Top Tweets for #MPNHZ26
🥗 What role do nutrition and inflammation play in MPNs?
Nathalie Cook 🇦🇺 explores the importance of nutrition and inflammation in the management of myeloproliferative neoplasms.
#MPNHZ26 #MPN #PatientWellbeing
💙 Preparing for a stem cell transplant involves much more than medical treatment.
Joining virtually from the UK 🇬🇧, Laura Barr discusses how to prepare patients for transplantation and the importance of support throughout the process.
#MPNHZ26 #PatientCare
🩸 What role does stem cell transplantation play in MPN treatment?
Dr. Nicola Polverelli 🇮🇹 discusses transplantation, an important treatment option for selected patients, at #MPNHZ26.
#StemCellTransplant #Myelofibrosis #MPN
#MPNHZ26 a very impressive meeting of leading patients advocates, experts and Pharma. So much interest in these blood cancers. We will now discuss
If cure is on the horizon?
🧬 New mutations, new questions and new possibilities for MPN care!
Dr. David Ross 🇦🇺 discusses emerging mutations and their significance in MPN treatment at #MPNHZ26.
#MPNGenetics #MPNResearch
🔬 How does genetics influence our understanding of MPNs?
Prof. Claire Harrison 🇬🇧 joining virtually explores the role of genetics in myeloproliferative neoplasms and its relevance to the evolving treatment landscape.
#MPNHZ26 #MPNResearch #Genetics
🧬 What do patients need to know about MPN mutations?
Elaine Vickers 🇬🇧 takes us through an introduction to genetics and MPN mutations, helping make complex scientific concepts more accessible to patient advocates.
#MPNHZ26 #MPNGenetics
💙 Living with an MPN affects more than physical health.
Joining us virtually from the UK 🇬🇧, Claire Woodley explores the value of psychological support for people living with MPNs.
Because emotional well-being matters too!
#MPNHZ26 #QualityOfLife
🔬 Patients should have a voice in the research that shapes their care!
At #MPNHZ26, Sara Douglas 🇺🇸 explores the importance of patient participation in study design and beyond.
How can we make clinical research more patient-centred?
#PatientEngagement #MPNResearch
A comprehensive MPN Handbook for MPN patients and their caregivers. Anil Nagpal, Trustee @Friends_Of_Max and caregiver himself explaining this invaluable resource I’m working on currently at the Poster Session of @GMPNAN #MPNHZ26 in Paris
💬 Do physicians truly understand how people living with MPNs feel?
Dr. Ruben Mesa 🇺🇸 and patient advocate Monica Perez 🇪🇸 explore the disconnect between patient experiences and physician perceptions—and how we can bridge this gap.
#MPNHZ26 #PatientVoice
🤝 How can patients, physicians and companies work better together?
Day 2 of #MPNHZ26 begins with an important advocacy session exploring communication, collaboration and the value of understanding patients' needs.
Chaired by Kapila Viges and Jonathan Mathias.
#MPNAdvocacy
Telling patients stories, and combining efforts in advocacy, helps make MPN care a bit more accessible! Such efforts need to be augmented and supported, to ensure patients in LMICs have a fair shot at life! #MPNHZ26 @HENZOKENYA @kenconetwork @CCan_org @NCIKenya @CancerProgramKE
🌍 Access to MPN care varies around the world. How can we better understand these differences?
Jonathan Mathias introduces the MPN Access Atlas at #MPNHZ26, a project focused on supporting data-informed patient advocacy.
#MPNAccessAtlas #HealthEquity
It’s our flag ! So proud to hold it up. And represent as Steering Committee Member @Friends_Of_Max @themaxfndn and India at the @GMPNAN Meet in Paris.
#MPNHZ26
Working towards more awareness and empowerment for the MPN community
#MPNHZ26 Australia, Asia & Africa break out session. Discussing collaboration, challenges and fundraising. @HENZOKENYA
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