Top Tweets for #OurHealthCounts
Big issues here.
In NSW, we have some good intellectual disability health teams. BUT, they are only allowed to do one off assessments.
Also, Covid vaccination showed the need for last resort sedation clinics. Where are they now?
#OurHealthCounts https://t.co/Jj3Rq1lvDQ
“Why in a hospital that's equipped with everything, every scan, and every test why they didn't do that, on our non-verbal child who is in pain constantly?" her father Asif Ali asked.
#OurHealthCounts https://t.co/QNGpejglpq
We need
1. All parties to commit to the #intellectualdisability health National Roadmap
2. A National Centre of Excellence NOW to drive action
End #deadlydisabilitydiscrimination #ourhealthcounts #ourvotecounts @James_Stevens @ScottMorrisonMP @JoshFrydenberg @birmo #Budget2022
It’s World Down Syndrome Day. Here’s my sister, Emma, with my Mum, brother & his family. She died in 2018 w dementia but we advocated for her to stay alive & well from go to woe. Many folk with #ID don’t have family who can do that. #WDSD @GregHuntMP @Mark_Butler_MP @CIDvoice

10 days to #Budget22 @JoshFrydenberg @Birmo @ScottMorrisonMP @GregHuntMP
People with intellectual disability are looking to you.
Dying 27 years younger with up to 50% of deaths preventable.
We must stop the #deadlydisabilitydiscrimination
Now!

Thank-you @GregHuntMP for your commitment to the Roadmap to improve health for people with intellectual disability (ID). Please ensure the National Centre of Excellence in #ID Health is funded #ourhealthcounts
Huge shout out to the Hughes family. We do the same for our 24 yo son with #ASD & #ID. Sadly, not every family can. #Pharmacists can help reduce medication-related hospital admissions through #collaborative #medicationreviews and providing #QUM services @PSA_National @DRC_AU
People with intellectual disability (ID) die 27 years earlier than the general population.
Up to half the deaths of people with ID are preventable.
Many of these deaths are medication related
#ourhealthcounts @CIDvoice @PSA_National

Invaluable work as usual from @3DN_UNSW
#OurHealthCounts
Our newly published systematic review provides updated evidence that various physical health conditions are common in people with intellectual disability, indicating more complex health needs than previously known of this group. Read more: https://t.co/CFxnxhT1ev

Socially distancing as we leave parliament after six valuable meetings on #NDIS and #OurHealthCounts

Great to talk #OurHealthCounts and the next election with @Mark_Butler_MP @3DN_UNSW
Much to be done on the health of people with intellectual disability.
Great talking #NDIS and #OurHealthCounts with @Jordonsteele
A great advocate for people with disability.

Great to be working with @TheRACP and @DrJackiSmall on better health for people with intellectual disability.
#OurHealthCounts
The RACP welcomes the Australian Government’s additional funding in the Budget to improve health services for people with #intellectualdisabilities and says it will make a much-needed difference for them. Read media release > https://t.co/3vKAoDce1O
Excellent news from the budget
- better annual health assessments
- a national centre for intellectual disability health
- developing content about intellectual disability health for health professionals
#OurHealthCounts
We applaud 3 more steps from @GregHuntMP towards good health for people with intellectual disability
$6.7m for better annual health assessments
$1.4m to co-design a centre of excellence
#OurHealthCounts
1/2
@3DN_UNSW @DrJackiSmall @QCIDD @NDISDeane @inclusionoz @dana_advocacy

#OurHealthCounts says @GregHuntMP
2/2
$4.6m for intellectual disability curriculum development for health professionals

We applaud 3 more steps from @GregHuntMP towards good health for people with intellectual disability
$6.7m for better annual health assessments
$1.4m to co-design a centre of excellence
#OurHealthCounts
1/2
@3DN_UNSW @DrJackiSmall @QCIDD @NDISDeane @inclusionoz @dana_advocacy

Just 6 days to the federal budget
Looking to you @GregHuntMP @JoshFrydenberg for new money to counter #DeadlyDisabilityDiscrimination
#OurHealthCounts say people with intellectual disability
@3DN_UNSW @QCIDD @inclusionoz @DownSyndromeAu @CatiaMalaquias @NDISDeane @DrJackiSmall

Yet another inquest, yet more neglect.
#deadlydisabilitydiscrimination
#OurHealthCounts https://t.co/DPi6mSPGiQ
@JimSimpson53 - the national roadmap on the health of people with intellectual disability must “SIMPLY STOP THE NEGLECT” that @DRC_AU has exposed in the health system.
#OurHealthCounts
@3DN_UNSW @DrJackiSmall @QCIDD @dana_advocacy @inclusionoz

@Trollor1 sets the context of health reform for people with intellectual disability - against the WHO building blocks
#OurHealthCounts
@3DN_UNSW @QCIDD @DrJackiSmall @inclusionoz

Setting the scene at the health Roundtable
Listen to Jaquie Mills’ experience of mistreatment of her son:
- nearly died from appendicitis
- permanent foot damage
- nearly died after extraction of teeth
#OurHealthCounts
@juliepianto @JayneEdHealth @CatiaMalaquias @NDISDeane
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