Top Tweets for #PATIENTVLOG
@bccww @BritAsianCancer The #DWPPIP process is the definition of gaslighting. It takes inner strength to put yourself through such a dehumanising process
Many do not have a choice and have to apply
- which is the very reason why PIP exists!!
#Madness
#TeamPatient #PatientVlog
@VersusArthritis ๐
Hands up if people around you don't believe #brainfog is a real part of your condition and you sincerely appreciate @VersusArthritis highlighting this
#ReelLifeWithArthritis
#autoimmune #RA #rheumatoidarthritis #vasculitis #Fibromyalgia #patientvlog
https://t.co/hWfRS3jSLr
Give us a ๐๏ธ if you can relate.
#ReelLifeWithArthritis
@VersusArthritis @UoAEpi ๐๐ฝ
#Vasculitis needs greater investment and research.
I find it a painful disease when flaring. It is also difficult to explain to others. Good to see this focus on it ๐๐ฝ
#PatientVlog #RareDiseaseDay
https://t.co/LgwQ0YmMyY
This #RareDiseaseDay we're putting the spotlight on #vasculitis, and the amazing work our researchers at the Aberdeen Centre for Arthritis and Musculoskeletal Health (@UoAEpi) are doing with their study VOICES๐
https://t.co/JLxbvfSm5i
@VersusArthritis I have late-stage, stage4, irreversible Rheumatoid Arthritis.
While the pain is unbearable, causing misery, there are days when it's less so.
New drugs and tests make it easier to diagnose and treat
#MyArthritisMyStory
#WorldArthritisDay
#PatientVlog
https://t.co/3DODEKWnOm
@RyanNCTweets Tests are crucial for a patient's early and accurate diagnosis. I was tested for years, age 9 to 30. I was continuously told my NHS tests were negative
at aged 31 a different NHS hospital finally tested + diagnosed me, by which point my diseases were irreversible
#PATIENTVLOG
@DeborahAlsina @VersusArthritis The story of my life
#Rheumatoidarthritis #Vasculitis #Flareup #PatientVlog
Thanks for posting this @DeborahAlsina
My flare-up has been on fire for three long painful days
#PatientVlog
@Kellgrencentre at my appt, clinician faced with a new IT system which did not work so she asks
'First, tell me your prescription list?'
How frustrating for the clinician and I; we're having the same discussion, relying on my memory, not on NHSIT, still!
Well, I did say I was angry with NHS today, maybe tomorrow I'll be calmer, kinder and a little less open and honest
#PatientVlog #NHS
I'm angry, dissappointed and frustrated with (parts of) the #NHS today.
It's outdated thinking when it comes to:
tech
patients-needs
womens-needs
commissioning
procurement
...belong in the bin
Can we do an @elonmusk and sack all those who are holding it back?
#PatientVlog
#PatientVlog
Yesterday I travelled to a hospital, spent hours waiting around, for a diagnostic test that could have been carried out in Primary care, or the community or even the supermarket, if NHS had redesigned pathway, invested in tech
#futureNHS
#breastcare
After months awaiting an urgent referral, today, at long last, I'm at the Nightingale breast clinic. (Not breast cancer, I think๐ค๐ฝ) #PatientVlog
Anyhow...I'm sat in the exact same seat I used to sit with #PatientXx when she had appts for her #BreastCancer ๐ฅ #DeepBreaths
#PatientVlog
I've had something weighing on my mind. Or on my chest rather: recurring #MondorsDisease also known as #thrombophlebitis
https://t.co/sLCKxkxz6T.
#PainAwarenessMonth
When asked 'how are you?'
Patients like me automatically answer 'good - thanks for asking'
The reality is we're never good, we're just used to the pain.
Some days are better than others but the pain is always present
#PatientVlog
#ChronicPain
#TeamPatient
This thread ๐ฑ I'd be bankrupt if this happened in the NHS
#PatientVlog
#PrescriptionMeds
#PharmacyHour
President Biden and Democrats just capped seniorsโ prescription drug expenses at $2,000 a year.
From personal experience, I know patients like me viewing this video will feel physical pain watching the movement's in pilates - that's how intense our chronic pain + disabilities are
but no one would know looking at us, not even our closest friends and families
#PatientVlog
@Trisha_the_doc @mancunianmedic @bmj_latest I've discharged myself early a bunch of times because my rest is disturbed by some staff and vistors who seem to be oblivious that patients are there and sick.
At home I can sleep and get a swifter, better recovery
#PatientVlog
https://t.co/SYiPRvecVM
#TeamPatient๐
#TeamNHS๐
@Trisha_the_doc @mancunianmedic @bmj_latest Absolutely @a_ottaway.
As is too often the case, the patient, the end user, the customer, is forgotten.
Not only does the noise pollute patient' peace and sleep, it's disrespectful. A #Patient is lay in a hospital bed because they are sick, some more than others. #Inconsiderate
@Trisha_the_doc @mancunianmedic @bmj_latest What's missing frm BMJ piece on noisy hospitals is #PatientExperience big issue of noise from #NHSstaff on wards, who are speaking +laughing, v.loudly, disturbing patients on wards in close proximity.
Beyond good bedside manner is good customer service
#TeamPatient #PatientVlog
#PatientVlog
It's quite a challenge to work when you are sick and your body and brain are failing you, skull to toes, the whole lot
but we keep going because we have to put food in the bellies of our kids, keep them warm and safe - plus being purpose-driven is good for our minds
@BrennanSurgeon When bad news needs to be shared, I want to know full details:
best/worst-case scenarios
short/mid/long-term likely outcomes
ask #TeamPatient how much they want to know; if they ask, don't hold back info
#PatientXx #PatientVlog
#TeamPatient #PatientEd
#TeamSurgical #TeamSurgery
If I had a choice, I'd choose my #rheumatoidarthritis over my #Vasculitis.
My RA is 'very severe and late stage', so says the clinician. It's bloomin' 'orrible ๐ค
But the vasculitis pain is even worse. A strange sensation of a mixture of pains ๐ฑ quite unbearable
#PatientVlog
#TeamNHS often get an unfair hammering. Sometimes it's fair, at other times, it's really not.
#TeamPatient must play their role and take responsibility.
That's how the teams can all best work together.
#MedLearn #PatientVlog #PatientXx #LivedExperience
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