Top Tweets for #PANDASPANS
Una mare inicia una campanya de recollida de signatures per al reconeixement de la síndrome de PANDAs PANs a Espanya #PANDAsPANs #MalaltiesMinoritàries @sanidadgob @vikodeve87 @plataformamm @Change
https://t.co/t2JSMxYjgH
7 ottobre – Pantheon di Roma
La Banda Musicale della @GDF suona per la Giornata Mondiale PANS/PANDAS
💚Nel cuore di Roma, la musica diventa voce di speranza accanto a famiglie e bambini che affrontano ogni giorno questa battaglia.
#GuardiaDiFinanza #Pantheon #Roma #PANDASPANS
I hate pandas,
My kids in a flare.
It legit sets the who house a blaze.
I’m not feeling great either.
Send prayers and good thoughts
#pandasmom #pandaspans #pandasawareness
We envision a world where all health professionals widely recognize the role infections play in pediatric neuropsychiatric conditions so they are promptly diagnosed and treated.
Join us by sharing this video with your social networks!
#autoimmuneencephalitis #PANDASPANS
It's really weird how quickly my neurological signals change - I was having a really severe tic episode then suddenly like a switch the tics stopped and got replaced with an episode of totally different symptoms. #pandaspans #tics #panspandas
I had a dream where I got an allergy test for some reason and it came back saying that I was allergic to my brain and then I woke up like "yeah about right." #pandaspans #panspandas
Today I tried to go to the garden centre to get xmas decorations. Sadly, I was too weak to get out of the car once I got there so instead my dad just drove me around to look a xmas lights as I couldn't walk about but it was still nice. #chronicillness #lyme #pandaspans #POTS
This is Fleur’s story, the consequence of COVID, EBV and tonsillitis resulting in her immune system dysregulating and attacking her brain. @panspandasuk @RevDavidSenior @RobinMillarMP @timubhi @1goodtern @MailOnline #panspandas #MedTwitter #edutwitter https://t.co/5gvubG2LIb
Would be good to get Fleur's story on the psychiatric consequence of infection trending.
#pandas #pandaspans #pans #panspandas
This is Fleur’s story, the consequence of COVID, EBV and tonsillitis resulting in her immune system dysregulating and attacking her brain. @panspandasuk @RevDavidSenior @RobinMillarMP @timubhi @1goodtern @MailOnline #panspandas #MedTwitter #edutwitter https://t.co/5gvubG2LIb
I hate that my chronic illness makes me too weak, unwell, and fatigued to take all of my supplement doses, but I can't get better without taking them frequently. I swear this illness just tries to feed itself. #Lyme #POTS #PANDASPANS
@LadyBraginton @BBCMorningLive @PandasPans @dollyjoyner Patients on a case by case basis. Interested candidates should please submit their requests via the new patient form on the "Contact" page of our website. #pandaspans #pandasawareness
Thankful for doctors who recognize the importance of early treatment!
@hopeforvirginia
#professorofmedicine #chiefofinfectiousdisease #ucla #schoolofmedicine #families #virginia #treatment4panspandas #panspandas #pandaspans #panspandasawareness #panspandastreatment #help #va4pa
When my tics are mild, my post-exertional malaise, POTS-like symptoms, muscle weakness and fatigue are worse.
When my tics are severe all of those symptoms are milder or gone and I have my usual personality back.
The brain is weird. #tourettes #chronicillness #pandaspans
My younger son is 15, diagnosed on the autism spectrum at 2. His primary diagnoses changed this year, and I'm not just talking about a change for insurance purposes to cover IVIG. I share with a passion so that even if it's 1 mom reading this, she stays encouraged.
#pandaspans
After going down the rabit hole I see how much of my advocacy efforts were geared toward calling out doctors. Those who blatantly refuse to do their due diligence and properly assess & treat #pandaspans
Now, I'm feeling led to start calling out these insurance companies.
I've watched too many families torn apart, destroyed. I've watched my younger son lose his childhood. I've been called radical, even crazy. But, I'm still speaking up and out against this injustice.
#pandaspans #ae #bge #brainonfire
Let's redefine our views on war, warfare.
It's a war on the mind 🧠 🔥
#unlearn #relearn #pandaspans
#autoimmuneencephalitis
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