Top Tweets for #NFED
สวทช. ชูโครงสร้างพื้นฐาน วทน. “สู้วิกฤตการค้าโลกใหม่ด้วยระบบวิเคราะห์ทดสอบตามมาตรฐานสากล
อ่านต่อ : https://t.co/CZHYfL1ulr
#NQI #ระบบวิเคราะห์ทดสอบ #มาตรฐานสากล #โครงสร้างพื้นฐานวิทยาศาสตร์ #Upskillบุคลากร #มาตรฐานอย #ISO17025 #PTEC #NCTC #CTEC #TBES #NFED
NORD is proud to announce the first of two patient-led organizations who have been awarded grants to build and launch a patient registry on NORD's #IAMRARE research platform this year: the National Foundation for Ectodermal Dysplasias, @nfed_org!
#NFED provides comprehensive support for people touched by #EctodermalDysplasia and spearheads research into understanding and caring for these disorders, which affect the hair, nails, teeth, and sweat glands.
By launching a #PatientRegistry, NFED will make yet another advancement in patient-driven research, in which patients and caregivers self-report their experiences to create a comprehensive natural history study illustrating this disorder and its progression over time.
As part of this grant, NFED will also contribute this data to the #RareDisease Cures Accelerator - Data and Analytics Platform (RDCA-DAP), a project of #NORD, @CPathInstitute, and the #FDA.
Join us in celebrating this milestone for the #EctodermalDysplasias community! And learn more about IAMRARE at https://t.co/gAJsFumBOw.
Last chance to reach new heights together! Support NFED and empower those affected by ectodermal dysplasias. Make a lasting impact with your donation today! ➡️ https://t.co/VEzQeGI7pS
Text nfednewheights to 41444 to donate.
#NFED #holidaygiving #donate #makeadifference
Consider joining the NFED. Families impacted by ectodermal dysplasias have praised the organization. Learn about the benefits of membership - https://t.co/oBydR6zn6B
#NFED #EctodermalDysplasias #Families #Support #Advocacy #Community #Awareness #Healthcare
RT NFED_ORG "RT @NortheasternT_F: Awesome! Alex's Super Smiles 5K returns to the Miami Valley! A great to raise awareness for Ectodermal Dysplasia! #NFED @NFED_ORG @springfieldnews https://t.co/DJlC5bfuVo"
Awesome! Alex's Super Smiles 5K returns to the Miami Valley! A great to raise awareness for Ectodermal Dysplasia! #NFED @NFED_ORG @springfieldnews https://t.co/Vqe9itZhdB
We're partnering with @NFED_ORG to bring the #EnsuringLastingSmilesAct (#ELSA) to fruition by telling Congress to pass this bill! This is crucial for the #craniofacial community. Join #NFED’s “Virtual Advocacy Day” on 3/30 to show support! Register @ https://t.co/rYxZT7jSsx!
#myFace has partnered w/ @NFED_ORG to advocate for Congress to pass the #EnsuringLastingSmilesAct, and you should, too! Join us on 3/30 for #NFED’s “Virtual Advocacy Day” to help get this monumental legislation passed. Register at https://t.co/rYxZT7jSsx!
The Dept of #AutomobileEngineering conducted a #CareerGuidance and #SkillEnhancementprogram on 25 Nov 2021. The Speaker KVJ. Prof. Dr. R. Ganesan, Founder & Chairman, #NFED, #NBFF and #CRT highlighted on goal setting, skill enhancement,decision making and career selection.
#cdnpoli #bced #abed #saed #maed #onted #nbed #nsed #peied #nfed #yued #nued #nwted
When you are making ppl more clueless about #gender, you became clueless as the result.
@liberal_party Odd. Your government states there is no definition for women - so how can you declare their rights as human rights?
No. You have to do a lot better than this.
#ReleaseTheGBA
#transparency
#SexBasedRights
#AmendC16
To start.
#EnsuringLastingSmiles Act (HR.1916, S.754): Protect ALL Americans born with congenital anomalies requiring medically necessary care to repair, replace, or restore bodily functions
#TeethAreNotCosmetic
#CongenitalAnomalies
#Teeth
#Dentures
#NFED
Staying the course when dealing with your health insurance to pay for your dental care can be tough. We can help! The #NFED has updated our insurance resources to help you with your journey to success! Learn More - https://t.co/lnd0oOE4IR
#ectodermaldysplasial #Insurance
Join us for the 7TH ANNUAL SWEAT IT OUT 5K (Virtual & In-Person) to benefit the National Foundation for Ectodermal Dysplasias (NFED) in honor of their son, Nicholas, who is affected by #HypohidroticEctodermalDysplasia. Details on the #5k:
https://t.co/TnMxj4WNou
#NFED #HED
It's Volunteer Appreciation Day and we are saluting our dedicated volunteers! Read what they did to advance our mission - and in a pandemic!
https://t.co/FWzj5GVZwD
#Volunteers
#AppreciationDay
#NFED
Be the VOICE of Change! Spread awareness, raise support, and share your story. There are so many ways to create change, and every one of them involves you!
To make change today - https://t.co/54uE2WVfIN
#VoicesofChange
#NFED
Lacy Lights journey in finding a treatment for her daughter Lily was no easy task. Lily was born with (IP), which comes with skin rashes and blisters with the potential for eye issues.
To read more about this remarkable journey: https://t.co/ZthHwAIM2D
#NFED
Describe your perfect event? What would you do? Where? With whom? What foods would you eat? This could be anywhere on the planet, with an individual from the present or past (known or unknown), eating whatever food comes to mind! Please share your ideal event below!
#NFED
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