Top Tweets for #MeAwareness
This is one of the most impressive letters I've read from any ME advocacy org.
It would be great if it could perhaps be used to help to inform those writing on this issue in the MSM in future
#pwME #MEAwareness #MedTwitter #PACETrial
🌻Regular Weekly votes needed please! #MEAwareness 🌻
PLEASE VOTE for @Invest_in_ME to share in grant monies from My Giving Circle- closes 30/9
#12 on this round for UK/🇮🇪
#MyalgicEncephalomyelitis
https://t.co/stQ7LnHjQr
Extra Votes?
Please support
MEResearchUK
25% ME Grp🙏
I can’t fathom being able to lay here & at least be comfortable & relatively pain free..at least that type of ME I would survive…trapped in a room by self in bed in extreme pain & tons of other symptoms on top is agony. Muscles just shake trying to hold phone up to type now
Education is one of the most powerful tools we have for improving outcomes for people living with M.E./C.F.S., and #DigitalTraining is how we make that education scalable.
We’re raising the startup funding required to begin building a dedicated #MECFS educational app
1/
In Their Own Words: #MECFS & #Fibromyalgia Patients Describe Their Symptoms @CortJohnson
"I would not wish this illness on my worst enemy (if I had one)... sometimes I wish the naysayers could live in our bodies."
🔗
https://t.co/hC8WPclEcR
#MEAwareness #FibromyalgiaAwareness
Poem of the day- FAKING IT
#poetry
#MyalgicEncephalomyelitis
#MEAwareness
#pwME
#MillionsMissing
#longcovid
Ausschnitt aus der Kurz-Reportage zur MakerFaire 2026 von @makerfaire.ch und @enter_technikwelt .
Video:
https://t.co/jqn5NAmxkp
Wir freuen uns auf das nächste mal.
#MFSO26 #MillionsMissing #DIY #Robotics #MEAwareness
Reflections from the organiser following an art exhibition in the Netherlands on ME.
https://t.co/VQu5U8WBy8
#MyalgicEncephalomyelitis #MEawareness @AnilvanderZee
Was für ein schönes Wochenende an der MakerFaire Solothurn 2026! 🤖
Vielen Dank an @makerfaire.ch und @enter_technikwelt für die Organisation und an alle Besucher*innen für die spannenden Gespräche, Fragen und dem Interesse.
#MFSO26 #MillionsMissing #DIY #Robotics #MEAwareness
So incredibly grateful to everyone who's worked so hard to make this happen
#ME #MEcfs #MedTwitter #MEAwareness
1) We have written an article with more background information on the €7.5 of European funding for #MECFS. 👇
While a historic achievement, one project can not undo decades of underfunding. Our goal is a long-term support for ME/CFS research.
https://t.co/eIBwzbj0Ac
Another excellent instagram post from the brilliant The M.S Bloke on the vast contrast between how #ME & #MS are understood & treated.
#pwME #MEAwareness
https://t.co/R4tvz96j6l
@DrJoGreer Yes. That’s why I’m campaigning for very severe to be the face of ME in public facing advocacy and awareness. Mild and moderate cannot represent a disease where 1 in 4 are as sick as people on their death-bed, but chronically, without healthcare. This must change now.
@nee_massey Please keep advocating for patients with ME💙
We can’t do much as poorly people to help others, so when we can do small things it feels good. Just gave the Argos couriers a bottle of water each fresh out the fridge. They were proper chuffed. Made me feel useful. #MEAwareness
Please continue sharing & donating
https://t.co/vrDccCH140
https://t.co/IziYFytEV9
#KeepNevraOutOfDV #MECFS #SevereME #VerySevereME #MyalgicEncephalomyelitis #DisabilitySupport #ChronicIllness #MedicalCrisis #MEAwareness #HelpNevra
My poem of the day - THE OLD ME
#MyalgicEncephalomyelitis #MEAwareness #pwME #MillionsMissing #GlobalVoiceForME #SevereME #VerySevereME #longcovid #poetry
1) Wichtiges Statement zu neuroplastischen und biopsychosozialen Ansätzen bei ME. Verfasst von @SGME_CH .
#StopTheHarm #MyalgischeEnzaphalomyelitis #LongCovid #MEcfs #MEAwareness
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