Top Tweets for #NETAM2019
Thank you very much to everyone who participated in neuroendocrine tumor awareness month and spread awareness of this rare, and often overlooked disease. Although the month is over, please consider supporting awareness over the entire year. #NETAM2019 @CarcinoidNETs @VHLAlliance
Peptide receptor radionuclide therapy (PRRT) or 177Lu-Dotatate can slow down tumors from becoming larger in patients with metastatic neuroendocrine disease #NETAM2019 @CarcinoidNETs @VHLAlliance @AMEN_SUPPORT @NANETS1
New data shows that there may be better grading cut-offs to help predict how patients with neuroendocrine carcinoma will survive. #NETAM2019 @CarcinoidNETs @VHLAlliance @AMEN_SUPPORT @NANETS1
Patients undergoing liver debulking surgery had improved survival and progression free survival if more than 70% of
their tumor was removed. #NETAM2019 @CarcinoidNETs @VHLAlliance @AMEN_SUPPORT @NANETS1
The number of lymph nodes removed is associated with how long you will survive. >7 lymph nodes taken out may improve your survival. #NETAM2019 @CarcinoidNETs @VHLAlliance @AMEN_SUPPORT @NANETS1
Chromogranin A, or CgA, is the most common tumor marker for neuroendocrine tumors, and is a protein made by neuroendocrine cells. Measurement of CgA must be timed appropriately if patients are being treated with somatostatin analogues such as octreotide. #NETAM2019 @CarcinoidNETs
Follow-up after initial treatment for neuroendocrine tumors will include checking for tumor markers, including chromogranin A, 5-HIAA, metanephrines, and other markers that may be specific to the tumor type, as well as imaging, typically starting with a CT scan #NETAM2019
68Ga-DOTATATE PET scan is a newer imaging technique that has shown benefit over traditional imaging for neuroendocrine tumors, including MIBG scans and Octreoscans #NETAM2019 @CarcinoidNETs @VHLAlliance @AMEN_SUPPORT @NANETS1
A big thank you to our panelists and moderators for a very successful webinar on Surgery for Neuroendocrine Tumors last night! Here is the link in case you missed it. #NETAM2019 @CarcinoidNETs @NANETS1 @AMEN_SUPPORT @VHLAlliance @CureNETs @netcanceraware
https://t.co/P63sNs3PDS
President Eisenhower died after his 8th heart attack and on autopsy was found to have a 1.5 cm left pheochromocytoma. #NETAM2019 @CarcinoidNETs @VHLAlliance @AMEN_SUPPORT @NANETS1
Somatostatin analogues can improve symptoms and progression free survival for patients with advanced metastatic neuroendocrine tumors. #NETAM2019 @CarcinoidNETs @VHLAlliance @AMEN_SUPPORT @NANETS1
Don't forget to tune in tomorrow evening at 7 pm ET for our Neuroendocrine Tumor Awareness Month Webinar! #NETAM2019 @CarcinoidNETs @VHLAlliance @AMEN_SUPPORT @NANETS1
Neuroendocrine tumors can be treated with surgery, chemotherapy, liver directed therapy, octreotide, peptide receptor radionuclide therapy and tyrosine kinase inhibitors. Researchers continue to search for new treatment options. #NETAM2019 @CarcinoidNETs @VHLAlliance
Certain neuroendocrine tumors can be treated without surgery such as with ablation therapy. Please share. #NETAM2019 @CarcinoidNETs @VHLAlliance @AMEN_SUPPORT @NANETS1
Pheochromocytomas can present as a fluid filled cyst on a CT scan. Please share. #NETAM2019 @CarcinoidNETs @VHLAlliance @AMEN_SUPPORT @NANETS1
Pheos and paras can be clustered into two groups: Cluster 1, enriched for hypoxic response associated genes and Cluster 2, enriched with tumors that activate kinase signaling and protein translation. This helps researchers discover new genes & targeted Rx. #NETAM2019
About 40% of patients with pheochromocytomas and paragangliomas have a genetic mutation (germline) they can pass down to their kids. Von Hippel Lindau (VHL) and SDHB are two of the more common genes. Please share! #NETAM2019 @CarcinoidNETs @VHLAlliance @AMEN_SUPPORT @NANETS1
MEN 2A is a family condition that can lead to patients have numerous pheochromocytomas. Spread the awareness. #NETAM2019 @CarcinoidNETs @VHLAlliance @AMEN_SUPPORT @NANETS1
Liking our daily posts for #NETAM2019? Many thanks to @TheAAES Information Technology committee members and especially @divot999!
#teamworkmakesthedreamwork
Common manifestations of Von Hippel Lindau (VHL) include pheochromocytomas and pancreatic neuroendocrine tumors. Please share! #NETAM2019 @CarcinoidNETs @VHLAlliance @AMEN_SUPPORT @NANETS1
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