Top Tweets for #NFSupport
As National Nurses Week comes to a close, we want to extend a heartfelt thank you to the nurses who support the NF populations with compassion!
#neurofibromatosis #ConnectingNF #NationalNursesWeek #ThankYouNurses #NFSupport #HealthcareHeroes
Massive #CharityTuesday shout-out to Wayne, completing the @nycmarathon with just 5 weeks training, amazing effort! Huge thanks to Wayne + all those who've sponsored him, you can find his page + more of his story at: https://t.co/Zu3pSYjNVF
#NFSupport #NF1 #NFStrong 💪 🏃 🏁 🗽
Tower 42 will light up tomorrow night for World NF Awareness Day!
@nervetumoursuk
#ShineALightOnNF #WorldNFAwareness #WorldNFDay #MakeNFVisible
#Neurofibromatosis #NF #NFAwareness #NFSupport #Building #LookUp #Surprise #TakeALook #Proud #ProudToWorkHere #Tower42 #Lights
Travelling with NF? We've got you covered!
Our new guide breaks down essential info to ensure your journey is smooth and stress-free. Learn your rights and the assistance available.
https://t.co/DEjiXgxTtc
#TravellingWithNF #DisabilityAwareness #NFSupport
Greater awareness aids diagnosis & treatment. Help us build awareness & support among GPs & others involved in the care of those diagnosed with #NF (#NF1, #NF2 & #Schwannomatosis), by providing them with the necessary education.
iNForm your #GP: https://t.co/A0n0gkDMoq
#NFSupport
#SmallCharityWeek
It’s important for your GP to listen to your concerns about how #NF is affecting you.
Our Specialist NF Support Network are there to support you. They can advise GPs & ensure that medical professionals have up to date guidance.
#NFSupport
@SmallCharity_Wk
#SmallCharityWeek
Our @NerveTumoursUK Facebook Community group is a safe space for individuals to connect with #NFWarriors. Engage in discussions, ask questions, share your experiences & support each other.
Join: https://t.co/5osHY0swZE
#NFSupport #NFCommunity
@SmallCharity_Wk
This poem by Liz, who has #NF1, reflects on the visible and hidden symptoms of #NF and highlights the need to raise awareness and ensure that individuals and families living with NF are supported.
#SmallCharityWeek #MakeNFVisible #NFSupport #WeAreHereForYou
@SmallCharity_Wk
Our Specialist #NF Support Network will help you understand #NF1, #NF2 & #SWN & ensure you have access to the help you require. Call our Helpline 07939 046030 https://t.co/IkKEGreuSw
9am-5pm Monday, Wednesday & Friday
#WorldNFAwareness #ShineALightOnNF #MakeNFVisible #NFSupport
Join our #NTUKLottery & help us raise funds so we can provide medical care & support to the 26,500 with #NF in the UK. Win weekly cash, Super Draw on 29 June - an Amazon gift card or £1000 cash & £25k jackpot. Play today: https://t.co/jzqRmQiL8i
#LotteryGoodCauses #NFSupport
N. Ireland: Siobhan is the lead Genetic Counsellor for NF. She is based at Belfast City Hospital & sees a wide variety of patients from across Northern Ireland.
Read more about Siobhan: https://t.co/t2rkeXh3WN
#ShineALightOnNF #NFSupport #WeAreHereForYou #WorldNFAwareness
Birmingham, West Midlands, Shropshire, Staffordshire: Carolyn is the NF1 Support Specialist based at Birmingham Women’s & Children's Hospital NHS Foundation Trust.
Read more about Carolyn: https://t.co/MhbdIkt5yC
#ShineALightOnNF #NFSupport #WeAreHereForYou #WorldNFAwareness
Living with #NF can be challenging & can impact your #MentalHealth. Taking care of your mental well-being is as important as managing the physical symptoms.
Check out these resources for help when things are difficult: https://t.co/hnhEDZHnDQ
#MentalHealthAwareness #NFSupport
Warwickshire, Worcestershire, Herefordshire & Coventry: Melanie is one of our two Specialist NF Advisors based in the West Midlands.
Read more about Mel: https://t.co/YtDYDoMs0O
#ShineALightOnNF #NFSupport #WeAreHereForYou #WorldNFAwareness
Hampshire, Dorset, West Sussex (part), Wiltshire, Isle of Wight: Tracey is based in the Wessex Clinical Genetics Service at the Princess Anne Hospital in Southampton.
Read more about Tracey: https://t.co/pPxmsgslju
#ShineALightOnNF #NFSupport #WeAreHereForYou #WorldNFAwareness
Shout out to Gareth running tomorrow's Leeds Marathon - his dad has #Schwannomatosis & his aunt had #NF. "I’ll be completing the 26.2 miles on behalf of those who never got the chance to run & those who no longer can."
Support his efforts: https://t.co/vPWgmGg2ki
#NFSupport
London: Charmaine works in the #NF Clinic at Guys & St Thomas’ Hospital (GSTT) in central London, looking after patients in Greater London & within the M25.
Read more about Charmaine: https://t.co/30a3q3HbkV
#ShineALightOnNF #NFSupport #WeAreHereForYou #WorldNFAwareness
Shout out to Scott who is running Monday's Milton Keynes Marathon, in memory of his younger brother Ben who had #NF1.
Support Scott's efforts to raise awareness of #NF: https://t.co/e2Vgpf3uNm and support the #NFCommunity.
#WorldNFAwarenessMonth #MakeNFVisible #NFSupport
Nerve Tumours UK works hard to raise awareness of #NF & the services we provide amongst the #GP community. We hear that making an appointment with your GP is getting more difficult. Please complete our survey & help us improve services for you: https://t.co/Hi7xnjqNkZ
#NFSupport
Nerve Tumours UK works hard to raise awareness of #NF & the services we provide amongst the #GP community. We hear that making an appointment with your GP is getting more difficult. Please complete our survey & help us improve services for you: https://t.co/sbiNgmVCb5
#NFSupport
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