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THE BEST NEWS! 💕 The HSE has approved the reimbursement of Skyclarys for Irish patients living with Friedreich’s ataxia. The decision by the HSE's Senior Management Team followed a revised, substantially improved financial offer for the drug from pharmaceutical company Biogen. While Skyclarys is not a cure, advocates and clinical evidence indicate it can slow down disease progression by up to 55 per cent. Huge congratulations to the entire Friedreich’s ataxia community and all the tireless advocates whose dedicated campaigning helped make this life-changing result possible #Skyclarys #friedreichsataxia #HOPE https://t.co/z6OMDwVi4W