Top Tweets for #NETAM2020
Thank you very much to everyone who participated in neuroendocrine tumor awareness month and spread awareness of this rare, and often overlooked disease. Please consider supporting awareness the entire year. #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

President Eisenhower died after his 8th heart attack and on autopsy was found to have a 1.5 cm left pheochromocytoma. #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

Peptide receptor radionuclide therapy (PRRT) or 177Lu-Dotatate can slow down tumors from becoming larger in patients with progressive metastatic neuroendocrine disease. #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

New data shows that there may be better grading cut-offs to help predict how patients with neuroendocrine carcinoma will survive. #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

Patients undergoing liver debulking surgery had improved survival and progression free survival if more than 70% of their tumor was removed. #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

68Ga-DOTATATE PET scan is a newer imaging technique that has shown benefit over traditional imaging for neuroendocrine tumors, including MIBG scans and Octreoscans. #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

Common manifestations of Von Hippel Lindau (VHL) include pheochromocytomas and pancreatic neuroendocrine tumors. #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

Patients with multiple endocrine neoplasia type 2 (MEN 2) can get many pheochromocytomas in the same adrenal gland #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

There are different types of multiple endocrine neoplasia (MEN). Depending on the type patients may develop pancreatic neuroendocrine tumors or pheochromocytomas. #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

Did you miss our webinar last night for Pancreatic Neuroendocrine Tumors Awareness month? You can check it out now on our youtube channel!
https://t.co/m4darqTvh4 via @YouTube
@VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara #NETAM2020
Most pancreatic neuroendocrine tumors (PNETS) do not secrete hormones that cause symptoms #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

Only three more hours till our Neuroendocrine Tumor Awareness Month webinar at 8pm EST! Tune in to the AAES Facebook Page! #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara
Join us tonight at 8 pm ET for our Neuroendocrine Tumor Awareness Month webinar! Tune in to the AAES Facebook Page! #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara
Urine or plasma metanephrine levels are the preferred tests to look for pheochromocytomas and paragangliomas #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

Don't forget to tune in tonight at 8 pm ET for our Neuroendocrine Tumor Awareness Month webinar! Tune in to the AAES Facebook Page! #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara
Don't forget to tune in tomorrow evening at 8 pm ET for our Neuroendocrine Tumor Awareness Month webinar! Tune in to the AAES Facebook Page! #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara
Pheochromocytomas can present as a fluid filled cyst on a CT scan. Please share. #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

Pheos and paras can be clustered into two groups. This helps researchers discover new genes & targeted Rx #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

About 40% of patients with pheochromocytomas and paragangliomas have a genetic mutation (germline) they can pass down to their kids. Von Hippel Lindau (VHL) and SDHB are two of the more common genes. #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

Pheochromocytomas occur in the adrenal gland and paragangliomas occur outside the adrenal gland. Here is a para-aortic paraganglioma on CT scan! #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

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