Top Tweets for #OstomyIsNotATragedy
Aside from the very rightful ordeal that’s transpired from the discussion👇🏽, why’s this Q posed?
Do they (surgeon) prefer end Ileostomy or temporary stoma?
Where’s patient desires⁉️
🗣TONE of stoma/ostomy convos is a crucial part to stigma!!📣
@PSOGI_EC #OstomyIsNotATragedy
@PSugarbaker @MISIRG1 @SPeritoneum @WimCeelen @ISSPP1 @alarjosan @FaheezM @DeliaCortesGuir @AndreasBrandl8 @DrFloresAyala @wim #PSOGICASE
@PSugarbaker
After a total colectomy, do you prefer an end ileostomy that is permanent or
an ileorectal anastomosis with a temporary stoma ?
@MISIRG1 @PMPSurvivor @AnneMarieDavy1 @acpmpresearch @AppendixPMP
READ: P3 of @nataliesparacio #Ostomy series “So, You Have an Ostomy” focuses on 2 areas.
1) stoma names. Some don’t & some find it helps to accept new normal.
2) relationships/dating. “you are still you, beautiful as ever.” #OstomyIsNotATragedy https://t.co/M7IA5qLS5i
Did you catch part 2 of the series “So, you have an ostomy?” This part touches on dietary changes, HYDRATION, and if you have travel plans...aka, regular life with an #ostomy. #OstomyIsNotATragedy
In Part 2 of “So, You Have An Ostomy,” I interviewed #ostomates about everything from diet, to bag changes, & how best to pack when traveling. It’s my hope this makes you feel better equipped should you need to make these lifestyle changes. #IBD
https://t.co/gY2HMFZjF9
I don’t know what age is the ideal age this NP has in their mind one receives an #ostomy, but I was 23. 🤷♀️ How old were you when you received your ostomy? Share below👇🏽👇🏽 for @ostomydiaries & I.
#MentalHealth #OstomyIsNotATragedy #OstomyFamily #Healthcare
I want to caution physicians in the language they use with patients. I saw a new NP yesterday. After telling her I strive to stay positive, and my #ostomy is super manageable she said, “yeah, but it’s so terrible to get an ostomy at such a young age.” Um, excuse you. 🙃
@Empoweringpts9 #Right2remainsexy #ostomyisnotatragedy #togetherwerestronger #theostomycommunitytogether thank you so much for letting me part of this amazing picture of fantastic ostomates showing the world 🌎 there proud
6yrs ago the #ostomy community came together to show #ostomates have the #Right2RemainSexy and we continue to work to break stigmas. We’ve recently updated the collab still showing #OstomyIsNotATragedy.
*All photos granted permissions to be used everywhere* #OstomyFamily

All with a #stoma #ileostomy check this one out! Fab way to bring together so many #ostomates 🤓💜 #Right2Remainsexy #OstomyIsNotATragedy
6yrs ago the #ostomy community came together to show #ostomates have the #Right2RemainSexy and we continue to work to break stigmas. We’ve recently updated the collab still showing #OstomyIsNotATragedy.
*All photos granted permissions to be used everywhere* #OstomyFamily

A lot has changed in the 6yrs in our lives, but one thing is still the same...we’re all living a life because we had an #ostomy at some point! Life can go on and #ostomates are here to support you.
#OstomyIsNotATragedy #OstomyFamily

6yrs ago the #ostomy community came together to show #ostomates have the #Right2RemainSexy and we continue to work to break stigmas. We’ve recently updated the collab still showing #OstomyIsNotATragedy.
*All photos granted permissions to be used everywhere* #OstomyFamily

More disturbing abt #Ostomies from medical community. These ppl are publicly using being an RN as reason they’re “allowed” to laugh abt an #ostomy.
(Attaching 4 public comment photos of the many times this person has said they’re allowed & we need to laugh)#OstomyIsNotATragedy

Here’s the link to the comedians video from 2017, which she reposted this week. The comments repeating the #colostomy punchline are tough for our #ostomy community continuing to work to #BreakTheStigma.
https://t.co/xyjTAkX53d
#OstomyIsNotATragedy #NotAPunchline #MentalHealth
🗣Reminder for all, esp HCP’s abt SoMe. If u say it on SoMe publicly, make sure ud say it 2 someone’s face. Just bc ure an HCP, doesn’t make it right. #Ostomates aren’t a punchline 2 a “healthies” joke.
#OstomyIsNotATragedy #BreakTheStigma #OstomyAwareness #NotAPunchline #Ostomy

🗣THANK YOU @Aerie for including my dear twin for this #AerieREALisms campaign and continuing to show WE can wear anything with an #ostomy! 👏🏽
You look dashing, @GutlessGlamour! 🙌🏽
#AerieReal #OstomyIsNotATragedy #OstomyFamily

Introducing... AerieREALisms. This is about those LOL moments we all have. Because #AerieREAL is never taking yourself too seriously. Share your REALisms with #AerieREAL @Aerie!
@JohnRTMonsonMD @jennympipe @dubaicolorectal @ColorectalDis @m_pera_roman @SWexner @HoudiniMD @JNoguerasMD @PhilFleshnerMD @FezaRemziMD @juliomayol @drivadeneiramd @vincentobiasMD @ehaasmd @Colon_Surgeons @Neil_J_Smart @debby_keller @KarenZaghiyanMD @AdventHealthCFL @TAMISYoda @ACPGBI_PLG I understand what you’re trying to say, but I’d like you to take a look at your word choice. It’s not a defeat by the surgeon or the patient to have an ostomy. It may not be ideal, but it’ll be ok, and it starts in the CRS & GI office. #OstomyIsNotATragedy
Such brave, beautiful & bad ass people! #BowelCancerAwarenessMonth #thisisbowelcancer #ostomyisnotatragedy #ostomyawarenes
Deborah James (@bowelbabe) leads powerful photo series showing bowel cancer doesn't discriminate https://t.co/S8LFzin06Z @bowelcanceruk #thisisbowelcancer
@nypost How about running a follow-up article on bullying, working to stop the stigma on the #ostomy/bowel (bladder) community, and mental health? No need for a sensationalized headline and adding to the stigma in the article.
#OstomyIsNotATragedy #ostomyfamily
#OstomyIsNotATragedy is what comes to mind. “Best decision I ever made...”
life after #ostomy doesn’t end—many times it’s beginning again!!
#IBDChat #OstomyDayUSA
Happy anniversary to #OstomyIsNotATragedy!! Hard to believe it was 5 years ago! Keep fighting #ostomy stigma!
#right2remainsexy #ostomyfamily #thankful4ostomy

Kudos to @GovCanHealth, @TheStarPhoenix, and many #ostomy activists for the reporting of the advert and the subsequent withdrawal of this version of the campaign. Thank you for listening to the larger focus group of the audience.
#OstomyIsNotATragedy
https://t.co/moRI1zwRYL
UPDATE: For all following along the @GovCanHealth and @TheStarPhoenix advert, here’s an update. Voicing concerns in a responsible and reasonable manner are the key. Make sure to thank them for listening to the concerns.
#OstomyIsNotATragedy #ostomy #ostomyfamily

Well done @JessGrossman hopefully with yourself and other advocates in Canada you can get this stopped! The whole ostomy community are horrified this is being used as a deterrent and are behind you all #OstomyIsNotATragedy @GovCanHealth https://t.co/aULXX4bwTt
Ostomy friends, share your support and demand that @GovCanHealth remove all reference to the #ostomy from their anti-smoking campaign and an apology from the Minister of Health, @GPTaylorMRD.
Go to the @uncoverostomy Facebook page ➡️ https://t.co/pkkunRnSOC
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