Top Tweets for #MMLiving
This past week has been tuff, thank you everyone who has reached out. I have been able to slowly start eating so better spirits. Keeping up the good fight. And please remember to thank your care partner. #MMliving #MYELOMA #Carepartner
So, side effects are taking a toll. I now have had my mouth dry out so bad my tongue and cheeks are cracked. I have lost a lot of weight and I know I need to eat but now I really can't. Just have to keep moving forward!! #MMliving #Myeloma #Talquetamab
So as someone who has been on drugs more than off drugs over the last 7 years this is amazing and makes me more thank full for my job and insurance through work. This scares me so much. #MMliving

This is on the horizon!!! So much coming for MM treatment!! #MMliving
This phase 2 clinical trial seeks to determine if the investigative drug CLR 131 is safe and can be tolerated for the treatment of multiple #myeloma or certain lymphomas. To learn more about what centers are enrolling, view: https://t.co/nvXw0pR7cb #clinicaltrial #mmsm

In this #AskDrDurie video, a gentleman heard about a new treatment for #myeloma in the news. What is the monoclonal antibody #TALVEY (talquetamab)?
https://t.co/uB7ZfQCcTP
#mmsm #knowmyeloma #multiplemyeloma

So yesterday we did treatment @MoffittNews and today we are doing our monthly IVIG treatment! The things we do to stay as healthy as we can with 3 kids in Daycare!! #MMliving #mmsm

Another day, @MoffittNews getting my #Talquetamab. Side affects are getting manageable. Still tuff to deal but dealing because it is working!! #MMliving #Missmybeard
Meet Wyatt Michael Lenoir. came a week earlier than expected, but I finally got my boy. Baby #5. Doing awesome, and so is mom. 1 happy dad!! #MMliving

So, question for all: Why would Talquetamab cause me to loose my facial hair?? As a guy going bald anyway, why just my beard. I have not been this clean shaved since my stem cell transplant. #MMliving #mmsm #kNOwMyeloma Miss you Beard......
Got a late night text from the amazing @MELISSAALSINAMD last night to let me know that Talquetamab is working. My Kappa Free light chains went from 163 down to 7.8!!!! So we will be staying on this, just need to figure out how to eat and we will be golden! #MMliving #kNOwMyeloma
I know I look forward to the time I spend with my group every month and the check ins we do on each other. #kNowMyeloma #MMliving
Exciting News this #BloodCancerAwarenessMonth! 2 new myeloma support groups: Southern Nevada Myeloma Info & Sharing Group & Bermuda Multiple Myeloma United Support Group.
Connect, learn, and find hope. Join or start a group today! https://t.co/kEInAhJc4A
#kNOwMyeloma

#BloodCancerAwarenessMonth starts TODAY! We NEED YOUR HELP to spread awareness through education. Will you share your knowledge? Will you help others #kNOwMyeloma? Learn how YOU can help:
https://t.co/xXn6qLIZs7
#myeloma #mmsm


I'm still sitting here in the hospital. Spiked a fever out of nowhere last night and didn't break till 430 this morning. So just walking walking walking. I am hoping everything is good tonight, and I get to hug my girls tomorrow!! #MMliving #mmsm @MoffittNews
So, going through this step-up dosing of #Talquetamab hasn't been horrible. I have spiked some ugly fevers, but we all know how to deal with them. The worst part is what it is doing to my taste buds and mouth. The dry mouth has trashed taste buds. #MMliving #mmsm
I missed day 7 but back strong on day 8!!! Showered, breakfast, and getting ready to walk. Hopefully, today, we will get the final dose. The worst I've seen with this is the dex! I get horrible pain coming off dex. But still going strong! #MMliving #mmsm @MoffittNews
With today's approval of Pfizer’s ELREXFIO, we have now 5 new immunotherapies approved in last 2 years with responses between 60-98%. Incredible times!! And more to come. @VincentRK
@NoopurRajeMD @mmrf @Myeloma_Society #mmsm @IMFmyeloma @theMMRF @HealthtreeMM @ASH_hematology
Day 6, postponed the dose from last night to this afternoon. Trying to give my body a break from the fevers. I said, "Let's do it", doc said no. So coffee, some work, heading for the shower, and then walking. Won't slow me down! #MMliving #mmsm @MoffittNews Shot around noon!!
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