#MNDmoreneedsdoing - Twitter Hashtag

almost 4 years ago

Not sure I'll be able to watch it but would highly recommend it to see both the realities of this hideous disease and also the brave way that it is faced #mndmoreneedsdoing #ALS

Claire Ryan @ClaireRyanBBC

almost 4 years ago

Rob decided he wanted to show the reality of living with motor neurone disease and the impact it has not just on him but on his whole family. This is their story. #BBCBreakfast #BBCTwo @Rob7Burrow ⬇️

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Jayne Harler @dfc4ever

about 4 years ago

@onein300 @sajidjavid @BorisJohnson @GOVUK @sallynugent All power to you Lee, let's hope they are all people of their words and not some tick box exercise. Until you are affected by MND you have no idea how life is. We keep going ..... #MNDmoreneedsdoing

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Jayne Harler @dfc4ever

about 4 years ago

@onein300 @sallynugent @sajidjavid If it's not your responsibility @savidjavid , as Secretary of State for Health and Social Care then please work out who is and get it sorted. We will keep on pressing & pressing & pressing...... #MNDmoreneedsdoing

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Jayne Harler @dfc4ever

over 4 years ago

@onein300 @BorisJohnson @sajidjavid @GOVUK @GeorgeFreemanMP Gov't keep on about the money, but nothing has appeared. How long would you want to wait if a family member of yours was diagnosed! We have to have the patience of a saint. #MNDmoreneedsdoing

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DougKerr @DougKer39026136

over 5 years ago

Great call by @Rob7Burrow dad Geoff 🙏 calling on the Government to match fund the £1.8 million raised by #KevinSinfield 🧡💙 #MND is not incurable it's underfunded #MatchFunding #MNDMoreneedsDoing

BBC Breakfast

@BBCBreakfast

over 5 years ago

On #BBCBreakfast Rob Burrow's dad, Geoff calls on the government to match the £1.8 million raised by Kevin Sinfield by running seven marathons in seven days. https://t.co/BkoIFVeN5d

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