onset MLD is the 2nd most common. Symptoms often begin anytime between the toddler years and early teens. Learn more: https://t.co/wzMTX16Z4s #MLDawareness

cure_mld's tweet photo. Part of Cure MLD’s mission is to spread MLD awareness and education!
Of the 3 recognized subtypes of MLD, juvenile-onset MLD is the 2nd most common. Symptoms often begin anytime between the toddler years and early teens.
Learn more: https://t.co/wzMTX16Z4s
#MLDawareness https://t.co/noOjemRt06

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Cure MLD @cure_mld

almost 6 years ago

In honor of his great niece Cori, diagnosed with MLD in 2014, Chris Syemour set out to run 7 marathons on 7 continents, plus an 8th on the #NorthPole! #MarathonGrandSlam. Check out https://t.co/oEe4DZ5mAi to read his story. #MarathonGrandSlam #MLDawareness

cure_mld's tweet photo. In honor of his great niece Cori, diagnosed with MLD in 2014, Chris Syemour set out to run 7 marathons on 7 continents, plus an 8th on the #NorthPole! #MarathonGrandSlam.

Check out https://t.co/oEe4DZ5mAi to read his story.

#MarathonGrandSlam #MLDawareness https://t.co/RaR9DrIvc4

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Bernadette Sheehan Gilroy @sheehangilroy

over 6 years ago

An incredible interview by @Lesmart11659095 advocating for the expansion of #newbornscreening in Ireland. 👏 #MLDAwareness #Raredisease #IndividuallyRare #CollectivelyCommon

Ireland AM @IrelandAMVMTV

over 6 years ago

This morning we were joined by Les Martin, father of Cathal and Ciaran Martin, both of whom were diagnosed with MLD, in order to raise awareness about his campaign for better screening of newborn babies with rare diseases in Ireland. #IrlAM