Top Tweets for #MPNHZ23
What is Patient Advocacy? Listen now to Jonathan Mathias talking about the work that is done in MPN Voice and MPN AN to represent the MPN Community as a whole.
🎥 https://t.co/ltvaj7t3ja
#MPNHZ23 #MPN #PatientAdvocacy
How can we collaborate with other patient organisations? Listen NOW to Jonathan Mathias!
🎥 https://t.co/ygtKpg5jlA
#MPNHZ23 #MPN #PatientAdvocacy
🎥Listen NOW about the Special cases in MPNs: skin cancers & thrombosis by Claire Harrison at #mpnhz23
https://t.co/W7vgHvghm9
#MPN #PatientAdvocacy
🎥 PV - What is the current standard of treatment? Listen now to Gabriela Hobbs at #MPNHZ23 https://t.co/Rb19IroOvF
#PatientAdvocacy #MPN
Learn more about Diagnostic Criteria for ET, PV & MF, biological aspects through the lecture by Susanne Isfort at #MPNHZ23!
🎥 https://t.co/OQtPgkBltm
We are finishing #MPNHZ23!
Well known best poster awards have been delivered.
1. France
2. Sweden
3. Thailand
Thank you all for being a part of the 8th MPN HORIZONS 2023!
See you next year!!

Hyper méga heureuse et fière que notre association @VivreAvecUneNmp ait reçu le premier prix de @GMPNAN pour #SeptembreRouge !
Les rêves les plus fous ne sont jamais irréalisables. #MPNHZ23

And now on stage our last speaker and topic for this year! We are listening to Kapila Viges pointing out 3 key stakeholders’ engagement in research. #MPNHZ23

What is the buddy system of MPN Voice UK? Listening to Jon Mathias sharing insights into their peer-to-peer support at #MPNHZ23

Following after Matti, we are having Karin and Maya on stage from VIVRE AVEC UNE NMP France sharing their very successful MPN awareness campaign. #MPNHZ23

Next on stage we have Matti Santalahti from our member organisation from Finland talking about Patient advocates in cancer research. #MPNHZ23

Next on stage is Bahija GOUIMI from our member organisation from Morocco sharing insights of the incredible project DAR AL AMAL. #MPNHZ23

Last session of #MPNHZ23 is dedicated to the key initiatives that patient organisations have implemented. We are listening the first talk from our Italian member organisation AIPAMM about conducting a survey for Patient Health Engagement & Sources of Information on MPNs.

Joining us virtually this morning, Susanne Isfort will be closing the session at #MPNHZ23 with her talk about Complementary therapies in MPN.


For our second talk this morning session we are listening to Guy Tavori joining us virtually about The Caregiver’s role and how are they involved in the journey. #MPNHZ23

Tha last day of #MPNHZ23 kicked off with a full room and an excellent introduction on what patient advocacy is by Jon Mathias and Werner Zinkand

Anil Nagpal "maximise social media advocacy, use influencers to creare awareness" at #MPNHZ23

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