Top Tweets for #Muscle_Dystrophy
This is me,I have muscle dystrophy,no medical treatment so I am dying slowly
#Hassan_Khader
#Muscle_dystrophy
Here is my campaign's valid link
π
https://t.co/b1TSCEligH
This is me,I have muscle dystrophy,no medical treatment so I am dying slowly
#Hassan_Khader
#Muscle_dystrophy
English version:
π
https://t.co/vOU4YPTxkT
German version:
π
https://t.co/w9sBsjo1rE
"You can read about my struggle against MD fromally from 1999 to 2021 beside many years before 1999 ,the period in which the illness was unknown .
#chronicillness
#Muscle_Dystrophy "
By @hasanalnaqour
You can read about my struggle against MD fromally from 1999 to 2021 beside many years before 1999 ,the period in which the illness was unknown .
#chronicillness
#Muscle_Dystrophy
You can read about my struggle against MD fromally from 1999 to 2021 beside many years before 1999 ,the period in which the illness was unknown .
#chronicillness
#Muscle_Dystrophy
"My Journey With Muscle Dystrophy"
It can be distinguished with the period of my unfamiliarity with the illness I had,then the random movements to know about and treat it,after that the diagosis phases and the attempts of searching for treatment after diagonsis.
#LGMD
h-this part of the thread shows the big step I took in Sep 27,28 ,29 2021.
It was travelling to Sana'a to meet a doctor for making a check-up .
#chronicillness
#Muscle_Dystrophy
https://t.co/w2JyVpeHQg
https://t.co/puHVLFJajo
g- this part of the thread shows the preparation steps for my visit to a neurologist in Sana'a .These steps occurred in the period from April to August 2021 .
#chronicillness
#Muscle_Dystrophy
https://t.co/9kGxl4pUJ3
https://t.co/bUjU2A3wm8
f- this part of the thread shows my my rechecking visit to the previous doctor in 2018, and an other visit to an other doctor in 2020 when I felt that my case deteriorated .
#chronicillness
#Muscle_Dystrophy
https://t.co/l35mkzgZ3b
https://t.co/0HJDdrJfKK
e- this part of thread marks my coming back to struggle against MD after a long time of giving up and living without any kind of meds.
It talks about my two visits to a doctor in 2017 an 2018 .
#chronicillness
#Muscle_Dystrophy
https://t.co/BRsyZ0mR1g
https://t.co/YW0WbDWFjd
d-this part part of the thread speaks about my return in 2012 to fight against MD after three years of stop due to lack of any source to go on such a debilitating battle.
#chronicillness
#Muscle_Dystrophy
https://t.co/WAxXSIDP0K
https://t.co/0hW3wWCCV3
c- this part of the thread shows my visits to many doctors in the years of 2004 ,2005,2006, 2009.
#chronicillness
#Muscle_Dystrophy
https://t.co/OJ7J4nSVGh
https://t.co/sju9XrXJXi
b - this part of the thread describes the second attempts in the same year 2002 .
#chronicillness
#Muscle_Dystrophy
https://t.co/jRdq7nKNEo
https://t.co/wwaT6utvc4
a - this part of thread talks about the first attempt after diagnosis.
There was no fornal paper marking it but I depended on my memory.
It was in 2002 .
#chronicillness
#Muscle_Dystrophy
https://t.co/XtWNvXvUxz
https://t.co/hTvnQnmJH4
4- After all first attempts had failed to get any cure for MD ,the tiring trip of non-stop searching for any solution for my case started .
More details were written in the following parts of the thread:
#chronicillness
#Muscle_Dystrophy
c- in this part , the diagnosis was more specific which was , " Limb-girdle dystrophy" and written in a formal report in
.2000
#chronicillness
#Muscle_Dystrophy
https://t.co/1d6AFAFNJK
https://t.co/AeEFFitK9Z
b-in this part of my journey ,the term " Progressive Muscular Dystrophy" appeared clearly for the first time in a fornal report in 2000.
#chronicillness
#Muscle_Dystrophy
https://t.co/dfEecB74t4
https://t.co/j1Nq8rg21v
3- Then new serious movements to find answers for what was happening to me were taken.
It took three steps to find the final answer :
#chronicillness
#Muscle_Dystrophy
2- After I had lost hope to be well, I started to seek treatment randomly .
It was the first time to meet a doctor in my life.
This part of the thread shows the details.
#chronicillness
#Muscle_Dystrophy
https://t.co/E1XXzXFHbn
https://t.co/LDqqmT5GLe
What he said was not new or a surprise for me.
It was known
.
The new thing is that this doctor refers me to an other doctor neurologist in an other governorate to follow my case up
#Muscle_Dystrophy
Update :
Two days ago I received the doctor ,to whom I had sent the CPK and PTH test resuls response via whatsapp .
He said ,"Hassan has an extreme break down in his muscles as the CPK enzyme ratio is above 4000 ."
#Muscle_Dystrophy
UPDATE
After I had done CPK and PTH in 5/5/2021, I sent the results to the doctor 8 days ago but the doctor has been on holiday.
I have been waiting for his answer .
I am gonna do these two tests , PTH and CPK but CPK can't be done here so I need to move to an other city to do it .
I am phobic .
#chronicillness
#Muscle_Dystrophy
I have just got scared at reading this article .
#Muscle_Dystrophy
https://t.co/QRc3BgbypZ
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