#NotThatRare - Twitter Hashtag

over 2 years ago

26 years ago today I lost my sister to glioblastoma. Since then my mother, my oldest friend’s mother and a friend have been diagnosed with other forms of brain tumour, so I’m really pleased to see this petition for increased research funding make it to Downing St. #NotThatRare

Brain Tumour Research @braintumourrsch

over 2 years ago

We've done it! Thanks to everyone who has signed our petition, which made this happen. It has been an exciting day, which will hopefully bring much-needed change. Thanks to, Sam Suriakumar, @shitscaredmum, @theblkgardener, and @theoburrell for joining us. #BrainTumourPetition

braintumourrsch's tweet photo. We've done it!

Thanks to everyone who has signed our petition, which made this happen. It has been an exciting day, which will hopefully bring much-needed change.

Thanks to, Sam Suriakumar, @shitscaredmum, @theblkgardener, and @theoburrell for joining us.

#BrainTumourPetition https://t.co/0fJyBR9tGv

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Bombers 💣 @Bombers_io

about 3 years ago

Sunday Drip 🦩 Like, RT, Tag 3 Friends. We are giving away 1 x WL Role. #NotThatRare #StillClean

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Rare Disease Advisor @RareDisease_Adv

over 3 years ago

📝Quiz time! #RareDiseaseDay is quickly approaching. How well do you know rare disease facts and statistics? Test your knowledge and share your score! https://t.co/2En8q0ysgi #RareDisease #RareDiseaseAdvocate #RareDiseaseAwareness #Zebra #CareAboutRare #NotThatRare

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Kristen Titus @kristen_titus

almost 6 years ago

Payton’s latest non-sports article 💛 #pediatriccancerawareness #morethan4 #notthatrare

Payton Titus @petitus25

almost 6 years ago

September is Pediatric Cancer Awareness Month. As a childhood cancer survivor, this story is very special to me. My latest for @TheAlligator looks into how the pediatric oncology/hematology community at UF Health has been affected by the pandemic. https://t.co/vT2oyhHQYv

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Def_Ink 😜✌️ @def_inkognito

almost 6 years ago

My name is Mona #nft #cryptoart #cryptoartist #arttoorder #rarible #rare #notthatrare @justintrimble https://t.co/9hIrwxmTSS

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Juan Trevino @jtrevs77

over 6 years ago

@richeisen Like when a team has 10 with 1:08 left in the 1st half? #Notthatrare

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Alison 🛡 @AlisonLeanneC

almost 7 years ago

It turns out the chances are pretty high. It is not the first time when first responders have known about #dissociation. People talk about relatives having conversion disorders and one police officer said that his best mate's mum had #DID so he grew up around it. #NotThatRare

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Seth M. Pollack @immunosarc

about 7 years ago

Fantastic #sarcoma patient and care giver education conference! The community of sarcoma patients in the pacific northwest is so amazing. Great photos from @nwsarcoma along with @SeattleCCA, @fredhutch and @NationalLMSF #notthatrare #TheMoreYouKnow #caregivers

immunosarc's tweet photo. Fantastic #sarcoma patient and care giver education conference!

The community of sarcoma patients in the pacific northwest is so amazing.

Great photos from @nwsarcoma along with @SeattleCCA, @fredhutch and @NationalLMSF

#notthatrare #TheMoreYouKnow #caregivers https://t.co/OBux5PTjyB

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ABPI

@ABPI_UK

almost 8 years ago

Have a look at the @EMA_News infographic on orphan medicines. https://t.co/fDgXRPyUBV There are over 6000 rare diseases and 1 in 17 people across the EU has one. That is an estimated 30million people #notthatrare @Shireplc @rarediseaseuk

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Camille Bérubé, PLY @CamBrub

over 8 years ago

Yep #GreatnessIsRare but it is #NotThatRare to find limbs hanging out here and there at #Paralympics 😂 https://t.co/VwUALjDa2K

Brian McKeever @brianmckeever

over 8 years ago

Things you only see at the #paralympics

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Cyclops Trader

@Cyclops_Trader

over 8 years ago

#diamonds are so rare.... that almost every engaged and married couple have one! 🤔🤔🤔🤦‍♂️ #what!? #notthatrare #beleivewhattheytellyou #dontaskquestions

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Eddie Timanus @EddieTimanus

over 8 years ago

I’d say Bill Walton is in rare form tonight, but then again… #NotThatRare

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Tezc @AvilTezc

over 8 years ago

I remembered I had a smurf at some point and I found it! Doing some catch up I got some opals and why not try luck and welp... first chest: Smurf’s on 5v5 early now I guess... #notthatrare